Hi new to Crohn's...can anyone point me in the direction of a book?

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Peaceandhappiness
Regular Member


Date Joined Mar 2010
Total Posts : 131
   Posted 3/9/2010 4:43 PM (GMT -7)   
A book to start at for my new diet/lifestyle? Or direct me anywhere else, like a first step? turn
-Mom of a preschool boy and teenage girl and wife to a wonderful man.
 
  • Hypothyroid w/enlarged thyroid and small cyst- I take care of this with regular labs, diet, exercise, supplements like Zinc, and a couple of thyroid medications. From time to time I take Wellbutrin if I go hypothyroid and feel blue or stressed out and it helps for a couple/few months.
  • I am finding that Magnesium Citrate 200-400mgs here and there for me is very calming when I'm feeling anxious.
  • I have burned out my adrenals before, and self-healed with licorice supplements, B stress vitamins, rest/relaxation/, lots of warm baths, turning the phone off, watching uplifting stuff and not the news, spirituality.
  • For any hormonal stuff Evening primrose oil and Boron 3mgs helps daily.
  • I'm a health nut w/thyroid weight to lose.
  • Just dx'd w/mild Crohn's and Gerd (w/ a sore in esophagus) trying Prilosec to keep stomach acid down (already tried digestive enzymes, avoiding certain foods, HCI Betaine w/Ox bile and so on).


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/9/2010 4:45 PM (GMT -7)   
Kitchen table wisdom

I am sure the scd and the makers diet folks will be along to give you references for that

Ivy6 has alot of links in her signiture that might help.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Peaceandhappiness
Regular Member


Date Joined Mar 2010
Total Posts : 131
   Posted 3/9/2010 4:46 PM (GMT -7)   
I also had my colonosocopy/endoscopy (first one) last night and I'm still really tired from it today, about 20 hours later, so I'm hoping the tiredness will pass and I'll be my happy self again : )
-Mom of a preschool boy and teenage girl and wife to a wonderful man.
 
  • Hypothyroid w/enlarged thyroid and small cyst- I take care of this with regular labs, diet, exercise, supplements like Zinc, and a couple of thyroid medications. From time to time I take Wellbutrin if I go hypothyroid and feel blue or stressed out and it helps for a couple/few months.
  • I am finding that Magnesium Citrate 200-400mgs here and there for me is very calming when I'm feeling anxious.
  • I have burned out my adrenals before, and self-healed with licorice supplements, B stress vitamins, rest/relaxation/, lots of warm baths, turning the phone off, watching uplifting stuff and not the news, spirituality.
  • For any hormonal stuff Evening primrose oil and Boron 3mgs helps daily.
  • I'm a health nut w/thyroid weight to lose.
  • Just dx'd w/mild Crohn's and Gerd (w/ a sore in esophagus) trying Prilosec to keep stomach acid down (already tried digestive enzymes, avoiding certain foods, HCI Betaine w/Ox bile and so on).


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/9/2010 4:49 PM (GMT -7)   
It takes about 3-4 days to get back to pre-scope feeling.
Are you pooping yet?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Peaceandhappiness
Regular Member


Date Joined Mar 2010
Total Posts : 131
   Posted 3/9/2010 5:13 PM (GMT -7)   
Yes, been pooping. I just feel "off" today, sort of weepy, tired, I haven't done much b/c I want to sleep. I am trying to eat good, be positive and flush any narcotic or anything from it out of my system.

So far today, I have had 2 boiled eggs, 2 pieces of brown rice bread, I'm trying for a turkey sausage, frozen blueberries and 2 small gluten-free cookies, lots of water and my vitamins.
-Mom of a preschool boy and teenage girl and wife to a wonderful man.
 
  • Hypothyroid w/enlarged thyroid and small cyst- I take care of this with regular labs, diet, exercise, supplements like Zinc, and a couple of thyroid medications. From time to time I take Wellbutrin if I go hypothyroid and feel blue or stressed out and it helps for a couple/few months.
  • I am finding that Magnesium Citrate 200-400mgs here and there for me is very calming when I'm feeling anxious.
  • I have burned out my adrenals before, and self-healed with licorice supplements, B stress vitamins, rest/relaxation/, lots of warm baths, turning the phone off, watching uplifting stuff and not the news, spirituality.
  • For any hormonal stuff Evening primrose oil and Boron 3mgs helps daily.
  • I'm a health nut w/thyroid weight to lose.
  • Just dx'd w/mild Crohn's and Gerd (w/ a sore in esophagus) trying Prilosec to keep stomach acid down (already tried digestive enzymes, avoiding certain foods, HCI Betaine w/Ox bile and so on).


