Take care of fistula first or start Humira?

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grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 3/11/2010 3:45 PM (GMT -7)   
Just got back from seeing the surgeon my GI referred me to to see if my fistula was absessed. He said he doesn't see any signs of absessing but that I should make a decision on what I should take care of first.
 
He says that if my flare isn't that bad that I should consider having surgery (a fistulectomy?) before I go on humira. It's not draining, it's not infected, and he says there is only a 50/50 chance that it will close it.
 
I don't consider my flare that bad, but then I don't usually have alot of pain, just D and urgency and feeling run down. Some days are worse than others. I also have a tendency to just ignore the flare until it gets really bad like losing alot of weight and getting really sick where I end up in the hospital. I'm trying to be proactive by getting on the humira before it gets too bad.
 
I personally don't see a reason to mess with the fistula at this point. Why go thru the pain of surgery for a 50/50 chance? Plus, I admit, I tend to view Dr's anymore on the same level as used car salesman. Only out to make a buck.
 
Guess I'm just looking for advice on which would be the best route to go.
Dx'd w/ Crohn's in 1979 at age 14, have had minor flares throughout the years, but mostly kept in remission. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. Was on Pred. Dr. wants to try Humira...
Currently just take a multivitamin, calcium, magnesium, and fish oil.


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 3/12/2010 5:54 PM (GMT -7)   
I've never had a fistula but if it's not infected or draining...why mess with it. Humira is supposed to be very good with fistulas....maybe that's why I've never had one since I've been on it for about 3 years. Looks like your on the right track with your other supplements, however, it would do you some good to get on maintenance drugs in my experience before things get out of control. I would take the Humira over the nasty pred any day!

By the way...you are a grey eyed blonde!  Not from the mid atlantic area originally are you?


 


grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 3/13/2010 4:52 PM (GMT -7)   
Thanks broomhilda! I was leaning in that direction too, but was looking for some advice by people who may have been in the same situation.

No, I'm originally from Illinois, but living in Las Vegas now.
Dx'd w/ Crohn's in 1979 at age 14, have had minor flares throughout the years, but mostly kept in remission. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. Was on Pred. Dr. wants to try Humira...
Currently just take a multivitamin, calcium, magnesium, and fish oil.


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 3/14/2010 9:53 AM (GMT -7)   
Have you tried remicade? It has helped many people (including myself) in healing periannal crohn's c/w fistula. I am currently on Humira and have been for 2 years. It works ok also, but remicade for me was far better.

All the best,
Julia

gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 336
   Posted 3/14/2010 12:24 PM (GMT -7)   
When I first met my GI, she wanted me to go on Remicade or Humira.
After my fistulogram, she said that Humira isn't shown to treat fistulas and that I must go on Remicade.
As my sig says, the Remicade was refused and I was put on Lialda.
Before the Lialda, I was very fatigued and the fistula had been draining off and on since september.
Now that I am on Lialda, it's only drained once in the past two months and my energy level has deeply improved.
Since the fistula isn't draining any more, I don't know what's going on in there. Externally, I have a lump/abscess and it's not going away any time soon.
In your opinion, is my case the opposite of yours? Since mine is abscessed, he would want to cut?
I'm still waiting for these stupid general surgery people to call me back.
Diagnosed with typical Crohn's at 16.
Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
My HMO refused the Remicade and now I could be going on Lialda or sulfa? blah


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/14/2010 1:14 PM (GMT -7)   
I had a perianal fistula and doc told me to get on humira or remicade.
DRIED and Cured my fistula. I was on both remicade and humira. Just not at the same time.

TNF's are good for fistula.

exit 4
Regular Member


Date Joined Apr 2009
Total Posts : 148
   Posted 3/19/2010 3:49 PM (GMT -7)   
This is just my opinion - if your fistula not infected and not draining - do NOT mess with it. I had fistulatomy in October 09, wound closed to about 95% and will not heal any more. I am in pain sitting and BM is mess - keep leaking after each BM. My CRS tells me he pretty much done - and there is nothing surgically he can do. I have been tested for Chrons - that was inconclusive - I am one of those people - For sure UC, maybe Chrohns. Had blood work - that was not clear, had capsule test - that did not show Chrons. I am really miserable, can's sit for any time longer then 20 min. My GI wants me to try Remicade and I am scared of possible side affect. I catch everything! I want to heal already and get back to my life!!!!!!
Male, 45; UC 15 years, Lexapro helped with stress and UC.


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/19/2010 3:57 PM (GMT -7)   
Exit 4, remicade can be that drug that gives you your life back.
Even Tylenol has side effects that would scare you if you read the pharmacology. Everything has a bad rep because its years and years of reporting EVERYTHING.

Remicade really isn't that bad. I thought it would be to.. and you get paranoid at every infusion. But this disease sucks.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI

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