B-12 injections

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Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/2/2010 4:17 PM (GMT -7)   
scoolI get a b-12 injection every 4 weeks. I've noticed afterwards I'm more relaxed for a few days and for 2 nights I have wonderful sleep with lots of dreamstongue. I wonder how often others get their injections and what results you get from it?  Rob
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 3/2/2010 4:32 PM (GMT -7)   
I too have B12 injections but only every 3 months, when I get it I do sleep well, and boy do I know when I'm due for it. I start itching like mad before I have it, and generally feel quite low.
I have noticed though that most seem to have it every 4-6 weeks which makes me wonder if I shouldn't be having it more often especially as I was having chronic diarhhoea for over 3 years (not now due to flare up!), but I will discuss it with the consultant when I see him.
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


randynoguts
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Date Joined Jan 2003
Total Posts : 6050
   Posted 3/2/2010 4:47 PM (GMT -7)   
yesterday.. very 4 weeks.. dont really notice much..
randynoguts 



     http://www.geocities.com/randynogutsweb/


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3110
   Posted 3/2/2010 4:52 PM (GMT -7)   
now that I do mine every month, I don't notice too much of a difference. When I was doing them bi-monthly, I knew I needed them.

But my hair grows like crazy now!!!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 3/2/2010 5:47 PM (GMT -7)   
My GI gives 1000 mg injections and says they should last 6 months to a year. My internist has 100 mg injections and wants me to come in once/month for an injection. So far, I've gotten the 1000 mg injections 1 to 2 times/year.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.


MoobyDoo
Regular Member


Date Joined Sep 2009
Total Posts : 212
   Posted 3/2/2010 9:29 PM (GMT -7)   
Anyone ever try an oral methylcobalamin?  I just ordered some for my daughter. It's a spray. Looks like the exact same red stuff that's in the injections that we used to give my son (an autism treatment that apparently jump starts language for some kids with autism...but not for mine.)

  • snohare
    Veteran Member


    Date Joined Oct 2004
    Total Posts : 2088
       Posted 3/3/2010 5:00 AM (GMT -7)   
    I take sublingual nuggets of methylcobalamin (1000mg ? I can't reproduce the upside down "h" symbol on the bottle - I think it stands for micrograms). One a day, and they definitely make enough of a difference that I will not be without them in future. Dirt cheap, and as cost is always a factor, if nto the deciding factor, for me, I consider these well worth it.
    Usually winter for me is a total write-off due to fatigue and an increase in CD symptoms, not to mention SAD; and of course during flare-ups in summertime, there is not a lot of difference. Since I started taking the B12 I have noticed a much decreased variability in symptoms of all sorts; although it does nothing for the SAD the simple fact that I have more energy and am more lucid with a better memory (the latter admittedly may be more to do with B5 that I take) makes an enormous change in my ability to manage everyday tasks.
    I am convinced that B12 in biological terms in humans, is what the military would call a "force multiplier" (like an AWACS aircraft that co-ordinates air or ground support). It is used as a catalyst in numerous reactions within the body which also utilise other nutrients; if you do not have these other nutrients, taking a B12 supplement will not help. If you take a B12 supplement and it does nothing to improve your symptoms, look at other deficiencies as a cause for your problems.
    But where you do have these other nutrients, constantly having enough B12 in the body to use them, multiplies the potential benefits and will help even out dips and troughs in energy levels/cell nutrition quality.
    The spray works on the basis that spraying the B12 through the nasal membranes puts it into the bloodstream; non-sublingual, oral pills will not work as the gut needs an "intrinsic factor" to enable absorption, and damaged guts lack this. Even the sublingual nuggets, from what I hear, have a "co-enzyme" to help absorption; to be honest, the whole intrinsic factor is so complex I am confused by it, it is the sort of thing that makes my head spin. But the main things you need to know are that it is not enough to put straight B12 into a damaged gut because it can't be used as it is, and B12 can be stored in the liver for considerable periods of time for use when needed. (But I don't know how effective this mechanism is; if you need to use glycogen from the liver, there is a considerable time lag before it starts to break down, compared to alternative energy use pathways.)
    Rob, lots of dreams in technicolour are a rule of thumb sign for dietitians that you have enough B6; if you lack B6 you don't remember dreams, and tend to dream in black and white ! The "mind's eye" uses a lot of B6 for visualisation, it seems. yeah Isn't life weird... wink

