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FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 3/9/2010 7:59 PM (GMT -7)   
I have had two remicade treatments and seem to be improving from the worst flare of my life.  Now that I am starting to eat again (I lost 25 of my 167 pounds) I am craving and eating chocolate and sugar along with good stuff like fish and chicken.  Wondering if this sugar craving has happened to anyone else after starving for a month?????
 
On a side note:  Since I am now around my high school weight from 30 years ago I wonder if I should try to keep this weight?  If I do and I flare again I could end up at my grammer school weight though!  smhair
 
What do you think?

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8561
   Posted 3/9/2010 8:17 PM (GMT -7)   
It doesn't require starvation to make me have a sugar addiction, unfortunately :-/

I've managed to cut back on sugary stuff a lot, on the grounds I don't really want sugary, fatty junk to comprise half my daily calories, especially when I can't eat that much. But I can't give it up entirely - have to have something sweet every day still. I wish I could give it up entirely, but life is too grim without the prospect, just as life without tea would be too grim to even consider.

Whether or not you stay at your current weight would depend on how often you get flares and to what extent the pounds drop off you, I should think. I lost a lot of weight over a period of 2-3 years, and I never tried to put any of it back on. But then I never get the sort of flare ups where I shed 25lb in one month. If I did then I would be in trouble 'cos that would make me seriously underweight. But at the moment uncontrolled diarrhoea is looking less likely than ever.

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 3/10/2010 6:29 AM (GMT -7)   
Anytime I want sugar (or something sweet) I go straight for a smoothie.  I'm trying to train my body not to want sugar, but to want sweet fruits.  I'm trying to eliminate all processed foods, baby steps.  Oh, and I work as a chocolatier...yeah, haha.  Chocolate has a lot of caffeine in it that upsets my stomach. If I do eat chocolate, and unfortunately it's inevitable in my profession, I go for dark chocolate, 70% or higher.
Dianogsed with Crohns: At 16 years old. 23 years old now.
Surgeries:3 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings, Fistula Repair
Current Meds: Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: None.
 

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 3/10/2010 8:22 AM (GMT -7)   
Thanks for the responses. I would love to have smoothies and things but I am allergic to fruits and vegetables unless they are processed or thoroughly cooked. Go figure. As for the sugar craving I was thinking that my body really wanted the calories to make up for the lost weight???? Chocolatier. Dream job!!!

I still can't decide if I should try to hold my weight here or not. I guess I will see where nature's course takes me and kind of play it by feel.
 


grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 3/10/2010 12:32 PM (GMT -7)   

Chocolate!! MMMMM!!!!!

My best job ever? Working at Ethel M chocolate factory putting little pieces of chocolate in boxes. 10 for the box, 1 for me, 10 for the box, 1 for me! Haha!!! They didn't mind that you ate while you worked (at least back then) cuz it was a form of quality control.

Sorry to highjack, just brought back some awesome memories!!


Dx'd w/ Crohn's in 1979 at age 14, have had minor flares throughout the years, but mostly kept in remission. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. Was on Pred. Dr. wants to try Humira...
Currently just take a multivitamin, calcium, magnesium, and fish oil.


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 3/10/2010 1:01 PM (GMT -7)   
FunGuy said...
Thanks for the responses. I would love to have smoothies and things but I am allergic to fruits and vegetables unless they are processed or thoroughly cooked. Go figure. As for the sugar craving I was thinking that my body really wanted the calories to make up for the lost weight???? Chocolatier. Dream job!!!

I still can't decide if I should try to hold my weight here or not. I guess I will see where nature's course takes me and kind of play it by feel.


Hi FunGuy,

The following is just my opinion, not the Oracle...

If you're slim now but not seriously underweight, I think you should try to hold it there. I come from a family of fatties, but I'm not overweight myself, probably thanks to my Crohn's. In general, fat people suffer more health problems than underweight people, especially as they get older (think diabetes). This is in addition to any social stigma attached with being overweight. Should you start flaring and find yourself unable to eat much, there are always various weight-gain formulas available.

