Common Sense for a GI to inform you of simple things?

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DarrylP
Regular Member


Date Joined May 2006
Total Posts : 214
   Posted 3/5/2010 6:20 AM (GMT -7)   
So i was slightly ticked off last week, finally changed GI's because my old GI was a little too full of himself and was very old fashioned and unwilling to try anything "new" to the CD world. So i go to my new GI, who is 30, so only 5 years older than me, which oddly enough actually made me more comfortable in a talking sense, and as some of his preliminary questions he asks me if i have been taking Advil or any Ibuprofen. My reply "Well not all the time, but when i work to hard at the gym i take it for muscle pain or pulls", his reply, dont take that anymore, anti-inflammatories are horrible for CD, stick to just Tylenol. Then i thought back to a couple days before i exited a 2 1/2 year remission, i had been installing a new toilet at my grandparents and twisted the wrong way when putting the bowl down and ended up pulling something in my back. So i went to the drug store, because it was pretty painful and took a look in the area with all the back meds. I had heard so many stories about aleve (sp ?) and how it pretty much made back pain disappear instantly, so i pick some up and take it for the next two days......and of course what is aleve, a very strong anti-inflammatory.....been with my old GI for 3 years, not once did he ever inform me not to take anti-inflammatories, now my new flare might have been a direct result of taking the back meds, which really pisses me off.
 
Shouldnt simple things like this be mentioned upon diagnosis if they are that common sense to doctors? Like i can understand him not mentioning "Dont do heroin on sunny days in the winter" because thats something i probably wont be doing anytime in my life, BUT taking an advil, only like 95% of the human population has taken advil once in their life, but no point in mentioning that tid bit.
 
Done my rant, feeling better, back to work, LOL
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/5/2010 7:40 AM (GMT -7)   
Oh yeah I understand what you are saying. I am much older than you, but back in the late 80's and early nineties I was taking PREscriptION 800 mg Motrin multiple times a day because I had a herniated disc in my neck that liked to go out 1-2 times a year. None of my doctors ever told me "oh, since you have Crohns, you should not be taking NSAIDS". I think that is one thing that led up to my largest flare and need for emergency resection, that and not taking my maintainence meds like I should have.

I warn folks all the time now to stay away from NSAIDS. The prescription strength Motrin also did a number on my teeth as well.

Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

onedaymore
Regular Member


Date Joined Apr 2009
Total Posts : 111
   Posted 3/5/2010 7:46 AM (GMT -7)   
You would think that doctors should be knowledgeable about those sorts of things and bring them up . . . but I'm honestly not surprised that you found one that doesn't. It seems there are a lot of rotten GIs out there.

I had an ER doctor give me Toradol once, and I asked several times if it was an NSAID or if it's all right to use with Crohn's disease, and he swore up and down that it was perfectly fine. Got home, read up on it, and in big, bold letters, there was something to the effect of DO NOT USE IF YOU HAVE ULCERS OR INFLAMMATORY BOWEL DISEASE. MAY CAUSE BLEEDING. Doh.

But it sounds like your new GI knows what he's doing, so good for you for getting a new doctor!

I hope your back heals up well.
Diagnosed with Crohn's in 2008 at the age of 22.
Currently on: Remicade, Imuran, Pentasa, Zofran, Tramadol, Welchol, Phenergan, Ambien, Metoclopramide, Omeprazole, Hyoscyamine


Former58D
Regular Member


Date Joined May 2009
Total Posts : 173
   Posted 3/5/2010 7:52 AM (GMT -7)   
I had toradol after shoulder surgery. Knocked my CD into a short term remission. It was totally gone. The only time since my diagnosis that I felt 100% normal.
"What can't be changed must be endured" - unknown

DX with distal Crohn's colitis Oct 2007, predominantly in rectum
Colozal and Canasa for 2+ years - developed an intolerance
6MP - elevated LFTs after 100mg, no effect after 9 months
Currently: Remicade (Nov '09), and Paleo Diet. Not quite remission, but so much better!


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/5/2010 9:09 AM (GMT -7)   
58D,
I am with you on the toradol. The only time I have been pain free since before my DX. But it does make me bleed more.
Navy
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 3/5/2010 9:23 AM (GMT -7)   
I switched GI's a few years ago, and she was the first to tell me to avoid NSAIDs. My old GI never said anything about it. Luckily I did my own research and found that they're not good for people with IBDs. My new GI did tell me that she understood that there are times when Tylenol doesn't work enough (like for PMS cramps) and that used sparingly I should be ok. I don't take anything but Tylenol, and my PCP prescribes me darvocet for times when Tylenol doesn't cut it. Luckily I have a good PCP who understands that I'm not drug seeking, just looking for something for pain relief that's safe for me.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin


lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1719
   Posted 3/5/2010 9:37 AM (GMT -7)   
In a perfect world they would tell us. Get this, when I was being released from the hospital for my resection in Jan. the resident doing my discharge told me if the Vicodin didn't completely work --- I should take Advil. I quickly informed this moron that I have Crohn's (read the chart) and couldn't take NSAIDs. At which he back pedaled and told me to call my doctor if I need something stronger.

Unfortunately, we are on our own for alot of the information we need --- that's why places like this are a God send.
 


DarrylP
Regular Member


Date Joined May 2006
Total Posts : 214
   Posted 3/5/2010 10:39 AM (GMT -7)   
onedaymore said...
You would think that doctors should be knowledgeable about those sorts of things and bring them up . . . but I'm honestly not surprised that you found one that doesn't. It seems there are a lot of rotten GIs out there.

