Check this out. ANYONE WITH STRICTURES.

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debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/12/2010 3:06 PM (GMT -7)   
This Test took 3 hours because of my fentanyl Sluggishness. I still FEEL that it needs to be redone just because of the fact its SEEMS IMPOSSIBLE to digest FIBERCON Suppliments, Steak, veggies WHATEVER. It could also just be REAL bad inflimation. I WILL demand a new test but PLEASE PLEASE PLEASE check it out and put some input.

You all have awesome experience but I'd like to also here some.

http://s953.photobucket.com/albums/ae14/debilitated/?action=view¤t=12392200036912590252320900270113196.jpg

Look at the Right side: As if I was LAYING down on my stomache. Your left.. Is "my right" I was on my stomach. The stricture is obvious but on the left side in the picture.

Scary... It looks like i couldnt digest WATER. But I can. Weird stuff.
 
*activated your link*

Post Edited By Moderator (Nanners) : 3/13/2010 9:59:17 AM (GMT-7)


debilitated
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Date Joined Jan 2010
Total Posts : 448
   Posted 3/12/2010 3:12 PM (GMT -7)   
Oh, Just highlight the Adress and copy and paste in address bar. :-D

Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 3/12/2010 3:21 PM (GMT -7)   
I was like that at one point before one of my resections, I think it was my middle one and it was scar tissue, but I can't be certain. My SBFT looked narrower than a pencil. I lived like that for a good six months or so trying to get the inflammation to go down, but I ended up in the operating room. What did your doctor say? I know you are trying the MTX, but how long do they think it will take until you see some results?
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/12/2010 3:25 PM (GMT -7)   
Weird i dont know. That was in september. ALREADY 6 months ago. It could of been like that years.. Thing is.. I don't bleed much.. And How could ALL of that be Scar tissue. Also.. I eat whatever I want. I wont lie. Im Extremely thin.. The pain is horrible. but I also dont obstruct and never had my remission or inflimation under control.

Im not in denial.. just trying to rationalize things. After MTX in 8 weeks.. If I feel better and all is well.. I will see what it looks like again. I will demand another test.

Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 3/12/2010 3:37 PM (GMT -7)   
I never obstructed either. I just had tons of pain, and some nausea. Eventually I was only eating full liquids. I have no idea how long I was like that either. That is why I get so upset when people go on about feeling wonderful on no medication, we just don't know what our insides look like. We could still be eating everything inside, but our intestine could be the size of a shoelace. Sometimes the damage is done quickly, sometimes it takes years, we just don't know. I lived for 10 years before I was diagnosed and needed surgery pretty soon after, because my insides were a mess, 2 years later, surgery again, 2 years later, surgery again.

Sometimes we just can't feel it, its just so weird, plus our pain tolerance can be so out of whack.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 3/12/2010 3:39 PM (GMT -7)   
Looks about the same as mine. It's bad when the radiologist says "No wonder you're not feeling too great".
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/12/2010 3:43 PM (GMT -7)   
This guy said "you look about a C+"
What the heck does that mean.

I just dont feel things would pass through that... Were you inflamed and in flarish at the time?

Who ever gets a Small bowel series during remission.. i want to see what it looks like when Im feeling good. Possibly make Minds changed..

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 3/12/2010 6:13 PM (GMT -7)   
probably about average for a stricture he was thinking... when it gets real bad they call it "string sign" cause its about the size of a string.. sure its narrowed, but it can still stretch when food passes... its when it wont stretch that it can lead to obstruction
randynoguts 



     http://www.geocities.com/randynogutsweb/


NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 8556
   Posted 3/12/2010 7:43 PM (GMT -7)   
Is that weird S-shaped thing really the stricture part? Bloody hell, I agree with you, it does look incredible that solid food can get through there at all. But then again, I'm not a radiologist who's seen 1000s of x-rays of strictures, so it's a bit easier to impress me with the narrowness of it.

I think I have a stricture and so does my GI, but she thinks it's in my colon. She says that strictures in the small bowel don't cause constipation, which I've been suffering from. Cue the question I'm about to ask you >_>. Do you, uh, get constipation? I am like you in that I can eat anything, really, and if there's pain, fine, I endure it, if there isn't, great. I do get dreadful constipation sometimes, though, which does seem to be connected to overating and feeling more pain, pressure and bloating.

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/12/2010 8:24 PM (GMT -7)   
No, I have no constipation what so ever. Only on narcotics. And than it's overloaded diarrhea.

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 3/12/2010 8:27 PM (GMT -7)   
Holy cow, that's one heck of a stricture! I'm surprised you can eat whatever you want. When my colonoscopy showed a stricture, they did a CT Enterography to help determine whether it was scar tissue or inflammation. It ended up being scar tissue, so I had surgery last fall.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, Magnesium, Coconut Oil, Garlic Oil, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/12/2010 8:32 PM (GMT -7)   
:-( Thanks for making me feel like im dying! lol j/k

Ya thats what boggles my mind. THERES NO WAY A FIBERCON suppliment could make it through. NO WAY its half an inch thick and UNDIGESTIBLE.

