Coping with IBD

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medieval_peasant
Regular Member


Date Joined Mar 2009
Total Posts : 52
   Posted 3/5/2010 8:21 PM (GMT -7)   
Hi,
 
Does anyone have any suggestions on how to come to terms with the fact that I have this disease (Crohn's disease).  It overwhelms me sometimes to think of what I may have to go through.  I am only 25 and it has really set me back in school and I can't maintain a job and I have no insurance so I have to seek help through financial assistance programs.  Whats more is I now have to go on Humira and it scares me to death.  I think what I suffer from is fear of things that could happen.  Any advice from you veterans on how to come to accept this disease as part of you and not be always walking around afraid Lymphoma, Sepsis, surgery, kidney failure, liver failure, etc is waiting behind the corner for you?   

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/6/2010 8:27 AM (GMT -7)   
I think if you could get in and talk with a therapist who deals with Crohnic Health Issues might be a good idea. I developed anxiety/panic due to my Crohns a few years back after having Crohns for over 30 years and it was thru the help of a good therapist that helped me get past it. I now use Xanax on occasion too to help me in those bad times. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Djin
Regular Member


Date Joined Jan 2010
Total Posts : 265
   Posted 3/6/2010 3:39 PM (GMT -7)   
Coping is an art. After 16 years I think I'm still learning. Supportive family, good and calm doc, a job to keep your mind busy, friends, spiritual life, and, if everything alse is not enough, a therapist - I didn't do that so far, but I won't discard the idea.

I think this forum helps a lot too! :P
 
-------------------------------------------
Diagnosed in nov/94 - Started with Prednisone, followed by Pentasa, entocort, flagyl, Imuran, Cipro, etc.
Blockage - First Surgery 2001 (no ressection)
Severe bleedind - 2003 - Stopped by 60mg of Prednisone
Stricture leading to a ressection in Dec/2008 - Second Surgery
Now on Remicade + 100 mg Imuran + Iron (sort of remission, not sure at all)
 


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/6/2010 3:55 PM (GMT -7)   
I think its really important to remember, especially if you are on forums like this, that anything with Crohn's is a possibility, BUT, most things are not a probability. We tend to have the most difficult cases here. The ones who have trouble finding the right medications, or who have the extra-intestinal problems. The people who are the worst of the worst and are thus looking for support. Or there are those of us who have had the disease for many years and try to help the newbies adjust with a few words of advice because we have been there, done that. Most people who have Crohn's are out in the world living their lives. They might have some trouble when they are first diagnosed finding the right diet and medication, but once they get their first flare settled, things even out and life goes on without much thought about Crohn's except for taking some maintenance medication daily.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 3/6/2010 5:36 PM (GMT -7)   
I totally agree with Zanne. When I was in remission, I wasn't on the internet...in fact I was ignoring my disease...thinking that the docs were mistaken...Only came to the forums when it got really bad (can't work bad)...just wish I would have taken the maintenance meds...as to fear of things that can happen..hmmm...I've heard of ice falling off an airplane while a person was asleep...so I guess I'm saying...tomorrow isn't guaranteed for anybody...(okay that in itself was a bit depressing...sorry rolleyes )
"The earth laughs in flowers"

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