I had an ER doctor give me Toradol once, and I asked several times if it was an NSAID or if it's all right to use with Crohn's disease, and he swore up and down that it was perfectly fine. Got home, read up on it, and in big, bold letters, there was something to the effect of DO NOT USE IF YOU HAVE ULCERS OR INFLAMMATORY BOWEL DISEASE. MAY CAUSE BLEEDING. Doh.

But it sounds like your new GI knows what he's doing, so good for you for getting a new doctor!

I hope your back heals up well.

I wish i switched to my new GI years ago (which wouldnt have been possible since he would have still been in med school i guess and not had his own practice, this is only his second year having his practice) not only is he more in tune with current CD research and treatments, willing to run relavant tests like DEXA's for resulting conditions from having CD, and do more blood tests BUT he also respects the fact that i have spent a lot of time reading and learning from actual medical papers, so i actually understand what biologically is occuring and know all the medical terms. When i talk to him he actually talks to me in medical terms because he knows i understand it, unlike my old GI who talks to me like i am a moron "Crohn's Disease makes your insides go hurty"....ya thanks idiot for talking to me like i am 2 years old...ok he actually never said that exact phrase to me, but it feels like it in comparison to my new GI LOL 
 


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 3/5/2010 1:39 PM (GMT -7)   
I've had two deaths in my family due to perforated ulcers from long-term NSAID use according to post-mortems. Not something to mess around with! I'll admit I occasionally take the odd dose of ibuprofen if my arthritis is really giving me hell but will take as a last resort on a full stomach and a prayer, but in that situation its because I'm in so much pain the risk seems worth it. But even 'normal' people should took care with it, not just us with already diagnosed ulcerative conditions.
 
 


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 3/5/2010 2:20 PM (GMT -7)   
I list NSAIDs as an allergy on all medical forms. Apparently, it's the only way for docs to get it. Since I started doing that they have never been suggested to me.
Mom to a healthy Pentasa baby and pregnant with #2. 5+ years remission, woo hoo!


Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 165
   Posted 3/5/2010 2:29 PM (GMT -7)   
My GI Dr gives me Toradol for pain????? Should I not take it???
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


WriterMum
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 3/5/2010 4:36 PM (GMT -7)   
I have now stopped my children taking Advil also, since it might be a problem for them later. If there is any genetic aspect to Crohn's, and the Advil ends up being a trigger, I would feel awful. Although Tylenol doesn't work as well for tension headaches and joint inflammation, they are coming up with better products that work a bit better.
45 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March last year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Salofalk 2000 mg, Nexium, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.


AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 3/5/2010 6:07 PM (GMT -7)   
@Not2Spunky,

Sounds like you have one of those GIs that you would be better off without. I can't believe he is prescribing an NSAID to you. skull
AzJohnny


I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/5/2010 6:51 PM (GMT -7)   
The weekend before I hemorrhaged I took Aleve for 3 days... My GI said it could quite possibly be related. I don't touch it now.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 3/5/2010 9:24 PM (GMT -7)   
It was my FAMILY DOCTOR who nearly flipped out when I said I was taking aspirin!!! She said with Crohn's disease you do NOT take anything but Tylenol or call me if you need something stronger.
 
I had an ER doctor give me Toradol into an IV w/o telling me what he was giving me - and he was aware I had Crohn's. When I was later told it was an NSAID "I" nearly flipped out and questioned him WHY he would order Toradol when he KNEW I had Crohn's. He said they've found it to be more effective than morphine w/o morphine's undesirable side effects and that given by injection it shouldn't cause a problem. "Shouldn't"?? says I, "shouldn't"??? If YOU had Crohn's maybe you'd be considerably more cautious.
 
To add insult to injury the Toradol did work wonders for the pain - but the idiot nurse gave it in an IV set in the dummy vein in the hand and injected it at the first "port" just above the set in the hand INSTEAD of up near the IV fluid bag where it would have been sufficiently diluted. I ended up w/ thrombophlebitis in 4 areas of my arm AND a blood clot in the axilllary vein and ended up on 6 months of coumadin. To say nothing of the fact that Toradol STINGS when administered if not sufficiently diluted.
 
So Darvocet is relatively safe for crohnies to take?
 
I recently had a doctor filling in for my doctor script Zipsor for me. Check THAT one out!
My computer says I need to upgrade my brain to be compatible with its new software.


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 3/5/2010 9:59 PM (GMT -7)   
As far as I know darvocet is safe. It's a mild narcotic, and usually it's prescribed like lortab with 500 mg of acetomenaphen in it. I've taken it the past 6 months for the pain from my clots and the first couple days of my period (I get a lot of pain with my periods since I'm on coumadin) and haven't noticed any additional problems.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/6/2010 7:44 AM (GMT -7)   
I have to admit I know the risks of toridol, but man it works on the structural (bone) pain.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/6/2010 8:02 AM (GMT -7)   
Hey C2 do you know that Zipsor is a low dose NSAID too? I looked it up as I was curious about it, but it says its a low dose NSAID. Maybe thats not a good idea either. Hmmm....
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/6/2010 11:32 AM (GMT -7)   
I would say this though sometimes people are slow on the uptake. Like drinking on MTX, just do not do it. MTX itself causes liver problems, do you really want to risk it?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

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