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debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/12/2010 3:10 PM (GMT -7)   
I've Noticed you have been posting 10's of threads on natural and other type of things. It looks like you really are afraid or don't believe in traditional medicine.

are you flaring? Are you desperate for a natural cure or relief?

You seem a little depressed and If i am wrong please correct me. Just Know that we are here for you. Just all the massive amounts of threads tell me something. Just letting you know I am here to help. Been through everything from Vitamin A - names I cant pronounce. We all try EVERYTHING for this DD.

Peaceandhappiness
Regular Member


Date Joined Mar 2010
Total Posts : 131
   Posted 3/12/2010 4:58 PM (GMT -7)   
I like traditional and regular medicine, I just don't know a lot and newly dx'd. Yep feel a little anxiety/depression and trying not to! I'm just home this week b/c my son is sick and car wouldn't start, lol and I just like to soak up information. My mind just natural wants to find reasons for things and fixes, and I did that with my thyroid and got all the information and support I could. I still don't know everything there is to know about thyroids, but I've done a pretty good job at keeping it pretty well.

Thanks. Sorry if I'm posting too much, I guess I should clean or something ; )
-Mom of a preschool boy and teenage girl and wife to a wonderful man.
 
Hypothyroid, newly dx'd Crohn's, Gerd. I love to look for natural ways to heal first, conventional ways second and keep my faith.


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/12/2010 9:12 PM (GMT -7)   
NO NO post all that you want. :-)
I'm just trying to show my support. My apologies if you thought different. I want to make sure I can help whenever!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/12/2010 10:56 PM (GMT -7)   
Debilitated, I'm glad you posted this.

Peaceandhappiness, I've been concerned too and wasn't quite sure how to express what I was feeling. In a way, I think I was worrying that you were searching for a way to "fix" your Crohn's and maybe not wanting to realise that this is going to be a long-term and chronic issue for you...

This is part of the acceptance process, and a lot of people go through this stage when first diagnosed. I have been feeling, though, that perhaps you have been having a more intense experience than many, and I have been reading your posts and following your journey and worrying for you. We are here for you.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/13/2010 8:41 AM (GMT -7)   
Hoping you come back for the caring n support that is truly here...lyn
                                        Long  Time Member of da Family
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     2010       
                                Donate to www.healingwell.com.
                        HW FRIENDS N FAMILY TRULY DO UNDERSTAND                                                 
                                      Lyn..........AKA...........Howlyncat             
                  
                                                                                           


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/13/2010 9:04 AM (GMT -7)   

Hi Peaceandhappiness,

I would just like to add to Ivy's comment.  I personally have lived with this darn disease for too long, nearly 35 years.  One thing I have learned is that natural meds will help "some",  but it should always be considered along with our traditional meds.  I went a long time in denial about treating my disease, and suffered alot because of it.  I ended up having a complete obstruction and had to have emergency surgery that left me in ICU for a bit too.  It took a long time to get back into remission and I suffered miserably because of it.  Please do take your meds prescribed by your doctor, and consider your natural meds as complimentary of your meds.  Good luck and keep posting, thats what our forum is about "support".  Hugs~


Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 3/13/2010 1:01 PM (GMT -7)   
I take both traditional and natural medicine, and have to disagree with some of the comments (respectfully, of course) :)
 
There is nothing wrong with looking to alternative and holistic medicine.  There is no modern medicine that can cure Crohn's and so far doctors just prescribe lots of hardcore medicine that may or may not work, or cut you open and do surgery when they don't know what else to do.  That to me is not the best approach to how I want to live my life.
 
That being said, I am currently (and recently) on Humira.  I have been on 6mp and Remicaide.  Both stopped working.  What if I get to a point where no traditional medicines work for me?  What do I do then?  So MY approach is that I am really leaning a lot toward a more holistic approach.  Before anyone dismisses the (what I believe to be equal importance) of modern medicine vs alternative preventative medicine, I thought I'd share some of the things that I do to keep myself healthy and that will hopefully work for me:
 
 
* I follow a meat and dairy-free Macrobiotic diet.  My drs send me home with instructions to eat wonder bread and baloney sandwiches and drink it down with Ensure shakes- NO nutritional value, but low residue, so easy for them.  I believe that there is a strong link between nutrition and diet and what we put into our bodies and how that affects the inflammation. 
 
*I run and do yoga as often as I can.  I also believe that there are so many emotional issues tied to the digestive system and it's important to address those too.  Prayer and meditation are important to me.
 
*Seeing a natureopath or Chinese herbalist can help with additional supplements.  For anyone who has not read The China Study, I'd recommend it.  Some people in other parts of the world do not have the same rates of autoimmume disease and cancers that we have here,  and that is a possible link.
 
* I try to get as much Vitamin D as possible - since where I live I can't get it naturally from the sun I take 5,000 units a day.  New studies coming out have been promising in showing that Vitamin D reduces inflammation in the body.
 