A lot of that HAD to be inflmation. I was on a lot of fentanyl at the time. I DEMAND A RECOUNT! AHAHA

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8556
   Posted 3/12/2010 8:57 PM (GMT -7)   
Ah. One post towards proving my GI right. Thanks for the answer, debilitated. Good luck with the MTX.

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 3/12/2010 9:00 PM (GMT -7)   
It could be scar tissue...I'm a scar tissue factory (that's what I call it)...my doctor said during my 2nd surgery it took 2 hours just to clear the scar tissue and get to the strictured intestines.

Also, I worked as an xray tech, and I was always impressed when I could see diseased or affected areas...like this. You do get good at finding the abnormal when you see a lot of normal day after day, but disease that's visible on tests just fascinates me! I always look at my images and see if I can find the abnormal areas...sometimes I can, sometimes not.

I have heard from patients though that they can have symptoms and have a SBFT look like that, but go on for quite some time before requiring surgery...and that fascinates me as well.

Wouldn't a fibercon supplement be broken down by the time it got to that point that it could go through?? It is possible, though the radiologist I worked with would tell people with studies like yours that they needed to chew their food so that it was mushy or as small as that area so that it would go through.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/12/2010 9:03 PM (GMT -7)   
Tea, Strictures in the Small BOWEL DO cause Constipation...But that is because of a blockage... If you have constipation, its simply because you cant pass stool.

or sluggish etc..

the fact that FOOD does pass, and no obstruction or constipation just tells me that there is more inflimation than i thought. Than Scar tissue.
Randy would probably have more knowledge that I when it comes to that. Maybe he will jump back in this post and let me know if thats a possibility. And if a new SBFT, is worth it. IF MTX helps in 6-8weeks.

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8556
   Posted 3/12/2010 9:20 PM (GMT -7)   
But if it was a full blockage, where nothing could pass in either direction, wouldn't the situation quickly become acute unless the blockage cleared? I don't think that really counts, as it's an emergency situation more than anything else.

Partial blockages, though. They're the reason I thought strictures caused constipation in the first place. It's like having a clogged up pipe - stuff will filter through eventually but at a far slower rate than if the pipe was fully clear. I thought something similar happened with narrowed intestines and food passing through them. The food will get through but at a slower rate.

But it seems like I was wrong. Maybe it's because the muscular contractions are greater in the small intestine so they force food through even really narrow openings. Or maybe it's because of SIBO, which results in diarrhoea rather than constipation.

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 3/12/2010 9:34 PM (GMT -7)   
On the images, it's not a full blockage because there is some barium that's made it into the colon. If you were completely obstructed the barium would make it to the stricture, and just stop there. If you look just past the stricture on the image, the bowel looks different than all the area before it, not just like a tube, but kind of like how kids draw clouds which is the colon. (sorry if I can't explain this well...I can explain when pointing to an image, but not just with words...just realized this)

Tea-If you got completely obstructed (even if you have an acute partial obstruction) I think you would know something was wrong really quick. There's been lots of posts about obstructions and people describing them...take a look...that way if it happens to you, you don't ignore it and put yourself in harms way.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/12/2010 9:38 PM (GMT -7)   
Bar77, does anything there look like the "string Sign" can open wider if it was "edema"

You think a new test in 8 weeks after MTX can HELP?

I'd love a positive answer! ahaha. But if u cant u cant.

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 3/12/2010 9:53 PM (GMT -7)   
I don't really know. I know people do have strictures that have been helped by meds. Prior to being on Humira, I had so many acute partial obstructions. They were mainly caused by scar tissue, and my doctors weren't able to figure out what exactly triggered them, but they resolved within a few days. I haven't had one in the past 2 years that I've been on Humira, and my most recent SBFT was "normal" (my normal at least!)

I would wait the 8 weeks and see how you feel. If you're feeling a lot better, there's really no reason to do any testing. I try not to do tests unless they affect my treatment...which is how my GI thinks as well, so we only do tests if she doesn't know what the next step is or if my symptoms change, don't make sense or don't resolve. Of course working in xray for 9 years I try to be very conservative with radiation because working in the field exposes you to radiation, so that's why I'm very, very resistant to tests if they're not necessary.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/12/2010 10:24 PM (GMT -7)   
Well studies show that remicade actually makes strictures Worse because they promote healing and scarring. Im also Thanking god right now i don't respond well to TNF's. So, In a sense I think I would WANT to get re tested. The Barium can't really hurt me to bad

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/13/2010 10:04 AM (GMT -7)   
Well I have seen some of the foods you eat, you are not obstructed yet. If I were you at this point, I would try living on a more low residue diet so that you don't end up with an obstruction. Stay away from foods that are harder to digest like roughage, steaks. Keep to a more softer easier to digest diet. Remember easy to chew, easy to digest. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 3/13/2010 9:27 PM (GMT -7)   
if you ever had a total blockage you would know..... see the body has a unique way of getting rid of poop when it cant go through. your intestines will actually work backwards and you WILL vomit poop... how do you know this you are asking yourself..... lets just say poop dont taste good. ;0)
randynoguts 



     http://www.geocities.com/randynogutsweb/

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