Sugar craving - well, I experienced a general food craving mania after recovering from my various bowel resections, though it wasn't limited to sugar. I also had a salt craving. There might be something to the idea that after starving, your body wants to pig out. I would resist the urge to overdo it, if I were you.

Sugar is not a particularly good thing to have in your diet. I know, that's easy to say, but harder to enforce the discipline. I personally don't eat any sugar at all. I sweeten things with stevia. You can read about that here:

http://en.wikipedia.org/wiki/Stevia

I'm not sure where you live, but if it's the USA, there is a product on the market there that is NOT stevia. It's called Truvia (true stevia?), deliberately misleading. It contains modified stevia, and more. It's being marketed by food conglomerate Cargill for the sole purpose of getting around patent laws that prevent the patenting of stevia (since it's a natural plant - you can't patent that). There's a law in the USA that prohibits marketing stevia as a "sweetener" - that was passed under considerable pressure from the manufacturers of aspartame. Truvia can be marketed as a sweetener - I suggest avoiding it and go for the real thing which can be sold as a "food supplement." You can google "stevia" to find online suppliers if your local health food store doesn't carry it.

Chocolate - yes, good addictive stuff, though I don't eat it now. You might try the semi-sweet chocolate (usually sold in the "baking supplies" section of a supermarket.

best regards,
Robert
Crohn's since 1988
3 resections

Post Edited (ozonehole) : 3/10/2010 1:06:52 PM (GMT-7)


CUBFAN26
Regular Member


Date Joined Feb 2009
Total Posts : 46
   Posted 3/10/2010 1:14 PM (GMT -7)   
Yes i have craved the sugar.  I lost 70 lbs, i went from about 190 to 120 in a span of 2 and 1/2 months due to surgery and the fallout from that surgery being messed up.  I had not weighed that much since 4th grade.  It took me months of trying different things to try and gain back the weight.  Finally i found walgreens m&m cookies and reese fastbreak bars.  I have gained all of my weight back.  I am not over weight my any means but I have found it hard to stop eating so much sugar.  I was eating 6-8 of those cokkies a day at about 420 calories a piece and then 4-5 candy bars on top of that.  My doctor didnt seem to care because i had only gained about 10 lbs back 6 months after my surgery.  In the past 2 months i have gained the rest back.  So yes i undersatand your sugar craving.  I say keep eating.  I figured that if anyone deserved to gain a little weight over my "ideal" weight I did for having to go through all the crap i have been through in the past year. Good luck and i hope that you stay healthly and happy!
28 yrs old Male---Married 4.5 yrs-- 1 daughter 19 months old
Crohn's since June 2005
Relapse/flare up since Oct. 2007
Been on Humira, Pentasa, Asocol. Prednisone, Entocort, Imuran, Protonix, various anxiety meds, painkillers
Surgery on March 6th 2009 and again on march 9th 2009 small bowel resection with added ostomey bag.
Surgery again on Oct. 13th 2009 to remove ostomey bag and part of colon.  crohns has moved from small bowel to transeverse colon.     Current-no maitainance meds.  Docs want me to start Methotrexate.  I am afraid of fertility side effects being so young and I want a bigger family.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 3/10/2010 1:40 PM (GMT -7)   
Wow CubFan, that is a lot of sugar!

How's your groin pain?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/10/2010 2:29 PM (GMT -7)   
My personal opinion is that while I am currently in remission, I will allow myself to keep a few extra pounds on me as there is no telling when I could get sick and it will all fall off of me again. I also come from a family of obese people, but lucky me I am the thinner one in the family. More than likely thanks to Crohns. I call it my cushion weight. As for craving sugar, I always allow myself a little treat now and again. I am not going to deny myself a little treat every so often. I eat popsicles and they only have 45 calories. Not that bad, huh?? JMHO
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/10/2010 2:30 PM (GMT -7)   
Oh and FunGuy I bet you could have smoothies. I do not tolerate alot of fruits and veggies either, but smoothies I have no problem with since its liquidated (is that a word:). Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

