Should i goto the ER yet again???????? pls help asap

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Terry73
Regular Member


Date Joined Oct 2009
Total Posts : 57
   Posted 3/4/2010 2:20 PM (GMT -7)   
Hello its me again,
 
So sorry to be always whining on here but im so sick and i just can't get this under control.  I have been having constant D that is bright yellow and burns badly since january (get D all the time for years but this is even worse than usual).  It doesn't matter what i eat or drink (or don't eat) it still happens daily.  I have unbelievable joint pain that is moving to diff joints (this just started since my 2nd remicade infusion last week) started in my jaw and rt hand moved to left hand then elbow now in left shoulder and woke up today and its in my hip and i can hardly walk.  The pain in my stomache in unbearable and narcotics are not touching it.  It will ease off some after a BM but still there and then stabbing when have to go again.  The D burns so bad im praying for it to stop like acid coming out.  It is mucousy and bloody on and off.  I also have a rectal prolapse (this happened a few weeks ago because i am going so much my rectum has come out and have to put it back in after each BM) My appt with the surgeon isn't until April 26th (live in canada and waitlists so this is the soonest they could find a surgeon to see me).  I have had fever off and on since my infusion.  I am so tired and just exhauted. There is something just different and really wrong with my insides.  I know my crohn's is out of control but something is off and i just feel so sick and im in so much pain.  I hate the hospital though hate having my hubby take me there and sit there for hours.  (he is a truck driver so he works really long hours).
 
Do you think i should goto the ER and get checked out or just wait and see when i can get into my family physician again (he'll just give me more pain meds and tell me i have to wait for april 26th) I dont see my GI again till april 1st.  I don't want to be a hypocondriate (sp???) but i just can't take this anymore.
Offically diagnosed with Crohn's Oct 2009, been living with bowel problems since 1990
Current meds: Remicade Feb 2010, Immuran, rel-pax, Topomax, Corticosteriod Suppositories, lantus, humalog, 2000u vit d, calcium, multivit, omega 3, Vit B


Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 3/4/2010 2:27 PM (GMT -7)   
If you are in constant pain and suffering so much, you shouldnt wait til April to go and see someone.I would go to the ER and see if they cant do anything.Maybe you are also having a reaction to the remicade??? You are not a hypercondriac, I know a lot of us think we are at times, when we dont know what to do but please get it sorted , its your health and doesnt sound like you are in a very fit state atm.
Hope you can get things under control quick, I have been there,done that and I know its no fun!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


dietcoke
Regular Member


Date Joined Jul 2008
Total Posts : 186
   Posted 3/4/2010 2:28 PM (GMT -7)   
Can you call your GI? See what he/she thinks? I know it sucks, but I would go to the ER. You know when things are not right!
40 years old female
Salmonella - 1996
Crohn's Colitis in entire colon - Diagnosed in 2000
Hypersensitive/Allergic to Asacol/Pentasa/Budonside/6MP/Immuran/Humira/Remicade, and more
Past meds that worked: Cipro, Prednisone

Daily: Folic Acid, Omega 3, Multi-Vitamin, Cipro 1000mg, yummy homemade yogurt


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 3/4/2010 2:29 PM (GMT -7)   
If you feel too bad and you need assistance, go in. If you don't want to impose too much on your hubby, have him drop you off and call him to pick u up later. Bring a book or an electronic game or something.

If you go decide to stay at home, drink a couple of cups of chamomile tea and switch to a natural mushy easy to digest diet. That may help settle your tummy a little. Also, for the D, have you tried Questran (cholestyramine)? It works better than imodium at bulking and slowing and doesn't cause so much spasming afterward.

I live in Canada too, call some other surgeons and find out their wait times for urgent patients. Someone will take you sooner unless you live in a remote area and have few surgeons to choose from. I never settle for a long wait time but I live in a populous area where there are plenty of hospitals and specialists and surgeons.

I hope you feel better soon.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/4/2010 2:36 PM (GMT -7)   
If you feel you need to go to the ER, that usually means you better go. I think it might be best for you to go, maybe they can do some tests that will help you get the treatment you need now. Hugs and do keep us posted.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 3/4/2010 2:41 PM (GMT -7)   
sounds like you might be losing bile and are getting quite dehydrated. Dehydration and potassium loss could be causing all your joint pain. Please get some medical attention. I hope I'm wrong but it sounds like your body is really suffering right now and needs fluid replacement and some attention to the inflammation.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; TPN, propranolol and xanax; anemia of chronic disease


Terry73
Regular Member


Date Joined Oct 2009
Total Posts : 57
   Posted 3/4/2010 2:48 PM (GMT -7)   
been on cholestramine before it didn't really do anything. I don't take imodium either cause then i don't go for a week till my system explodes and then i live in the bathroom for a couple days but thanks roni. I am in Hamilton, Ontario so not remote my family dr tried a bunch of surgeons and that is the earliest date. My Gi is trying to get a sooner appt but he told me he prob couldn't it is not considered an emergency unless its cancer. I never realized how much our health care system sucks until i got really sick......everything is a wait. IMy GI is at the hospital today not in the office so i think i may just go over. Been almost a year since last scope and CT ENT so i guess have to psych myself up for a lovely prep.

Thanks for the advice just needed someone to assure me im not going crazy i guess lol
Offically diagnosed with Crohn's Oct 2009, been living with bowel problems since 1990
Current meds: Remicade Feb 2010, Immuran, rel-pax, Topomax, Corticosteriod Suppositories, lantus, humalog, 2000u vit d, calcium, multivit, omega 3, Vit B


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/4/2010 3:25 PM (GMT -7)   
I agree that it sounds like you should go ... At the very least you are probably very dehydrated. Good luck!
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 3/4/2010 3:27 PM (GMT -7)   

That joint pain that is jumping from one spot to another could be remicade induced lupus.  I went through that to, extremely painful.  MTX and prednisone were what helped me.

Hang in there,

Julia

 


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/4/2010 7:12 PM (GMT -7)   
The joint pain as you describe it could also be crohn's arthritis but the remicade should help it not the other way around. Try calling the surgeons office and explaining exactly what you first posted. Perhaps they'll put you on a cancelation list or giver you a higher priority. I think a trip to emergency is probably a good thing, when I went through what you've posted only a resection could help nothing else worked at all, even water could put me into 2 days of bad pain. I can relate and wish you the best of luck and speedy treatment.


Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

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