How do you know if Remicade stops working?!?

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mv4au
Regular Member


Date Joined Jan 2010
Total Posts : 37
   Posted 3/9/2010 6:58 AM (GMT -7)   
I started Remicade in December. I have had my first 3 treatments. I am scheduled to have them every 6 weeks now. I am on week 5. I am getting my treatment next Wednesday. Last night I had two horrible BMs! This morning I had another one. Now I am wondering if it is something I ate or if it is wearing off. I haven't had a BM this bad since before I started the Remicade and it has scared me. Anyone have any experience like this?? I guess I will see how the rest of the day goes and hope for the best :-)
31 year old female
diagnosed with Crohn's disease July 2006
12/09 discovered I had 2 fistulas and an abscess

Recently started Remicade 12/09 in hopes to avoid surgery


M&Mmommy
New Member


Date Joined Mar 2010
Total Posts : 6
   Posted 3/9/2010 7:05 AM (GMT -7)   
I've been on Remicade since October, and I've found that it's been a process of trial and error to see what schedule/dosage works best for me. My doctor did a blood test (I think it was Prometheus, or something like that) right before my last treatment and she said that there was virtually no evidence of the Remicade in my system. That, combined with the results of my latest colonoscopy, made her decide to double my dosage for my next infusion, which is tomorrow morning. She's also still considering putting me on a four-week schedule versus the eight-week schedule I'm currently on.
I'm like you - I tend to feel better right away and have fewer bouts of D right after my infusions, but after a few weeks, my symptoms go back to "normal." My advice is to talk to your doc about what you're experiencing, maybe get some blood tests to measure your levels at various times in your treatment cycle, and work with your doc to adjust your treatment to optimally help your disease.
Good luck!!
Michele
Thankful every day for my cats, Marley and Mickey - the best bathroom entertainment in the world!
Diagnosed with Crohn's at age 19, October 1999.
Small bowel resection, April 2000.
Current meds: Remicade (10 mg/kg every 8 weeks), 6MP (just started phasing in; currently at 25 mg/day), Entocort (phasing out; 3 mg/day), Lexapro, TriNessa, Digestive Advantage Crohn's & Colitis daily supplement, multivitamin, B-12 supplement, daily anti-diarrheal pill


mv4au
Regular Member


Date Joined Jan 2010
Total Posts : 37
   Posted 3/9/2010 9:41 AM (GMT -7)   
Thank you so much for sharing your experience with me!  I will definitely talk to my doctor about what I have been experiencing!  Good luck to you as well :)

31 year old female
diagnosed with Crohn's disease July 2006
12/09 discovered I had 2 fistulas and an abscess

Recently started Remicade 12/09 in hopes to avoid surgery

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