New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/11/2010 3:46 AM (GMT -7)   
I'm sorry to hear you've been so unwell.

Have you spoken with the social workers at your hospital to see if you can get some sort of funding to help your wife with her accommodation costs? I'm thinking of something along the lines of a VPTAS form but I'm not sure if that will apply in NSW - you'll have to speak with an expert.

It sounds as if you could use some financial help, though: Sydney is expensive!

Welcome to the forums,

Ivy (Australian too).
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Flipside
New Member


Date Joined Mar 2010
Total Posts : 17
   Posted 3/11/2010 4:50 AM (GMT -7)   
Hi ivy6, There is a flipside to the disadvantage of all this happening to me in a foreign city.

I came to Sydney for a training course for work. It was on the second day when I was sitting in the training course that I started to get increasing adbo pain, to the point that it became unbearable. I excused myself into a meeting room and tried to grind through it for a couple of hours until I was just about passing out from the pain. Finally, I grabbed the phone and called the receptionist to get me an ambulance. It was quite embarrassing to have to be wheeled away by paramedics with my entire team looking in in bewilderment. Mind you I can't recall much of it, but I would have preferred not to have everyone seen me like that.

However on the bright side because it was such a dramatic event, my work has been extremely good about this. They feel partly responsible because this occurred on work time, and that I was away from home. They have been really cool about me taking time off and have encouraged me to focus on getting better and not worry about work. And the best thing is that they have covered all of my wife's accommodation fees! This is a godsend, since it would have been cost prohibitive otherwise.. and this way she can stay in a half decent hotel rather than a cheap motel.

We're still up for other costs, but I'm pretty sure they will cover hotel meals, etc. The advantages of working for a large US company!

I did speak to a social worker but its been pretty difficult to get any help since I am from a different state, which apparently strikes out VPTAS. And it appears that you pretty much need to be a pensioner or on welfare to get any assistance from the government. I have given up, as I think I've done ok...

Thanks for the suggestion though!
- 36yo male. DX in 1990 at 16yo. First re-section in 1990, lost most of small bowel - Anastimosis leaked after surgery, resulting in 2nd surgery which ended with illeostomy for 3 months.
- Managed well on Mesasal for 20 years. Only CD symptoms are abdo pain from bad eating and flare-ups once every couple/few months.
- Second hospitalisation Feb 2010, due to bowel performation. Had another re-section, and abdo lavage. Some minor complications including leaking which required (now) two drains, antibiotics and extended hospitalisation.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/11/2010 2:59 PM (GMT -7)   
Wow! It's terrific they're paying her accommodation costs.

I did a little bit of investigation into VPTAS myself and it turns out it's only for rural patients, and I think you come from Melbourne so may, therefore, come under a different scheme (or none at all). It is, however, a misperception that the scheme is only for pensioners: the main difference, as far as I can tell, is that non-pensioners have the first $100 deducted from their payments.

We have a lovely rheumatoid arthritis moderator here at HW. Her name is SydneyJo and, as you can tell, she comes from Sydney. She has Crohn's, too, and I've dropped her a note to see if she might know of any way that you and your wife might be able to get a little more help with out-of-pocket costs etc.

btw, I'm really impressed that you can use the net in your hospital! I haven't found a hospital room yet with connectivity: how are you doing it? Are you using a laptop, or do you have some sort of smaller gizmo?

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Flipside
New Member


Date Joined Mar 2010
Total Posts : 17
   Posted 3/11/2010 3:47 PM (GMT -7)   
I'm at the RNS public hospital - the facilities here are rather ordinary.

My lovely wife bought me one of those pre-paid wi-fi "dongles" from Telstra. $100 buys the dongle thing, which you plug into your USB port plus 1gb of internet. I have been using it quite actively for at least two weeks now and I'm about half way through the allocated allowance.

So it's not cheap, but at least it gets me online!

Thanks I really appreciate you trying to help out..
- 36yo male. DX in 1990 at 16yo. First re-section in 1990, lost most of small bowel - Anastimosis leaked after surgery, resulting in 2nd surgery which ended with illeostomy for 3 months.
- Managed well on Mesasal for 20 years. Only CD symptoms are abdo pain from bad eating and flare-ups once every couple/few months.
- Second hospitalisation Feb 2010, due to bowel performation. Had another re-section, and abdo lavage. Some minor complications including leaking which required (now) two drains, antibiotics and extended hospitalisation.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/11/2010 3:59 PM (GMT -7)   
Ooooh, I'm feeling technologically illiterate.

So do you have a laptop in hospital with you to provide the USB port? I'm trying to envisage how it's working and am having trouble at this point.

Isn't RNS the one where the lady gave birth in the toilet and there was a big scandal about it? You'd think, seeing as NS is poshville, the hospital would be pretty swanky too... But then, I suppose the locals have gone private...

I.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Flipside
New Member


Date Joined Mar 2010
Total Posts : 17
   Posted 3/11/2010 7:25 PM (GMT -7)   
Yep, got my Macbook here with me! In fact, my lovely wife bought it for me as a belated birthday present. I'm so spoilt!!

RNS public hospital is getting very old and outdated now. They have already started building the new hospital, and in fact there is a new building up already housing, amongst other things, the burns unit. However the old part where I am is in a bit of a shambles. Everything's old, scratched, broken, even a little dirty.

The worst is when they take you down to level 2 for a CT scan (which is where I am off to this afternoon, incidentally).. Have you ever seen one of those 70s horror movies where the camera follows a rickety trolley bed down a dark & dingy corridoor, with stains on the walls and missing roof tiles.. and a flickering lone loght bulb hanging eerily in the corner..

Well, I kid you not, the experience of being wheeled down there in your bed is not far off that. In fact, two weeks ago when I was still on heavier IV pain meds I literally freaked out when they first took me down there - I was convinced I was in a horror movie and they were going to operate on me to steal my organs for sale on the black market! Hehe.

Yes, I have quite a active imagination....
- 36yo male. DX in 1990 at 16yo. First re-section in 1990, lost most of small bowel - Anastimosis leaked after surgery, resulting in 2nd surgery which ended with illeostomy for 3 months.
- Managed well on Mesasal for 20 years. Only CD symptoms are abdo pain from bad eating and flare-ups once every couple/few months.
- Second hospitalisation Feb 2010, due to bowel performation. Had another re-section, and abdo lavage. Some minor complications including leaking which required (now) two drains, antibiotics and extended hospitalisation.

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 11:08 AM (GMT -7)
There are a total of 2,731,689 posts in 300,951 threads.
View Active Threads


Who's Online
This forum has 151123 registered members. Please welcome our newest member, Joyce Apuzzo.
326 Guest(s), 11 Registered Member(s) are currently online.  Details
Purple Tulip, tennisplayer, Utah1981, Scaredy Cat, ArtAngel, Girlie, ChickenArise, Traveler, Bik31, straydog, Graytech


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer