Stricture in the colon?

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NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 8550
   Posted 3/9/2010 3:18 PM (GMT -7)   
Has anybody here had a stricture in the colon?

I saw the gastro today. Told her my symptoms, which in a nutshell have been constipation and abdominal pain over the last few months. I've had Crohn's for 11 years and this represented a fairly fundamental change of symptoms for me. The gastro said it sounded like it might be a stricture in my colon. I was taken aback to say the least. She said that I almost certainly had small bowel involvement, but said that basically the colon was what mattered, not the small bowel. Got no memory, so I'm paraphrasing, but that was the general gist.

She said that strictures in the small bowel don't cause constipation. Thought that they did? confused It's a funny type of constipation that I have anyway. What emerges is liquid 95% of the time, and pencil-thin pieces of stool the rest of the time. I've almost completely lost the urge to go; if I didn't make myself drink umpteen cups of water in a day, including half a litre when I wake up, not sure if I would ever go. I'd probably get impacted, and that is truly, truly horrible; trust me on that one.

I also have to be careful about not eating too much - it slays me. I think I'm still suffering the after-effects of a slap-up meal from five days ago after passing my driving test. Oh well. At least I earned my right to drive to the hospital today. (Except I didn't for insurance reasons skull)

Also, I have this hard mass about the size of a large-ish marble just above my belly button. Can't see anything visible, but can certainly feel it underneath the skin.

So anyway. I have to book a colonoscopy, which will be in 6-8 weeks' time. The doctor mentioned the possibility of surgery. Just still a bit taken aback by it, really. Thought Crohn's strictures were usually in the small bowel. I have to say, if the colonoscopy doesn't show anything untoward, I would like to get a barium follow-through and/or CT scan done. Most of my pain and pressure-like feelings have been in the centre of my abdomen, above my belly button; I still think something might be going on in my small bowel, which I should've made plainer to the doctor.

The tl;dr version

Who here has had a stricture in the colon and what were your symptoms? :-/

*Phoebe*
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Date Joined Sep 2005
Total Posts : 769
   Posted 3/9/2010 6:58 PM (GMT -7)   

Ni nicecupoftea, sorry I can’t give you any solid answers, but I am in the same boat as you – I have symptoms of stricture, but as far as I know I have ‘colonic crohn’s involving the colon (thought I’ve only ever had a colonoscopy so it could be involving the small bowel too I’m not completely sure). I am scheduled to have another colonoscopy in the next couple of months (I’ve had crohn’s 5 years and only 1 colonoscopy, when I was diagnosed).

 

So I have a lot of questions too. I am seeing my GI on the 23rd and will have a whole list of things to ask him! I also have that hard lump just to the left of my belly button, I can feel food literally ‘getting stuck’ – I have also heard of balloon dilation for these kinds of things but I don’t know if that will be an option for me/us.

 

I am in the same boat and I hope you find some answers!

 

P


NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 8550
   Posted 3/9/2010 7:58 PM (GMT -7)   
No worries, Phoebe; thanks for replying! I tend to feel a bit alone with my Crohn's, so it is genuinely nice to hear from somebody with similar symptoms to mine. I have Crohn's in the colon and terminal ileum - don't know if it goes any further than the TI or not. I've traditionally been extremely bad about asking doctors questions. This time around, I'm going to try to be a lot more proactive about asking after the results of tests, and so on.

Good luck with your GI appointment on the 23rd. I'd be interested to know how it went and what your GI said. In the meantime, I'll wait to see what my colonoscopy shows before doing research into colon surgery. No point worrying myself about something I might not need skull

PS: about the hard lump; mine is worse at some times than at others. Sometimes it shrinks or disappears altogether, other times it's like a small rock in my belly. Then when it gets like that, the whole centre of my abdomen above it feels pretty hard and flat too. I probably have analysed it too much... >.>

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 3/9/2010 9:00 PM (GMT -7)   

Oh that’s very interesting. Mine does exactly the same thing. I have been sticking to a mainly soft-foods diet recently, and it seems to help. And I eat a lot of home-made probiotic yoghurt, which helps to populate the stomach/insides with good bacteria to help things. it is difficult with colonic crohn’s, my specialist said it is much more rare than small bowel crohn’s (and I always wondered why people talked of right-sided pain when mine was always on the left!) – he said it is more rare, less likely for re-section but also aggressive and harder to treat. So it was hard news. But we can do this!

