Alternatives???

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Beth76
New Member


Date Joined Feb 2010
Total Posts : 6
   Posted 3/12/2010 6:46 AM (GMT -7)   
Hi All,  I took my 14 year old daughter to her GI yesterday and he said that her bloodwork shows that her body is trying to kick her out of remission for the first time since she was diagnosed 3 years ago...numbers that should be low are rising and numbers that should be high are lowering.  She has no symptoms at all other than the funky bloodwork.  He wanted to put her back on prednisone...I told him that we wanted to try other avenues before going the prednisone route.  It is hard enough to be 14 and hormonal without the visible side effects of prednisone playing a role in her life.  (I know that sounds shallow but she started crying when he said the dreaded word "Prednisone"...Just about broke my heart).  Anyway, he upped her imuran and said to give it a month and see what happens.  My question is this:  Are there any alternatives to prednisone?  I have researched it on the internet and Entecort seems to pop up alot...Thanks for any info that you can give me!!!!

Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 3/12/2010 8:23 AM (GMT -7)   
The main alternative to steroids that has been proven to work in randomized, controlled studies is enteral nutrition (the use of a special liquid diet in place of regular food and beverages for several weeks to induce remission). In children, studies show that is as effective as steroids. Doctors in the US don't tend to prescribe it because they think it is too difficult to ask children to stick with a liquid diet for a few weeks, but it remains a standard therapy in Canada, Europe, and Japan. It takes effect very quickly, so you'll generally see improvement within 10 days if it's going to work for your child. It is also very effective at improving growth, so that can be an advantage if your daughter is not yet at her full height.

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 3/12/2010 9:35 AM (GMT -7)   
Hello Beth,
I do not knoow too much about prenisone(as in side affects and what other drugs have the same action only with a different name) My son has been on the entecort since Jan (now weaning off of it) and he really can't wait to be off it totally-his chest has been plastered in a rash and his face covered in acne. From what I understand it is typically used to treat someone with the condition on their right side. He is now two weeks into taking azathioprine(which I think is immuran under a different name) He also did the enteral nutrition for 7 weeks and he coped ok on it (despite having to be on it over xmas) although he didn't grow any more and only managed to put on just under 3lb! I thought that there was a huge improvement in him(the consultant says he is doing "reasonably well")
Can't give you any answers, it just feels like there aren't any 'nice' options.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/12/2010 10:17 AM (GMT -7)   
There are the 5-ASA's but it would depend on where your daughter's disease is located as to whether they would be effective or not. Entocort is a steroid just absorbed differently, so there is a chance that she could still have some side effects, but it is minimized. Enteral nutrition as Writer posted, though I am not all that familar with it is an option. After that you move on to the bigger gun meds. I think the big thing here is to catch it quickly and try to not let it get out of hand. a short course of prednisone or Entocort could stop a flare in its track before it gets to far.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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