* Accupuncture, massage for the lymphatic system, reducing stress,  dry-skin brushing, using organic sesame oil for abdominal massage,  digestive seeds (fennel, coriander, etc), trying to elimate nightshade vegetables (which for some people cause inflammation), etc etc
 
I think there are a thousand things you can do but it seems to me that a lot of people just go blindly on what their dr says and then wonder why they aren't in touch with their body.  Maybe even at the very least looking into a holistic approach will make people more in tune with their body and will be able to heal in a different way.  We don't know what works and what doesn't.  Modern medicine is important but I also think it's a short-term cure and not preventative in any way.
 
 
So that's my two cents, I think that the two compliment each other very well but no one should be called out for being in denial about their disease because they want to look for alternatives so that someday they don't have to inject themselves with what could ultimately be poison  or cause cancer in the long run.  My GI dr throws every medicine under the sun at me, and some I choose not to take (after doing my own research, of course).  I have also said "Enough" after the THIRD MRI in a week and a half was scheduled for me - when my dr wanted to put me in the hospital on IV steroids and fed intraveneously so I could be on bowel rest, even though I was still able to go to work and go to the GYM, I said no.  When my dr said all my tests came back normal and I should just wait it out I INSISTED on a colonoscopy and they then took a second look at my tests and realized they were NOT normal and NOT indicative of what was going on in my body.  but this is how these drs are trained but we don't know the long term effects of all this medicine and radiation so we should encourage looking at every possible cure, alternative or not.
 
I have gotten to the point with this disease where I know my body better than any doctor.  This is because I learn as much as I can about alternative therapies.  This does not make me in denial about the long term effects of Crohn's, it probably makes me MORE aware of what I can do to live the best life possible, which is what we are all striving for here.
 
 
This is all IMHO, but wanted to present another side to the discussion.  I love this forum and think everyone is great and am thankful for all the support. :) 
 
33 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, starting Humira, 55 mg Prednisone, Multivitamin, Calcium, Probiotics, Vitamin D, a few other herbal supplements my natureopath has me on.
 
Eating a Macrobiotic diet, no meat or dairy, trying to cut way back on sugar and white foods.  Trying to focus on a more holistic approach to healing. 
 
 
 


Escalador
Regular Member


Date Joined Jul 2009
Total Posts : 103
   Posted 3/13/2010 2:41 PM (GMT -7)   
alternative medicine is ok but you need to know it's limitations and not buy in to quackery

wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 3/13/2010 3:43 PM (GMT -7)   
Gone are the days of dousing rods and charlatans selling snake oil from the back of a caravan, if that's what you mean by quackery.
 
If you read my post you can see that "Alternative" medicine is essentially anything that is not traditionally used but is becoming more accepted.  There are GY/OBNs, for example,  who use accupuncture to treat fertility issues these days.  That was not common ten years ago but it is working for some. 
 
I want people to see that the overall theme to alternative medicine is to think for yourself and be in touch with your body and not blindly follow a doctor's orders - what if they are wrong?  Keep your options open, and do everything you can to stay healthy.  If that means yoga 4 times a week and meditation and aromatherapy massages and changing your diet to eliminate dairy, etc, what is the worst that can happen?  Those are all considered alternative therapies.  It is very frustrating for me to see so many people so ignorant of the connection between what they put into their body and how their body reacts.  Years ago, no one thought smoking was a health concern, now we KNOW that it causes CANCER.  So the food we put in our body, the toxins we put in our body, the stress we put on our body, etc - anything we can to to alleiviate that can only be beneficial.  So I actually don't think there are limitations on alternative medicine, but I do agree that for now I personally will continue to use both. To not keep an open mind is to only do yourself a disservice. 
33 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, starting Humira, 55 mg Prednisone, Multivitamin, Calcium, Probiotics, Vitamin D, a few other herbal supplements my natureopath has me on.
 
Eating a Macrobiotic diet, no meat or dairy, trying to cut way back on sugar and white foods.  Trying to focus on a more holistic approach to healing. 
 
 
 


newfoundsun
Regular Member


Date Joined Nov 2009
Total Posts : 145
   Posted 3/14/2010 8:23 AM (GMT -7)   
Thank you for your responses Wednesday.  I agree that it is important to do your research, and get to know your own body.  I also believe there is validity in both holistic/natural things and traditional medicine, though at present I am choosing not to take what the doctors throw at me.  I like what you said about even your diet being a "alternate treatment."  So true!!!  Anything you do that's not modern medicine could be considered an "alternate treatment," otherwise why would you do it?  We believe in the value (many of us it seems) of taking vitamin D, so why can't we make a jump that there may be other things out there that are good for us? 
 
 
newfoundsun
 
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
 
CD diagnosed 11/12/09
Seeing a Naturopath and modifying my diet, so far

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