CUBFAN26
Regular Member


Date Joined Feb 2009
Total Posts : 46
   Posted 3/10/2010 3:19 PM (GMT -7)   
No groin pain eating just those things.  My doctor told me to eat Taco Bell everyday and just laughed at him.  I would love to but then i would be on the pot for days maybe weeks,  It took a lot of experimenting after my surgery to see what I could handle and couldnt.  Thank goodness sugar has never bothered me.  But i would trade that for a salad any day.  Raw veggies especially lettuce tear me up for days.  I eat a lot of chesse pizza and mashed potatoes and creamy peanut butter and jelly.  I love chunky but cant handle the nuts.  It is just so crazy that we all have crohns but our eatin habits vary so much from person to person.  After awhil;e i guess you just figure out what works and if Im craving something I know i shouldnt have, i make sure that my schedule is clear for a least a few days afterwords.  Good luck eating!
28 yrs old Male---Married 4.5 yrs-- 1 daughter 19 months old
Crohn's since June 2005
Relapse/flare up since Oct. 2007
Been on Humira, Pentasa, Asocol. Prednisone, Entocort, Imuran, Protonix, various anxiety meds, painkillers
Surgery on March 6th 2009 and again on march 9th 2009 small bowel resection with added ostomey bag.
Surgery again on Oct. 13th 2009 to remove ostomey bag and part of colon.  crohns has moved from small bowel to transeverse colon.     Current-no maitainance meds.  Docs want me to start Methotrexate.  I am afraid of fertility side effects being so young and I want a bigger family.


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 3/10/2010 7:29 PM (GMT -7)   
Wow strong points of advice from both sides. I am probably at a healthy weight now but I was never heavy really. I prefer myself around 150 I think.

I have been using some products with stevia in it. I just don't care much for it though. I use it in some drink mixes to encourage me to stay hydrated

It helps to know that others here have experienced this. I will work to moderate the amount of sugar I am eating but I will still indulge a bit :)

I think I will eat up to around 150 and try to hold it there.

Thanks everyone
 


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 3/10/2010 8:22 PM (GMT -7)   
I have a major sweettooth, but I try to ignore it and moderate my carb intake. Since I make all my food from scratch, I don't have the hidden sugars that processed foods have, and can afford to indulge a little. Mainly, I put some honey in my yogurt (twice a day), have some sort of fruit for lunch, have something sweet after dinner (like frozen yogurt or an almond butter brownie), and have a glass of grape juice in the evening. So I get something sweet with each meal, but don't generally go over 110 g of carbs a day (unless I eat a lot of squash or carrots with dinner). If it's true that a nasty bacteria is at the root of crohn's (whether MAP, klebsilella, or something else), then I don't want to help them out by overdoing the carb intake :-).
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, Magnesium, Coconut Oil, Garlic Oil, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/11/2010 12:36 AM (GMT -7)   
I've had a real sweet tooth for years now but never considered remicade as the cause, could be though. I've been on remicade for just under 3 years, the time frame could be right.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 3/11/2010 5:18 AM (GMT -7)   
I wasn't thinking remicade was the cause I thought it was because I was starved. Interesting idea though Grandpa. Mice love sugar and remicade has mouse protein.... :)
 


txmark
Regular Member


Date Joined Apr 2009
Total Posts : 33
   Posted 3/11/2010 7:28 AM (GMT -7)   
So I have never really had sugar cravings in my 32 yrs until the ast 6 months.....now I have been eating something sweet almost every night because of it.

Well two weeks ago I found out I am Fructose Intolerant (sugar cravings is one of the symptoms). My docotr couldn't figure out why I kept losing weight. Colitis is in remission, negative celiac.....so he suggested a fructose intolerance test...turns out I'm very positive! I have been on the diet for for 8 days....still have the cravings but I'm hoping that will improve.

I got some sugar free cookies to help me for now.....they aren't good, so if I keep eating those I'm sure I won't want anymore sweets soon enough!!

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/11/2010 9:35 PM (GMT -7)   
When I re read your first post I see how I misunderstood you. My work mates always said" If you haven't heard a good rumor lately start one". lol.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

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