It's confirmed, my surgery is on Tuesday....

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Valerie3
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Date Joined Feb 2009
Total Posts : 529
   Posted 3/12/2010 3:09 PM (GMT -7)   
Hey guys, a while ago I said I needed surgery but it wasn't scheduled yet. I got the call yesterday that I'm going in on Tuesday! ahhh. I'm super nervous. I thought they would give me a bit more notice, but I guess it's for the best. I went in for my pre-op today, they said that if all goes as planned, I'll be out of the hospital on Friday morning, so fingers crossed for that. They're doing my surgery through a single incision in my belly button. Has anyone here had any experience with this type of surgery? Usually, it seems like everyone I've seen post here has done it the regular laprascopic way with multiple incisions. They told me that this is a pretty new way of doing it and they don't do it this way for most people. Hopefully everything goes as planned, because if it works out, I'll only have a small scar going down from my belly button, which would be great.

The doctor also told me that more than likely, I'll be off medication for 6 months after my surgery and they'll watch my blood counts to see if I need to be put on anything sooner. He said he wants to give my immune system a chance to reset itself. He said after that, he wants to put me on either Remicade or Humira - I'm leaning towards Remicade since I don't like the thought of giving myself injections haha. He also said he was going to do a colonoscopy 3 months after my surgery to see how everything is healing. How soon after surgery did you guys go back on medication? I was kind of surprised because I thought that I would be going on Remicade right after.

I'll keep you guys updated, I'm quite nervous but looking forward to hopefully feeling better afterwards as well. It'll be my first surgery, which I definitely wasn't expecting only a year after being diagnosed!

Oh yeah, and I was saying how on my endoscopy it was showing something in my duodenum. I've got Crohn's there too. yay!

Post Edited (Valerie3) : 3/12/2010 3:19:49 PM (GMT-7)


Rider Fan
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Date Joined May 2008
Total Posts : 1445
   Posted 3/12/2010 4:15 PM (GMT -7)   
Good luck Valerie, will be thinking of you. I can't remember what part they are resecting. Do they think it's inflammation or stricture?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Valerie3
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Date Joined Feb 2009
Total Posts : 529
   Posted 3/12/2010 4:32 PM (GMT -7)   
I've got inflammation, a perforation, abscesses and a fistula, all between my ileum and ascending colon. Not sure exactly how much they're taking out, haha.

Peaceandhappiness
Regular Member


Date Joined Mar 2010
Total Posts : 131
   Posted 3/12/2010 4:52 PM (GMT -7)   
Here's luck to you and good well wishes! Sorry you have to go through it! I still need to figure out what all these words mean (fistula) and all that, but I'm new.
-Mom of a preschool boy and teenage girl and wife to a wonderful man.
 
Hypothyroid, newly dx'd Crohn's, Gerd. I love to look for natural ways to heal first, conventional ways second and keep my faith.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 3/12/2010 5:20 PM (GMT -7)   
Good luck! I hope all goes well.
I did not go on any meds for about 1-2 months.
I did find out 10 months later that my Crohns had come back and my next choice of meds was Remicade or Humira. I chose Humira because I could give myself the injections as opposed to Remicade and sitting for hours with an IV in your arm.
I hate needles and Humira has a epipen so you don't see the needle. If i can give myself injections, anybody can.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


ALgirl
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 3/12/2010 5:22 PM (GMT -7)   
Good luck to you.  I am sorry you have to do it but hope you have a speedy recovery and feel lots better quick!  I am probably heading in the same direction and I really feel for you. 

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 3/12/2010 5:26 PM (GMT -7)   
Valerie- Old vet here...Good Luck! I had my tubes tied that way and in comparison to the full incision from belly button to pelvic bone for the resection it was a breeze. Expect some cramping especially for the first few days. The gas they pump you up with has to disipate in the body and the only way to get rid of it is to WALK...WALK...WALK even though you won't feel like it. The abcesses & fistulas are a horse of a different color. I haven't experienced those yet. I was started on Remicade just prior to surgery and continued on schedule every 6 weeks after surgery. However, I am a moderate to severe case and initially it was very difficult to get my symptoms under control. I later built antibodies to the remicade and I am now on Humira weekly. The injections(needles) themselves truly are not bad because they do not go into the muscle, only the skin (much like a diabetic insulin injection). Hang in there...relief is on the way!
 


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/12/2010 5:42 PM (GMT -7)   
Thanks :) They said for the first 2 days I'll have an epidural so I guess that should help quite a bit with the pain. They said they'll get me to start walking the same day for a couple of minutes at a time, get you to try to sit up in chairs, etc. I'm hoping that I'll be able to leave by Friday like planned. I always thought that people said that Humira was really painful going in?? I may reconsider it. I guess I've got a while to think about my options. I feel more comfortable getting infusions rather than giving myself shots, but it is quite time consuming to have to keep going to the hospital for infusions.

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 3/12/2010 5:48 PM (GMT -7)   
It's not the needle, it's the drug IN the syringe that stings like fire! I'd still rather do the Humira at home that the infusions. I had to do them in an oncology room (depressing), but did keep things in perspective.
 