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 3/9/2010 5:20 PM (GMT -7)   
yeah, what mmmnavy said - read the specific carbohydrate book (SCD - big online resource) and the makers diet. these are great books and have helped a lot of people. you may have to do some tweaking for your own individual needs and it may take a few months to see changes, but you'll get a great education on proper nutrition.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Former58D
Regular Member


Date Joined May 2009
Total Posts : 173
   Posted 3/9/2010 5:28 PM (GMT -7)   
Crazy Harry - are you still med free?

I would suggest Life Without Bread for starters and then possibly moving on to Good Calories, Bad Calories (heavy reading). I've recently committed to Paleo (tried SCD) and feeling the best I have in a while.
"What can't be changed must be endured" - unknown

DX with distal Crohn's colitis Oct 2007, predominantly in rectum
Colozal and Canasa for 2+ years - developed an intolerance
6MP - elevated LFTs after 100mg, no effect after 9 months
Currently: Remicade (Nov '09), and Paleo Diet. Not quite remission, but so much better!


Peaceandhappiness
Regular Member


Date Joined Mar 2010
Total Posts : 131
   Posted 3/9/2010 5:34 PM (GMT -7)   
I'm sorry what's SCD?

So Life Without Bread, Paleo, The Maker's Diet and Kitchen Table Wisdom?
-Mom of a preschool boy and teenage girl and wife to a wonderful man.
 
  • Hypothyroid w/enlarged thyroid and small cyst- I take care of this with regular labs, diet, exercise, supplements like Zinc, and a couple of thyroid medications. From time to time I take Wellbutrin if I go hypothyroid and feel blue or stressed out and it helps for a couple/few months.
  • I am finding that Magnesium Citrate 200-400mgs here and there for me is very calming when I'm feeling anxious.
  • I have burned out my adrenals before, and self-healed with licorice supplements, B stress vitamins, rest/relaxation/, lots of warm baths, turning the phone off, watching uplifting stuff and not the news, spirituality.
  • For any hormonal stuff Evening primrose oil and Boron 3mgs helps daily.
  • I'm a health nut w/thyroid weight to lose.
  • Just dx'd w/mild Crohn's and Gerd (w/ a sore in esophagus) trying Prilosec to keep stomach acid down (already tried digestive enzymes, avoiding certain foods, HCI Betaine w/Ox bile and so on).


Former58D
Regular Member


Date Joined May 2009
Total Posts : 173
   Posted 3/9/2010 5:36 PM (GMT -7)   
Those books are a good start. The SCD is the Specific Carb Diet. Many IBDers find success with it. Personally, I improved but not to remission. Doing better with Paleo.
"What can't be changed must be endured" - unknown

DX with distal Crohn's colitis Oct 2007, predominantly in rectum
Colozal and Canasa for 2+ years - developed an intolerance
6MP - elevated LFTs after 100mg, no effect after 9 months
Currently: Remicade (Nov '09), and Paleo Diet. Not quite remission, but so much better!


Peaceandhappiness
Regular Member


Date Joined Mar 2010
Total Posts : 131
   Posted 3/9/2010 5:44 PM (GMT -7)   
I also wonder if Gall Bladder can cause/help contribute to all these symptoms, but I don't have any normal "Gallbladder attack" type symptoms.
-Mom of a preschool boy and teenage girl and wife to a wonderful man.
 
