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Colly_irl
New Member


Date Joined Mar 2010
Total Posts : 11
   Posted 3/9/2010 10:03 AM (GMT -7)   
Hi Guys, sorry, should have introduced myself first.
My name is Colin, I'm 28 from Dublin, Ireland.
Diagnosed with Crohn's Disease in 2003. Had a very tough time in the beginning.
Have been on many different medications, ended up on Humira.
Humira is working out very well for me, but have a few issue like fatigue, see my other post :-)
I'm lucky to be on Humira in Ireland. We aren't very advnaced when it comes to new treatments.
It's also quite expensive, but is partially covered by a Gov drugs scheme.
Hoping to share experiences with people here and hopefully learn more about this ever changing disease!

Colin

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/9/2010 10:39 AM (GMT -7)   
Hello and Welcome, I'm sure you will find lots of people here who can relate to your situation. I haven't been on Humira so I can't help you there.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/10/2010 12:20 AM (GMT -7)   
Colin welcome to healingwell! Look forward to interacting with you in the future. I understand trying to deal with fatigue, it's an ongoing battle for some of us. Good luck!
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/10/2010 12:39 AM (GMT -7)   
Welcome, Colin!

Are you managing to afford the Humira, or is it taking a huge slice out of your monthly income?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Colly_irl
New Member


Date Joined Mar 2010
Total Posts : 11
   Posted 3/10/2010 7:12 AM (GMT -7)   
Hi Ivy, I pay €120 per month for 2 pens. That's about 160 US dollars. It's not too bad I suppose.
I pay the first 120 and the Gov pays the rest. My pharmacist told me that one box of two humira pens costs 1500 euro without the drugs payment scheme.
Drugs are SO expensive in Ireland.. We are ripped off for everything here. Although, the cost of living has come down since the recent economic meltdown.
I have applied to the Gov for a medical card, which will cover all drugs and all doctors fees. I am not sure that I will qualify though, as I am well above the income threshold. However, they do sometimes make exceptions for people on modest incomes with life long illnesses.
What's it like is Australia?

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/10/2010 7:29 AM (GMT -7)   
Welcome Colly_irl. We look forward to hearing more from you! Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 3/10/2010 7:29 AM (GMT -7)   
Hi and welcome to the site ...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Flipside
New Member


Date Joined Mar 2010
Total Posts : 17
   Posted 3/11/2010 4:57 AM (GMT -7)   
Hi Colin, Welcome.. although I feel somewhat silly saying that since I only found this forum a few days ago. It seems there's some really cool people here so its a good support network. I have been welcomed very warmly and have already got some interesting info.

Lovely place Ireland! I'm in Australia, but have visited Ireland on two occasions and can't wait to go back.

Good luck!
- 36yo male. DX in 1990 at 16yo. First re-section in 1990, lost most of small bowel - Anastimosis leaked after surgery, resulting in 2nd surgery which ended with illeostomy for 3 months.
- Managed well on Mesasal for 20 years. Only CD symptoms are abdo pain from bad eating and flare-ups once every couple/few months.
- Second hospitalisation Feb 2010, due to bowel performation. Had another re-section, and abdo lavage. Some minor complications including leaking which required (now) two drains, antibiotics and extended hospitalisation.


Peaceandhappiness
Regular Member


Date Joined Mar 2010
Total Posts : 131
   Posted 3/11/2010 12:14 PM (GMT -7)   
Hi I'm new, too!

So far it's just rest and prilosec for my Gerd stuff, and bland diet. I'm not sure where else to go from here, except hope that my stomach stops hurting or doing what it's doing eventually.
-Mom of a preschool boy and teenage girl and wife to a wonderful man.
 
Hypothyroid, newly dx'd Crohn's, Gerd. I love to look for natural ways to heal first, conventional ways second and keep my faith.

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