    HabsHockeyFan
    Veteran Member


    Date Joined Jan 2006
    Total Posts : 3130
       Posted 3/3/2010 6:33 AM (GMT -7)   
    Wow Sno! I see you are a big proponent of B12 too hehehehe.

    I have been on B12 and discussed with two GPs and two GIs. My one GI thought a little was enough and I never noticed a difference when I received the tiny dose each month. Now that I do the full syringe each month, I notice a lot of difference. But I never correlated the dream thing. I am going to have to pay attention now...as I tend to dream a lot. My husband laughs because I wake him up from my vivid nightmares or odd dreams a lot. I'll ask him to track if I scare the living daylights out of him right after my shot!

    Sno..your commentary on B12 being a force multiplier seems right on to me. I was told that you need B12 to aid in oxygen being transported throughout your body. basically getting O2 to your muscles and such. I do notice that I have respiratory issues and more muscle aches without the B12. I also notice that the potassium has a better effect when I have the B12 recently.
    Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
    I'm riding on the escalator of life....


    Nanners
    Elite Member


    Date Joined Apr 2005
    Total Posts : 14995
       Posted 3/3/2010 7:16 AM (GMT -7)   
    I get my B12 shots every other week. And if I miss one, I can really feel it. I am much more fatigued and foggy without them. When I get them I tend to sleep better for a few days and feel much less tired. Good luck!
    Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
    Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
    *Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

    Angela N
    Regular Member


    Date Joined Jan 2006
    Total Posts : 82
       Posted 3/3/2010 8:14 AM (GMT -7)   
    I get B-12 shots every month but I can't tell a difference at all. I have always heard that they give you alot of energy but they don't me. I never have alot of energy after i get mine.....I feel just the same. Sry I wasn't much help....
    Diagnosed with Crohns 15 years ago...After my sugery 15 years ago I havn't had any flare ups until now...I am currently taking Pentasa and the Cimzia shot..I am 43 years old..


    vls
    Regular Member


    Date Joined May 2005
    Total Posts : 166
       Posted 3/3/2010 10:15 AM (GMT -7)   
    since I began supplementing the B's. (multi vitamin)..I can't sleep, I'm never tired. I go all day, sleep 3hrs, and go all day again. I want to be tired sometime!! I can't imagine what I'd be like with B12 injections if just a vitamin suppl does this to me. (I can't believe I'm complaining about too much energy when I couldn't get off the couch for the past several years)
    diagnosed 13 days following an MMR vaccination at the age of 44
    tried Colazal, Pentasa, Immuran, Remicade, Prednisone, Cipro, Flagyl, LDN, Osiris clinical study,  accupuncture, began Cimzia 5/2009


    vixen
    Veteran Member


    Date Joined Jan 2010
    Total Posts : 794
       Posted 3/3/2010 10:18 AM (GMT -7)   
     
    Although I do not have Crohns so cannot specifically comment in relation to that aspect I do take a B complex capsule everyday(it contains all the B's, brewers yeast and folic acid) and they are great at keeping you mentally stable (don't know if that is the right term really) what I mean is that it stops you from become irritated and helps you to stay calm so I can understand why you might feel in a relaxed state after them. Within a couple of days(if I have ran out) I soon know about it and quickly buy some more.

    Grandpato2
    Veteran Member


    Date Joined Dec 2009
    Total Posts : 681
       Posted 3/3/2010 4:02 PM (GMT -7)   
    scoolThank you all for your answers that was fun. snohare didn't know about b-6 good info ty.:-)


    Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

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