I think i am going to ask about going back on TPN. Wish me luck

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debilitated
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Date Joined Jan 2010
Total Posts : 448
   Posted 3/7/2010 7:03 PM (GMT -7)   
Last time I was on TPN, I never had any Septic worries and it put a good 15 pounds on me. And gave me time to rest.

IF I end up needing surgery, They are going to put me on TPN regardless.

Should i go back on TPN?
105 pounds 5 11? I think I need it.

Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 3/7/2010 8:38 PM (GMT -7)   
Could you use TEN (total enteral nutrition) instead? It has the same effects, but is lower risk.

smallgit
Regular Member


Date Joined Feb 2010
Total Posts : 29
   Posted 3/7/2010 8:49 PM (GMT -7)   
I am presently on TPN and will tell you that TPN actually doesn't make you gain weight...it just helps you maintain your vitamin/mineral input. whatever you eat IN ADDITION to your TPN is what causes your weight gain. but you don't weigh much at ALL, debilitated :o( I think you should definitely be on TPN for the sake of your REQUIRED intake...I've never been on TEN but Writer is right, it is lower risk...with TPN, there's always the fear of a line infection. I had two PICC lines in and one was eventually taken out because the doctors were scared of an infection...but I had it pretty bad at that time... all the best, friend...
A survivor of CAPS - Catastrophic Antiphospholipid Syndrome with infarcts in one kidney, spleen, liver, and intestines in July '09

Surgeries: cholecystectomy, partial enterectomy x 2 with surgical complication of EC fistula
Meds: Lovenox daily subQ injections, Metoprolol for hi BP
Previous Meds: Ritoxan, Methotrexate, Plasmapheresis, innumerable blood transfusions, and antibiotics galore.


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 3/7/2010 10:23 PM (GMT -7)   
Yep, one of the other. TPN/TEN. I've never heard of the other until now. At 5'4" I was down to 90 lbs when put on TPN several years ago. I never regretted it!!!
My computer says I need to upgrade my brain to be compatible with its new software.


debilitated
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Date Joined Jan 2010
Total Posts : 448
   Posted 3/8/2010 6:57 AM (GMT -7)   
TPN Doesn't Help you gain weight?
I put 15 pounds on last year when i was on TPN and BARELY orally ate.

Rider Fan
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Date Joined May 2008
Total Posts : 1445
   Posted 3/8/2010 8:57 AM (GMT -7)   
Isn't TPN hard on your liver?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/8/2010 9:35 AM (GMT -7)   
Yes In 3 months time i had liver enzymes around 120 but they end up going back down. It's pretty common. But the liver can heal itself.

vixen
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Date Joined Jan 2010
Total Posts : 794
   Posted 3/8/2010 10:18 AM (GMT -7)   
I don't think that it can make make you feel any worse. Son had the TEN for 7 weeks and gained less than 3lb, but at least he was getting all of his nutritional requirements. We have seen the biggest increase in weight since he went onto the high calorie shakes(14lb in 3 weeks) but from what I understand they are not suitable for total nutritonal requirements-maybe a mix of the two might help?!

randynoguts
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Date Joined Jan 2003
Total Posts : 6049
   Posted 3/9/2010 3:50 AM (GMT -7)   
ok im gonna go out on alimb here and say that im the TPN expert ;0)...
smallgit, unfortunately your mistaken. TPN can make you gain weight if the correct formula is being used for your needs. as in if you and your dr WANT you to gain weight your TPN formula is adjusted to make that happen.

is TPN hard on your liver? depends on the formula. if your specific formula. (each person should have there own) depending on what you taking it for can harm your liver. BUT if your not on it long term most of thes damages will repair itself. the liver is amazing.

for instance in my formula there is barely any extra calories than the minimum they can do with the added sugars. we went to this formula last fall. since the change i have lost 15lbs. but also due to a loss of appetite. i simply cannot eat enough food or drink enough calories (soda my weakness) to keep a steady weight. so they may change it back. and im talking this was a small decrease maybe 300 cals per day.

TPN can be a wondefull thing you can pretty much just live on it alone. ( i know people who have been on TPN alone for many years.) i mean not even swallowing their own spit.

you can add lipids, or "fats" for the necessary fats to live thats the hardest on the liver, with me we have found that by my eating meats and fats all day long i can avoid it being added to my TPN. the best way to tell when your in the hospital, when your having TPN after surgery is if its yellow, its just vitamins and sugar, trace elemnets, etc. if its tan or there is a seperate bag or glass bottle thats white, thats the fats.

just and fyi, did you know the body cannot live without fats? eventually the body will die of cellular decay. the body needs fats and cholesterol to make cells .
randynoguts 



     http://www.geocities.com/randynogutsweb/


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/9/2010 7:35 AM (GMT -7)   
She decided not to TPN me. She just upped my fentanyl :(.
Ow well

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 3/9/2010 8:19 AM (GMT -7)   
Thanks for the info randy.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


smallgit
Regular Member


Date Joined Feb 2010
Total Posts : 29
   Posted 3/24/2010 8:42 PM (GMT -7)   
ohhh, randynoguts, you're totally right. sorry!! i didn't mean to misinform everyone :o/

it is true, indeed, that tpn can up your weight but that's not TYPICAL, i guess, is what i meant...it's only if the docs WANT you to gain weight...and that too is only if youre in dire need of it...cuz i was at 90 lbs and i'm 5'8" but they didn't up the caloric intake in the tpn....i did, however, end up gaining 30 lbs since last year :o) but im on a regular diet now and finally off the tpn...i was on tpn PLUS taking a regular diet, so i was getting a full nutritional supply thru tpn plus more. yay.
also, it's quite fascinating seeing the different formulations of tpn, hey? with me, actually, the tpn with vitamins and minerals were translucent white and the separate bag of lipids was yellow and transparent. because of all the goodies in tpn, i had to take insulin shots regularly....too much sugar!
anyway, thanks again, sir, and my apologies for the poor info...
A survivor of CAPS - Catastrophic Antiphospholipid Syndrome with infarcts in one kidney, spleen, liver, and intestines in July '09

Surgeries: cholecystectomy, partial enterectomy x 2 with surgical complication of EC fistula
Meds: Lovenox daily subQ injections, Metoprolol for hi BP
Previous Meds: Ritoxan, Methotrexate, Plasmapheresis, innumerable blood transfusions, and antibiotics galore.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 3/25/2010 1:59 AM (GMT -7)   
:0)... no worries, i just try to clarify if i think something is off.
randynoguts 



     http://www.geocities.com/randynogutsweb/


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/25/2010 6:17 AM (GMT -7)   
Thanks for the great info n clarification Randy
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