Your least favorite "tests"

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What A Life
Regular Member


Date Joined Mar 2010
Total Posts : 116
   Posted 3/13/2010 8:00 AM (GMT -7)   
Hey all. Just sparking some friendly discussion. We have all been through COUNTLESS tests with this disease, especially when we were first trying to get diagnosed. I'm sure we have some horror stories surrounding them, but I just wanted to share what my least favorite was... By far, had to be the barium enema (is this called a lower-gi?) They fill your stomach up with barium and it's so difficult to "hold," especially when you are sick as all heck. Then they move you around naked on a cold, steel table while probing you... UGH; I remember crying during the procedure. (I was only 16 or 17 at the time) Upper GI I struggled with as well, as I couldn't drink the "milkshake" and ended up spewing it onto the assistant at the hospital... What do you expect; you give me pop-rocks to make me gassy and then have me chase it with a terrible thick substance!?!? lol

jeanneac
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Date Joined Feb 2009
Total Posts : 1812
   Posted 3/13/2010 8:23 AM (GMT -7)   
Hum...... I think so far my least favorite test was something I had years ago called a defocography (sp?) Anyway, there is no prep and they told me I could go right back to work. Well, you have to drink some barium. Ok, then, they insert a catheter into your bladder and fill it with a contrast media which stings to high heaven. Then, they push barium into your butt which hurts like hell. Ok, then, they put you on this chair and make you push out the barium and take pictures of your colon as you are crapping this stuff out!!! Talk about embarassing. I was a young woman too and you have to do this in front of people. Needless to say, I had to go home b/c my bladder was stinging and I got awful cramping afterwards. Oh, and didi I mention that they stuff your vagina with some cloth too. It was awful~! I've had colonoscopies, endometrial biopsies, enterographies but this was by far, the worst and the endometrial biopsy was excruciatingly painful.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma, IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid,claritin, advair, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal
zoloft, rolaids, pepsid (as needed)

ALLERGIC TO SULFA, AND ANTIBIOTICS GIVE ME DIARRHEA!
Blood test positive for Crohn's via prometheus ibd serology panel


tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 3/13/2010 8:28 AM (GMT -7)   
by far my least favorite was the barium swallow. I have a very strong gag refex and it was sooo hard not to hurl that nasty stuff back up. Then I had to wait forever for it to travel where they wanted. Hard to imagine when I have 3-5 BM a day that it would take that long. Then I had the indignity of walking through the hallways to get the stuff moving. I had to laugh at the tech though when she advised me to double my liquid intake that day to prevent constipation. I was like soo not gonna happen. Sure enough was back to my old multiple BM self the next day!turn

junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 3/13/2010 8:35 AM (GMT -7)   
My least favorite is still the prep for the colonoscopy. I cannot handle the golytly and it makes me violently ill. I handled the barium pretty well, mine tasted pretty good.. I don't know why.. LOL..

------------------------------------------------------------------------------------------------------------

40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years.

Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- just started Entocort

Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 3/13/2010 8:59 AM (GMT -7)   
Interestingly,I've had all the tests done,and none have really bothered me too much.
That barium one is entertaining, with the carbonated stuff that pushes the barium through your system.
It can be fun when the tech's don't know you've had a resection, and go get help to figure you out.
My horror story happened in one of those mini changing rooms, with the curtain drawn, and me on the floor.
I give those tech's all the credit, for doing a decent job, under some really crappy situations.
B-12injections,Pentasa,Loperamide,Entocort,6mp,8 week Remicade,Vitamin-D,Fluconazole,more over the counter Vitamin-D.
6-year remission after resection,and maintenance drugs.
.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/13/2010 9:14 AM (GMT -7)   
My absolute most hated test has to be the barium enema. I will NEVER have one again, they end up making me even sicker after having the test.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 3/13/2010 9:45 AM (GMT -7)   
Anything to do with barium. ( I hate that stuff ) Prep for either scopes or surgery. Having a central line placed!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 3/13/2010 10:19 AM (GMT -7)   
Drinking that chalky junk for a CT scan. I can't help but gag when drinking that crap.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 3/13/2010 11:35 AM (GMT -7)   
Anything where there is barium... especially when they stick an air hose up your behind. I'm never doing that test again I would rather suffer from my symptoms then that pain!

That being said I absolutely don't mind blood tests, those are my fave!
female 20, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone(tapering) & 100 mg imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/13/2010 11:35 AM (GMT -7)   
I've had 2 endoscopies, a colonoscopy, a barium enema and a CT enterography. (and 2 ultrasounds) The CT enterography was the easiest, other than the ultrasounds of course. The worst was the barium enema, which interestingly enough, I took because I was terrified of a colonoscopy. Even then though, I didn't find it THAT bad, it was mainly just bad because I was already flaring so badly at the time.

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 3/13/2010 11:47 AM (GMT -7)   
By far, as an xray tech, we hate doing barium enemas as much as patients hate having them. Luckily I've never had one done. I'd rather go with a colonoscopy.

I can handle barium pretty well, but had to have a Small bowel series done once after having an NG tube put in (which hurts like H$ll!!!) and I was the most nauseous after that test because they push the barium in the tube faster than you drink it.