 

I am the same; the prospect of surgery absolutely terrifies me. 2 surgeries last yr for a re-occuring peri-anal abscess was bad enough! One day at a time. I will definitely let you know how my GI appointment on the 23rd goes….

 
 
PS I LOVE your screen name. I Love my Cups of Tea!

Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 3/9/2010 11:13 PM (GMT -7)   

I had a stricture in the sigmoid colon for which I had a resection last May. My stools were narrow. I occasionally vomitted with bowel movements and although I have read this can occur with a blockage, my surgeon didn't think that was the cause in my case.

I had many tests before deciding on surgery. I felt very good but tests showed the stricture was made up of scar tissue and carried a risk of leaving it. Before surgery I was advised to follow a low residue diet. Since surgery very few problems with any foods or anything else.


57 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8550
   Posted 3/10/2010 5:54 PM (GMT -7)   
Thanks, Bammer - appreciated.

No vomiting in my case. Occasional nausea, that's about it. But I can't say I feel very good in general. Am unwell and have been in pain all day long. After a respite of sorts in February, my disease appears to be coming out to play again.

Can't really moan too much when I had six years almost symptom-less and five years of a picnic in the park compared to many, but I feel like for the first time I'm beginning to understand the true nature of this disease. And then Crohn's is a picnic in the park compared to many other diseases. It almost doesn't bear thinking about.

At any rate, are strictures in the colon in Crohn's really so rare? To be honest, I was completely surprised that my gastro was so seemingly dismissive of the small bowel; I always thought small bowel Crohn's was, if anything, more serious than Crohn's in the colon. But maybe it was just my particular case she was dismissing, based on the symptoms I told her.

Oh what the hell. I've given up understanding anything about Crohn's.

Samik83
New Member


Date Joined Mar 2010
Total Posts : 11
   Posted 3/11/2010 1:02 PM (GMT -7)   
NiceCupOfTea I am in the same boat. I have exactly the same symptoms and have a stricture on my left side (i have no idea how far up or what part of the tract). My GI said to go on a liquid diet today. He keeps saying I may need surgery. I'm starting remicade after 3 years off it on Monday, and since my stricture isn't scar tissue, he thinks I could avoid surgery if it works. However, I am currently in pain on and off and can hardly go to the bathroom. He said not to use laxatives. But I also have a hard mass above the belly button that comes and goes, just like the pain. I'm hoping the liquid diet works.
___________________________________________
33-year-old female diagnosed when I was 19. Had a recto-anal fistual and rectal flap advancement surgery to correct in 2007. In remission for 10 years until August 2009. Take Entocort, Asocol, sufasalazine, azothiaprine, just stopped Hurmira, restarting Remicade. Flagyl and cipro made things worse.


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8550
   Posted 3/11/2010 3:50 PM (GMT -7)   
Good luck with the liquid diet, Samik. I hope that, and the Remicade, bring relief for you.

I have to admit, I'm still eating all sorts. That's the one thing which has made me wonder if I really have a stricture: diet. When I look back to the nights I suffered the most, it was often after a day of eating too much fattening or rich food that led me there, not eating food with fibre in it. I also think drinking loads of warm water/tea has helped. In December I wasn't doing that and that was my worst month for suffering from pain. (Before then, things weren't quite as bad although getting towards that way.)

I'll see what the colonoscopy and/or further tests show. If the GI recommends a liquid diet, I'll go on one but until then I'll just carry on doing as I'm doing...
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