Ni nicecupoftea, sorry I can’t give you any solid answers, but I am in the same boat as you – I have symptoms of stricture, but as far as I know I have ‘colonic crohn’s involving the colon (thought I’ve only ever had a colonoscopy so it could be involving the small bowel too I’m not completely sure). I am scheduled to have another colonoscopy in the next couple of months (I’ve had crohn’s 5 years and only 1 colonoscopy, when I was diagnosed).
So I have a lot of questions too. I am seeing my GI on the 23rd and will have a whole list of things to ask him! I also have that hard lump just to the left of my belly button, I can feel food literally ‘getting stuck’ – I have also heard of balloon dilation for these kinds of things but I don’t know if that will be an option for me/us.
I am in the same boat and I hope you find some answers!
Oh that’s very interesting. Mine does exactly the same thing. I have been sticking to a mainly soft-foods diet recently, and it seems to help. And I eat a lot of home-made probiotic yoghurt, which helps to populate the stomach/insides with good bacteria to help things. it is difficult with colonic crohn’s, my specialist said it is much more rare than small bowel crohn’s (and I always wondered why people talked of right-sided pain when mine was always on the left!) – he said it is more rare, less likely for re-section but also aggressive and harder to treat. So it was hard news. But we can do this!
I am the same; the prospect of surgery absolutely terrifies me. 2 surgeries last yr for a re-occuring peri-anal abscess was bad enough! One day at a time. I will definitely let you know how my GI appointment on the 23rd goes….
I had a stricture in the sigmoid colon for which I had a resection last May. My stools were narrow. I occasionally vomitted with bowel movements and although I have read this can occur with a blockage, my surgeon didn't think that was the cause in my case.
I had many tests before deciding on surgery. I felt very good but tests showed the stricture was made up of scar tissue and carried a risk of leaving it. Before surgery I was advised to follow a low residue diet. Since surgery very few problems with any foods or anything else.