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huntersmom
Regular Member


Date Joined May 2009
Total Posts : 50
   Posted 3/10/2010 8:09 AM (GMT -7)   
Has anyone not responded to prednisone? I have never really responded to it even at 40 mgs and I can't go higher than that cause  I can't tolerate the side effects. I am very frustrated cause I feel like I am not getting any better but getting worse and sometimes a response from the GI takes forever. I was just wondering if anyone else has had a response to prednisone like that and if anything else has worked. I am getting urgency all day long and bleeding and now on top of all that I have external hemmies and I feel like my insides wanna fall out and my butt is killing me.
diagnosed 1 1/2 years ago and still trying to figure it out!
MEDS Currently-
Pred 40 mgs
lialda 4.8gms
bentyl 20 mgs
cipro x 2 a day
flagyl x 3 a day
6mp 100 mgs


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/10/2010 8:11 AM (GMT -7)   
Have you ever tried Entocort? Its a steroid also, but has less systemic side effects. Just a thought! Hugs~
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/10/2010 10:29 AM (GMT -7)   
I get hives with prednisone, so I never got to see if I responded or not. I take methylprednisolone when I need oral steroids.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 3/10/2010 12:00 PM (GMT -7)   
I don't respond to steroids and have horrific side-effects from them so I'm not allowed to take them anymore - which is fine by me as I don't see the point in taking a treatment that doesn't work!

I was originally on Entocort back in the day when i first got diagnosed and then moved to pred as my GI said that entocort only works in the small bowel which is one of the reasons its less side-effecty but means it doesn't help the rest of the intestines as much as pred does and so is only really suitable for people who have Crohn's just in the small intestine, mines everywhere. Either way neither helped me so thats why I ended up on methotrexate early on after diagnosis.
 
 

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