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 3/13/2010 9:42 AM (GMT -7)   
Valerie, it stings for about 5 seconds and then it's done.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/13/2010 9:49 AM (GMT -7)   
Valerie sending you good wishes for your surgery and that it leads you to a long long remission. Remember to take maintainence meds afterwards, so you don't need a repeat. Hugs~
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/13/2010 11:33 AM (GMT -7)   
Thanks everyone! I really hope that this surgery keeps me in remission for a long time. I've basically been sick nearly constantly for the past 2 years and it's really taken a toll on me. I'm still a little bit concerned about why my doctor only said that he wants me to start taking Remicade/Humira 6 months after my surgery, I'm worried I'd start to flare again in that time. He mentioned "resetting my immune system", which I guess makes sense, since I've been on Entocort for a year and Flagyl and Cipro for almost 3 months now, so I'm pretty run down. You guys are making me feel a bit better about the thought of taking Humira though, I'm definitely starting to consider it now, because my doctor said he thinks I'd be better off on Humira than Remicade.

Did any of you guys get epidurals for your surgeries? I always thought you got pain meds by IV from what I've seen around here, but they said I'll have an epidural for 2 days and then oral pain meds afterwards. I'm also kind of worried about the epidural because I have a tattoo on my back and I've heard that some anesthesiologists don't like to give epidurals where you've got a tattoo. I sort of forgot to ask about it yesterday because I was so caught off guard by being told that I was getting one, haha.

I'll let you guys know how everything went as soon as I got out of the hospital. I'll post pics of my lovely scar after, I'm hoping it won't be too big, since it seems like it's going to be bigger than I originally thought.

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 3/13/2010 5:10 PM (GMT -7)   
Just wanted to say good luck on your surgery!! I hope your recovery is quick :) I'm sure it will provide much-needed relief.

I've been on Humira and it really only burned for a tiny bit...no biggie! Plus you control the syringe so if it burns too much, just slow down :)
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
 
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas.
 
Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently on: 40mg Prednisone (Been on it since June '09...get me off!!), Psyllium Seed Powder, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Vesicare (for urinary retention). 


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 3/13/2010 6:16 PM (GMT -7)   

Hi Valerie,

I hope you have a speedy recovery from your surgery.  Make sure you talk with your surgeon about being on entocort for the last year - you will require steroids.  Lets hope you never have another abscess and/or fistula also.

Take care,

Julia

 


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/13/2010 11:29 PM (GMT -7)   
Valerie wish you all the luck in the world for your surgery. I just had my gall bladder remove by scope and had 3 incisions. The one at the belly button was 2 inches in length. Let's hope your is as short.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 3/14/2010 6:21 AM (GMT -7)   
I have one bit of advice. Walk,Walk, Walk as much as possible. The worst pain that I had was that darn air bubble in my shoulder from when they pump air into your abdomen.
I would do laps around my floor dailey, everyday a little bit longer. Don't expect this on the first day though as I could barley walk 50' and back.
Best of luck and i hope that you have a speedy recovery.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/14/2010 8:45 AM (GMT -7)   
Thanks for your support everyone. Another funny thing is I actually (THANK GOODNESS!) don't have to do a prep for my surgery!! lol. All I need to do is a liquid diet tomorrow, and stop drinking water 2 hrs before I come to the hospital, which I'm super happy about. I don't really get how that works though, means I won't be cleaned out for the surgery? Seems kind of unpleasant for them.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/14/2010 9:22 AM (GMT -7)   
My one tip in the hospital is to ask for a pca pain pump. That way you can dose your pain meds as you need, instead of waiting for the nurse to come give it to you. Ask the anethestiologist when they come see you before your surgery for the pca pump. I had an epidural one time, but it wasn't placed correctly and I was in alot of pain. So now I always ask for the pca pump. Also, walk as much as you can, that really helps. I even heard that chewing gum is good to help wake up the bowels afterwards too. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/14/2010 11:22 AM (GMT -7)   
Awesome , I'll get some gum. I hope they give me a pain pump instead if I ask for one, I would much prefer it over an epidural.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/14/2010 11:52 AM (GMT -7)   
(((((((((Valerie))))))))))))))))))))
Good Luck!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 3/14/2010 11:59 AM (GMT -7)   
What's this world coming to?
No prep???
Hope you have a quick recovery!
B-12injections,Pentasa,Loperamide,Entocort,6mp,8 week Remicade,Vitamin-D,Fluconazole,more over the counter Vitamin-D.
6-year remission after resection,and maintenance drugs.
.


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/14/2010 12:02 PM (GMT -7)   
I know! They usually do prep at my hospital, but the surgeon told me I won't need to do it. I'm wondering if it's because he's doing mine with a single incision?? It's the only difference to how it's normally done. It was so funny at the hospital, everyone knew who I was because they're doing mine in a special way. One of the residents was explaining the surgery to me, and when I told him mine was only a single incision, he was like "oh so that's YOU that's having that one done" hahaha. Hopefully they'll be able to actually do it that way, it's quite uncommon as far as I know not to have multiple incisions, or at least one larger one.

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/14/2010 12:02 PM (GMT -7)   
Valerie, According to my G.I At the university of Chicago. With some of the best G.Is in the country said there is STRONG data showing you CAN go back to remicade after stopping. Plus. Data shows that remicade after surgery is a real good way to form a good chance at reducing new surgery.

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/14/2010 12:04 PM (GMT -7)   
Debilitated - I actually haven't been on Remicade yet. I'm on Entocort, Cipro and Flagyl right now. He was saying he wanted me to start Remicade in 6 months, but that's why I was wondering.. I feel like it should be sooner than that. I'll be curious to see his reasoning behind waiting, because I figured he would want to put me on it almost immediately.

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/14/2010 7:40 PM (GMT 0)   
http://www.medicalnewstoday.com/articles/137418.php
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