Dr.William Tremaine, Mayo Clinic??

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WantRelief
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Date Joined Feb 2006
Total Posts : 261
   Posted 3/9/2010 10:35 AM (GMT -7)   
Just wondering if any of you have seen Dr.Willaim Tremaine at the Mayo Clinic?  He is an IBD specialist and my GI has recommended that i see him to offer additional treatment options.  I would love to hear anyones experiences. Thank you!!

Rider Fan
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Date Joined May 2008
Total Posts : 1445
   Posted 3/9/2010 11:22 AM (GMT -7)   
Yes I've seen him twice. He's a fantastic doctor.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 3/9/2010 12:05 PM (GMT -7)   
Which mayo clinic? I'm about to go to the one in FL for a second opinion.
28 Year old Female
Diagnosed with Crohn's Colitis March 2000
Recent possible diagnosis of IBS-D
 
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas.
 
Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently on: 30mg Prednisone (Tapering SLOWLY from 40), Psyllium Seed Powder, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Vesicare (for urinary retention). 


WantRelief
Regular Member


Date Joined Feb 2006
Total Posts : 261
   Posted 3/9/2010 12:39 PM (GMT -7)   
The clinic in Minnesota.  I just spoke with them and they gave me an appointment date and said to plan on being there for 3-5days.  I was not prepared to hear that at all.  I was planning a consultation, like sit down look at my records and let's talk about what you think. I was in no way thinking about having anything invasive done.  What has your experience been with a consultation at Mayo?

jtaylor
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 3/9/2010 12:48 PM (GMT -7)   
I just got done with a trip to the mayo and Dr. Tremaine was my doc there. The way it happened for me was I got there on a Monday and met with a doctor in training that went over my records and then with Dr. Tremaine after that and he basically gave me a run down of what he wanted to look at. Immediately after my meeting with those doctors I went to scheduling and they set me up for a blood test about 30 minutes later and then a sigmoidoscopy and ileoscopy (I have an ileostomy) later that same day. They give you plenty of narcotics for the procedures so its very comfortable and goes by very quickly. The next day I had a follow up with Dr. Tremaine during which he went over his findings and set me up with a new prescription.

WantRelief
Regular Member


Date Joined Feb 2006
Total Posts : 261
   Posted 3/9/2010 1:19 PM (GMT -7)   
JTaylor: were you even prepped for having a procedure done?  The secretary told me to come in fasting so I just assumed that would be for blood work.  Do you feel that he was helpful and it was worth your time?

MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 3/9/2010 1:28 PM (GMT -7)   
Isn't the one in Minnesoda the best one for IBD?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Rider Fan
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Date Joined May 2008
Total Posts : 1445
   Posted 3/9/2010 1:49 PM (GMT -7)   
I think Rochester was rated as the best hospital in the US for IBD.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


WantRelief
Regular Member


Date Joined Feb 2006
Total Posts : 261
   Posted 3/9/2010 5:04 PM (GMT -7)   
Rider: what kind of experience did you have at Mayo if you don't mind sharing?
33 year old female
CD of Terminal Illeum and Rectum Diagnosed 12/04
Unable/Unwilling to use immunosuppressents due to Melanoma history in 2000.
Illeocolonic Resection 1/08  (18 inches of terminal illeum, illeocecal valve, right colon and appendix)
Current Meds: Pentasa, Fosomax, Iron, Vitamin b12 injections, Vicodin as needed, Entocort 6mg for maintanence.
November'09 colonoscopy shows reoccurance at anastamosis and active disease in sigmoid and rectum


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 3/9/2010 5:09 PM (GMT -7)   
80s chick, who are you seeing at Mayo in Florida? That's where I go.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma, IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid,claritin, advair, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal
zoloft, rolaids, pepsid (as needed)

ALLERGIC TO SULFA, AND ANTIBIOTICS GIVE ME DIARRHEA!
Blood test positive for Crohn's via prometheus ibd serology panel


jtaylor
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 3/9/2010 5:51 PM (GMT -7)   
WantRelief said...
JTaylor: were you even prepped for having a procedure done? The secretary told me to come in fasting so I just assumed that would be for blood work. Do you feel that he was helpful and it was worth your time?


I fasted starting at maybe 8pm the night before. I have an ileostomy due to a partial colectomy, so I don't have to do the major prep that folks with a colon usually do. After I made my appointment they sent me a packet of information including what they would like me to do before my visit, including prepping for a potential procedure. If I were you I'd search the Mayo website for a phone number you can call and ask them what they'd like you to do.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 3/10/2010 11:48 AM (GMT -7)   
Well, I went there the 1st time because I wasn't feeling well on 50mg of 6MP. I had a bunch of blood tests and a barium follow thru in the span of 24 hours and he told me I wasn't taking a therapuetic level of 6MP. He told me to take 100mg and I got much better after that. In fact I was taking 125mg for a period of time.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!

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