Another gift from my inflammatory diseases and aging...

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Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 3/2/2010 7:05 PM (GMT -7)   
Sunday I suddenly had extremely bright flashes on the outside of my left eye. These flashes occurred five or six times and then I didn't see anymore. Then about 1/2 hour later, I suddenly had thousands of dots in my entire field of vision in the left eye. about a third of the dots were black and then the rest were clear with dark rings around them. There were so many dots, I really could not see clearly out of my left eye.
 
Being the stubborn gal I am, I knew I needed to go to the ER but that is asking for hours and hours of waiting at my local large military medical center. Monday morning I woke up with maybe five fewer dots. I had an appointment at Social Security that I couldn't blow off. Driving with all those dots floating around made me so nauseous that I drove home afterward to close my eyes. Last night I knew this had to be dealt with so I called my PCP at home. After chastising me for waiting so long, he told me to get my rear to the ophthalmology clinic ASAP in the morning.
 
I had a vitreous hemorrhage and a posterior vitreous detachment. The ophthalmologist said that people with inflammatory diseases are more prone to these. He also said that there is an increase in this problem when one reaches 70. I have 10 years and 2 weeks to go before I reach that mark. Since my ankylosing spondylitis has been flaring recently, he feels that the inflammation also affected my eye.
 
The thousands of floaters should resolve somewhat and hopefully my brain will adjust to them being there. He said the black dots were red blood cells and the clear ones with the rings were vitreous fluid that had escaped during the tear. I have to be careful because I have a high risk for developing a retinal detachment in the next couple of weeks.
 
Besides the 1000 aggravating floaters, the worst of this was the exam today. After numbing my eye, he used an instrument to push my eyeball partially out to try to determine if the hole would bleed more. Yuck!!!!!!! Not a very good feeling.
 
So the moral to this long story.....if you get symptoms like mine - bright flashes of light followed by a massive amount of floaters - get thy self to the ER. I was lucky, but approximately 15-20% of people with symptoms like mine actually develop a retinal tear, a true medical emergency.
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 3/2/2010 7:17 PM (GMT -7)   
That's not the kind of gift any of us would want.

Does everything eventually heal entirely, or does it cause lasting effects?
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 3/2/2010 7:19 PM (GMT -7)   
Hopefully, the hole will heal and no intervention will be necessary. Whew.............
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 3/2/2010 7:56 PM (GMT -7)   
Wow Ides I always thought that bright flashes of light were retinal detachment, I am glad you at least have missed that so far.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/3/2010 12:52 AM (GMT -7)   
My eye doc warned me of just this complication from crohn's. the other was something like irisitis apparently very painful. medcrt1 did i get this right?


Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


kmfdm
Regular Member


Date Joined Jun 2008
Total Posts : 78
   Posted 3/3/2010 3:07 AM (GMT -7)   
Everything all of you have mentioned,from the Protista bacterium to all the eye symptoms freak me out!!! I want to know what you mean about the spots.. Our disease can make us go blind, take away our digestive tract, can give us arthritis, pyradermalgangranoylso..etc there has to be more than our doctors cannot tell us. It is a bacteria. It just makes sense.

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 3/3/2010 6:32 AM (GMT -7)   
What a kaleidoscope of troubles !!! (((((((Ides))))))) I have floaters but not that bad. Also glaucoma , but I'm dealing well with the meds for that. My wife had a bleeder in her eye and they did a little laser fix on that but she still has a blurry spot. All part of getting to be a senior the docs say, well, I think someone should be working on a ,,,full body transplant... Just put my feeble old brain in a brand new container before this one has another major malfunction I say ...Take care Ides and get more rest. Your in my prayers...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/3/2010 7:19 AM (GMT -7)   
(((IDES))) I am so sorry that you are having more health issues. I think you have had your fair share. Hope you get feeling better soon. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Sarah_B
Regular Member


Date Joined Feb 2009
Total Posts : 82
   Posted 3/3/2010 10:02 AM (GMT -7)   
You didn't need any treatment for the hemorrhage? Consider yourself lucky. When I had my vitreous hemorrhage, I needed cryotherapy, which was definitely not pleasant (it's essentially the same technique used to freeze moles off your skin... except they do it to your eyeball).
22 years old, Female.
Diagnosed with Crohn's Ileocolitis November 2008.
Currently taking Remicade, 50 mg 6-MP, 5 mg prednisone (slow taper).


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 3/3/2010 5:36 PM (GMT -7)   
YIKES! My bleed had sealed itself off by the time I got there otherwise I would haave likely had to undergo the treatment you did. That's why he was popping my eyeball partially out - to see if it was still bleeding.

Thanks all for the good wishes. My dotted vision is about 50% improved today.
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 3/3/2010 5:59 PM (GMT -7)   
eye see your back with some new vision of troubles we cd'ers can see. bright lights and floaters ,sound like the motors, of big boats you would see on the sea.

glad it was not too "see'rious

sno, sniper, help me out here..:0)
randynoguts 



     http://www.geocities.com/randynogutsweb/


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 3/4/2010 5:53 AM (GMT -7)   
Geeez Randy. only thing I can come up with is that old Dean Martin tune....
When the spots in your eyes have you seeing fireflies your a crohnie
When they flutter and flit and you feel just like s--- your a crohnie
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 3/4/2010 5:58 AM (GMT -7)   
Oh Ides...I hope things have continued to improve. I would tell you to be less stubborn and get care sooner, but we all know what a waste of time that is...especially since we all don't take that advice.

Please take care. did the opth tell you anything you can do to aid in recovery or prevention of reoccurrence?
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Djin
Regular Member


Date Joined Jan 2010
Total Posts : 265
   Posted 3/4/2010 6:15 AM (GMT -7)   
Hey Ides!

Sorry for your issues. And Congratz for your soon anniversary.

In my negative way, many times I think I won't make it to be a happy grandpa... my wife goes mad :).
 
-------------------------------------------
Diagnosed in nov/94 - Started with Prednisone, followed by Pentasa, entocort, flagyl, Imuran, Cipro, etc.
Blockage - First Surgery 2001 (no ressection)
Severe bleedind - 2003 - Stopped by 60mg of Prednisone
Stricture leading to a ressection in Dec/2008 - Second Surgery
Now on Remicade + 100 mg Imuran + Iron (sort of remission, not sure at all)
 


FamilyGuy
Forum Moderator


Date Joined Jan 2004
Total Posts : 3310
   Posted 3/4/2010 6:47 AM (GMT -7)   
Our pastor (non-CD) just had this happen to her. She is slowing improving as well.

My thoughts and prayers are with you,
Jon,  Co-moderator for Crohn's Disease, Depression, & Celiac Disease forums
 
"The man who insists upon seeing with perfect clearness before he decides, never decides. Accept life, and you must accept regret." -- Henri-Frédéric Amiel (1821-81), Swiss philosopher, poet 
 
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Sarah_B
Regular Member


Date Joined Feb 2009
Total Posts : 82
   Posted 3/25/2010 10:12 AM (GMT -7)   
Hey, Ides! Just wondering how you are doing... How's the vision lately? Any more improvements?
22 years old, Female.
Diagnosed with Crohn's Ileocolitis November 2008.
Currently taking Remicade, 50 mg 6-MP.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/25/2010 10:33 AM (GMT -7)   
Hey Sarah, Ides is out of town until the 30th. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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