  • Hypothyroid w/enlarged thyroid and small cyst- I take care of this with regular labs, diet, exercise, supplements like Zinc, and a couple of thyroid medications. From time to time I take Wellbutrin if I go hypothyroid and feel blue or stressed out and it helps for a couple/few months.
  • I am finding that Magnesium Citrate 200-400mgs here and there for me is very calming when I'm feeling anxious.
  • I have burned out my adrenals before, and self-healed with licorice supplements, B stress vitamins, rest/relaxation/, lots of warm baths, turning the phone off, watching uplifting stuff and not the news, spirituality.
  • For any hormonal stuff Evening primrose oil and Boron 3mgs helps daily.
  • I'm a health nut w/thyroid weight to lose.
  • Just dx'd w/mild Crohn's and Gerd (w/ a sore in esophagus) trying Prilosec to keep stomach acid down (already tried digestive enzymes, avoiding certain foods, HCI Betaine w/Ox bile and so on).


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 3/9/2010 5:47 PM (GMT -7)   
Yes, the SCD is the Specific Carbohydrate Diet. The SCD book is called "Breaking the Vicious Cycle" by Elaine Gottschall.
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/9/2010 5:52 PM (GMT -7)   
With a thyriod condition it can take a little while longer to get back to normal, while you might be a bit sore, just take it easy one your guts ok?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


newfoundsun
Regular Member


Date Joined Nov 2009
Total Posts : 145
   Posted 3/9/2010 5:55 PM (GMT -7)   
I started with "Brasco Broth," which came from Jordin Rubin's book "Guts to Glory," and used his book as a guide for a 3 weeks.  I like the way his book lays out foods into categories.  I then picked up "Breaking The Vicious Cycle" and have used that as my primary diet.  I'm 4 months into that diet, and doing well.  I also just picked up "Nourishing Traditions" by Sally Fallon and LOVE this book!  You still have to watch what you eat, find your triggers, and adjust recipes accordingly, but her book is a massive treasure trove of information and recipes.  Have you started a food journal yet?  I have found, at the beginning of my diagnosis, that this is an invaluable tool.  I write down bowel movements, pain or symptoms, and what I eat, so I can track if anything sets me off. 
 
Take a few moments to breathe, and relax.  You sound like you are a very capable person, and I'm sure you will get a handle on this soon.  Remember that Crohn's is an individual disease.  You have to discover what you are comfortable with in treatment and what you feel works best for you. 
 
Please feel free to contact me.  I would love to talk with you.
 
Blessings and stay strong, 


newfoundsun
 
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
 
CD diagnosed 11/12/09
Seeing a Naturopath and modifying my diet, so far

Post Edited (newfoundsun) : 3/9/2010 6:00:23 PM (GMT-7)


Peaceandhappiness
Regular Member


Date Joined Mar 2010
Total Posts : 131
   Posted 3/9/2010 10:49 PM (GMT -7)   
Dr. Mercola told me he wants me to check out his Grain-Free Diet Book.
-Mom of a preschool boy and teenage girl and wife to a wonderful man.
 
  • Hypothyroid w/enlarged thyroid and small cyst- I take care of this with regular labs, diet, exercise, supplements like Zinc, and a couple of thyroid medications. From time to time I take Wellbutrin if I go hypothyroid and feel blue or stressed out and it helps for a couple/few months.
  • I am finding that Magnesium Citrate 200-400mgs here and there for me is very calming when I'm feeling anxious.
  • I have burned out my adrenals before, and self-healed with licorice supplements, B stress vitamins, rest/relaxation/, lots of warm baths, turning the phone off, watching uplifting stuff and not the news, spirituality.
  • For any hormonal stuff Evening primrose oil and Boron 3mgs helps daily.
  • I'm a health nut w/thyroid weight to lose, and loves God.
  • Just dx'd w/mild Crohn's and Gerd (w/ a sore in esophagus) trying Prilosec to keep stomach acid down (already tried digestive enzymes, avoiding certain foods, HCI Betaine w/Ox bile and so on).


Peaceandhappiness
Regular Member


Date Joined Mar 2010
Total Posts : 131
   Posted 3/9/2010 10:52 PM (GMT -7)   
Thanks guys, I will take it easy. I was so kind of tired, weepy I guess I think I can just bounce back from anything and want to do cart wheels or something, when I need to accept "rest" and enjoy it without thinking it means I'm depressed. LOL. I'm gonna go take a mineral salt bath tonight, since my son is gone at the grandparents for another night. I did make it with the husband to run errands tonight. I'm still eating lightly since I have no idea what I can or cannot have and waiting for this Prilosec stuff to kick in or make my stomach acid better in a few days, since all natural things had failed.
-Mom of a preschool boy and teenage girl and wife to a wonderful man.
 
