Imuran or cdiff

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sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 3/8/2010 8:17 AM (GMT -7)   
Hi guys,
 
I've told you guys how I've been sick with a sinus infection, cold like symptoms.  Well now I've developed serious D-  with tons of mucus.  My bowels have been fine since starting remicade months ago.  So now I'm concerned.  Could  this be imuran side effect or do I possibly have Cdiff again (feels like Cdiff).  I'll have to call the dr again but I'm starting to sound like one of those annoying patients that calls everytime something is wrong.  Any advice?  Has this happened to anyone else on imuran?  I've been on it for 3 weeks now.  Teally not liking this stuff....Thanks!
Current meds:  Remicade and Imuran 50mgs
Tried:  Prednisone, sulfasalzine, lialda, antibiotics
28 yr old female w/ crohn's colitis
NOLA, GO SAINTS!
 


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 3/8/2010 8:50 AM (GMT -7)   
My husband's GI always says that any change in bowel habits (especially when you go from normal to D) should be called in - I don't think you're doing anything wrong by calling your GI and telling him you're having the big D, and having problems. Our GI encourages it - says the faster we can arrive at a diagnosis and treatment that the better off the patient is in terms of long term prognosis. So, do call your doc - that's what (s)he's there for!

Our GI has no problem ordering stool tests to rule out c-diff. If you suspect C-diff best thing to do is to get the stool tested. One of the things that the infectious disease doctor told my husband is that because he is immuno-suppressed with Remicade that he is more likely to have a recurrence of c-diff than a normal patient. So, it could be that suppressing your immune system further with Imuran has lead to a relapse of c-diff. What I normally do is call the doc, and just get the stool test ordered. Once the results come in, the nurse usually tells us what to do - ie. if c-diff is positive, they get us started on vanc; if negative, we have to come in for more tests.

My husband tends to spiral downhill really fast - so if he is starting to do that, I've taken to taking him to the ER to shortcut the length of time it takes to rule out c-diff, and also to get his re-hydrated (he gets dehydrated in hours!). They can get stool and blood tests done within hours instead of waiting miserable days - sure we have our co-pay . . . but I'd rather he have a few hours of misery than days of agony while he gets worse while waiting for results. So, depending on how you feel, you may consider the ER as well.

I don't know much about imuran, so I can't tell you if it is the imuran. I do think however, that the best thing you can do is to rule out c-diff, so that it is not clouding the issue. Also, there's a bad stomach flu going around, so maybe it's that? My husband got the stomach flu, and it laid him flat for a few days. But do call your doc before you get sicker.

Hope you get your answers and things trend back to normal soon.

(((Hugs)))
PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/8/2010 8:57 AM (GMT -7)   
A side effect like D, I think, would have shown up sooner than 3 weeks, unless you just changed doses. It could have been something you ate, but if its been going on for a few days, or as you say, it feels like C-diff, then it most likely is. You know the saying, Quacks like a Duck, most likely it's a Duck!

Your doctor can probably call the test in without even having to see you, so it really shouldn't be that much of a bother. Never hesitate to call with a big change in symptoms, as posted, its always better to catch things when they first begin.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 3/8/2010 9:13 AM (GMT -7)   
Just called the dr. the nurse says he is out on vacation for the week. AHHHHH! NO! This man must have like 8 weeks of vacation. Everytime I have a problem guess who's not there. This is getting old. I'm stuck at home; can't go to work. May have to go to the ER. I think it's either cdiff or stomach bug. I know there's a bug going around. And with my compromised immune system, I've gotten everything thats going around. The nurse is calling the oncall dr but that could take hours.

Zanne- haven't changed doses. So you're probably right- its something else. Just hoping that maybe it was the imuran. That would be a quick fix.

PV- I need a dr. like ur husband's. My dr could really care less when I call to complain about a new symptom. He has terrible bed side manner. But we usually agree on courses of treatment--unlike my previous dr.-- so it works out.

I think the imuran along with the remicade is just too much for me. Remicade worked sooo well and I didn't get sick once. I may quit the imuran and try it again later. Dr. did say blood work looked great.

Its just that I was doing sooo well! about to get a promotion at work for all my hard work and now I call in AGAIN! I'm just sick of it all!
Current meds:  Remicade and Imuran 50mgs
Tried:  Prednisone, sulfasalzine, lialda, antibiotics
28 yr old female w/ crohn's colitis
NOLA, GO SAINTS!
 


sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 3/8/2010 12:33 PM (GMT -7)   
okay I've called my internist who is not available and the GI who is on vacation. Has anyone had success at these one stop doc. shops? I think they are after care clinics. I call them doc in a box. I'm getting desparate, I don't really have the money for the ER.
Current meds:  Remicade and Imuran 50mgs
Tried:  Prednisone, sulfasalzine, lialda, antibiotics
28 yr old female w/ crohn's colitis
NOLA, GO SAINTS!
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/8/2010 12:46 PM (GMT -7)   
If you are going in to see the doc on call for your sinus infection I think all should be okay.  Just be sure you bring a list of all meds and supplements you are taking so they are aware and can avoid prescribing something that might not agree with your other meds.  Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 3/14/2010 5:28 PM (GMT -7)   
Just wanted to give an update. Oncall GI dr said to quit taking the imuran. He said that it is possibly side effects from the imuran. I quit taking it 3 days ago. And my stomach does feel better. No more urgent mucus trips to the bathroom. I also saw the internist who said I had a very bad sinus infection. i've been on antibiotics (doxycilcine?) for 6 days now and I still don't feel better as far as my sinuses go. Woohoo happy birthday to me! I'm just tired of being sick and tired. I see my GI on tuesday. Not sure what he's going to say. Need my remicade badly. They recently cut the dosage to half when starting the imuran. Screw that darn imuran. I basically have no immune system. I've gotten everything everybody I come into contact with has...not fun. Just hoping the immune system comes back quick.
Current meds:  Remicade and Imuran 50mgs
Tried:  Prednisone, sulfasalzine, lialda, antibiotics
28 yr old female w/ crohn's colitis
NOLA, GO SAINTS!
 

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