  • Hypothyroid w/enlarged thyroid and small cyst- I take care of this with regular labs, diet, exercise, supplements like Zinc, and a couple of thyroid medications. From time to time I take Wellbutrin if I go hypothyroid and feel blue or stressed out and it helps for a couple/few months.
  • I am finding that Magnesium Citrate 200-400mgs here and there for me is very calming when I'm feeling anxious.
  • I have burned out my adrenals before, and self-healed with licorice supplements, B stress vitamins, rest/relaxation/, lots of warm baths, turning the phone off, watching uplifting stuff and not the news, spirituality.
  • For any hormonal stuff Evening primrose oil and Boron 3mgs helps daily.
  • I'm a health nut w/thyroid weight to lose, and loves God.
  • Just dx'd w/mild Crohn's and Gerd (w/ a sore in esophagus) trying Prilosec to keep stomach acid down (already tried digestive enzymes, avoiding certain foods, HCI Betaine w/Ox bile and so on).


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 3/10/2010 6:05 AM (GMT -7)   
Peaceandhappiness said...
Dr. Mercola told me he wants me to check out his Grain-Free Diet Book.


Yes, a grain-free diet would likely be the same as the SCD, but the SCD removes all double-sugars so it's also sugar and milk free. Also "Life Without Bread" puts forth a grain-free diet, but restricts total carbs, as well.

If you have a connection with Mercola, you might want to ask him about Prilosec.

I hope you feel much better soon! :-)
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.

Threads discussing diet:
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/10/2010 7:40 AM (GMT -7)   
I live on a low residue diet all the time, and that works best for "ME". Some have had success with the SCD or Maker's Diet, but for "ME" I find them too restrictive. You can google low residue diet and get some diet ideas. Good luck!

Also, Peaceandhappiness on a administrative note, could you please go into the control panel and edit your signature. Signatures are not to be longer than 10 lines including spaces. Thank you for your understanding:)
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MoobyDoo
Regular Member


Date Joined Sep 2009
Total Posts : 212
   Posted 3/10/2010 9:13 AM (GMT -7)   

"Breaking the Vicious Cycle" by Elaine Gottschall is the book everyone is referring to for the SCD.

The website is called pecanbread.com.

 

 



  • Kittikatt
    Regular Member


    Date Joined Jul 2004
    Total Posts : 422
       Posted 3/10/2010 11:23 AM (GMT -7)   

    Looks like most everyone directed you to food books (I know you specifically asked about diet) but I found this book to be of great understanding to me when I was first diagnosed:

    100 Questions & Answers about Crohn's Disease and Ulcerative Colitis: A Lahey Clinic Guide

    I got mine for free on the CCFA web site (don't know if they are still doing that or not...I know you can buy it).


    Diagnosed in October, 2004 at age 32 (misdiagnosed with IBS in 2002)
    38/F/SC
    Current Rx's: Colazal (generic), Omeprazole (PRN), Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Cranberry pills; Slow Fe (PRN) 
    Secondary conditions: swelling ankles, extreme fatigue, mouth ulcers, joint pain
    Previous/occasional Rx's: Prednisone, Flagyl, Levaquin, Xifaxan, Carafate
    4/7/09: Gall bladder removal laproscopic surgery (gall stones)


    Peaceandhappiness
    Regular Member


    Date Joined Mar 2010
    Total Posts : 131
       Posted 3/10/2010 4:47 PM (GMT -7)   
    I guess I'll be at Barnes and Noble all weekend : )
    -Mom of a preschool boy and teenage girl and wife to a wonderful man.
     
    Hypothyroid, newly dx'd Crohn's, Gerd. I love to look for natural ways to heal first, conventional ways second and keep my faith.


    Peaceandhappiness
    Regular Member


    Date Joined Mar 2010
    Total Posts : 131
       Posted 3/10/2010 5:10 PM (GMT -7)   
    My back is achy/sore for the past two days, I wonder if this is a colonoscopy thing then?
    -Mom of a preschool boy and teenage girl and wife to a wonderful man.
     
    Hypothyroid, newly dx'd Crohn's, Gerd. I love to look for natural ways to heal first, conventional ways second and keep my faith.

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