The worst test, however, was having an ultrasound during my last hospital stay. They were trying to scan my heart, and I've had breast reduction surgery, so pushing on my chest where my scar is hurt so bad. I was on dilaudid for pain from the pulmonary emboli, and I was laying in my bed crying, and begging them to get me more pain medicine before continuing. Needless to say, they didn't complete the test, because it hurt way too much for me to endure any more.

The other bad test I've had was a colposcopy, where they take biopsies of your cervix, which hurts! The exam and biopsies don't last long, so that makes up for the pain when they take the biopsies.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 3/13/2010 11:52 AM (GMT -7)   
Oh, and Jeanne, a defograms is a primitive study...they pretty much aren't done anymore. In my 9 years of working in xray, I've never seen one done. Most people weren't able to poop on command anyway! Sorry you had to ever go through that.

They also have a test called a VCUG (voiding cyctourethrogram) where they fill your bladder with contrast and you have to pee and see if there are strictures in your urethra. Men can usually pee on command, but peeing while standing up for a woman is difficult. I can't tell you the number of these exams I've performed on women who just couldn't do it. I don't know that I could either! It would probably be a horrifying experience as a patient.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin


Jamci
Regular Member


Date Joined Nov 2009
Total Posts : 27
   Posted 3/13/2010 12:02 PM (GMT -7)   
The best I've felt in the last year and a half is right after my endoscopy and colonoscopy. After both of those, I've felt no pain, had no worries, and slept on an off during the day. Those were some good drugs.

The prep for the colonoscopy wasn't pleasant but tolerable. The barium stuff isn't too bad.

The worst "procedure" is one I have to do everyday-taking 11 pills(medication) and 10 other pills (supplements) and the feeling of having no control of my body. about a year and a half ago I had no worries and took a daily multivitamin and crestor. One morning I woke up and had blood in my urine. Went to the doctor then ER and they said my liver enzymes were way high. Stopped the crestor and liver enzymes returned to normal in about 2 weeks. By then I had pain in my guts. I figured it was from the stress of worrying. Things went down hill ever since and continues to do so.............I can endure any test but "no control" is the worst.
Daily Multi Vitamin, B Complex, B12 sublingual, Probiotics, Fish Oil, Protonix (GERD), Wellbutrin (Anxiety). Apriso (Crohn's), Trilipix (cholesterol), Welchol (cholesterol), Cardizem (blood pressure)


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 3/13/2010 12:38 PM (GMT -7)   
i think it is a tie between the colonoscopy with no/minimal sedation and the dreaded barium enema CT scan. horrible. worse than waterboarding and a sigmoidoscopy with no sedation. the preps are walks in the park compared to actual exam. the CIA should use these to extract information from prisoners and persons of interest. i'd tell them anything and everything immediately to make it stop.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 3/13/2010 4:07 PM (GMT -7)   
Lol Harry!
Thats what I'll tell them the next test that becomes uncomfortable.
O.K. I did it,I did it!(or even I am Sparticus)
B-12injections,Pentasa,Loperamide,Entocort,6mp,8 week Remicade,Vitamin-D,Fluconazole,more over the counter Vitamin-D.
6-year remission after resection,and maintenance drugs.
.


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/13/2010 4:20 PM (GMT -7)   
NO ONE LIKES THE BARIUM!!!!!!
I chugged that Stuff down in 8 seconds. 12 oz of it.

YUMMMM!

mazey
New Member


Date Joined Mar 2010
Total Posts : 16
   Posted 3/13/2010 4:40 PM (GMT -7)   
i always put an NG tube down for barium or mri or anything where you have to drink large quantities of disgusting stuff coz I just cant make myself do it! id much rather the 30seconds of slight uncomfortableness to put the NG tube down than have to drink barium!!

grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 3/13/2010 4:46 PM (GMT -7)   
Colonoscopy, hands down. Back when I was first diagnosed at 14, they didn't knock you out like they do now. (At least I wasn't) They gave you 10 mg of valium to "relax" you...yeah, didn't work. I was 14 and cried thru the whole procedure.

The last one I had, I woke up in so much pain, I couldn't walk. They said it was from the air they use during the procedure to inflate the colon. For 2 days I'm in agony. Come to find out he perforated my colon during the procedure and the air traveled throughout my body.

I think they are more a mental thing for me...I think of it and cringe...
Dx'd w/ Crohn's in 1979 at age 14, have had minor flares throughout the years, but mostly kept in remission. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. Was on Pred. Dr. wants to try Humira...
Currently just take a multivitamin, calcium, magnesium, and fish oil.


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8568
   Posted 3/13/2010 5:05 PM (GMT -7)   
Barium enema sounds about as fun as its name, but I haven't had one, so I nominate the barium swallow instead. First you have to somehow force down two large cups of unspeakable white liquid, then you have to hang around for 3 hours, or whatever, while the stuff goes through you. The second time I had one was even worse because I was ill that day and all I wanted to do was lie down; when the procedure was eventually over, I had a 2-hour commute home from central London. Fun!

mazey
New Member


Date Joined Mar 2010
Total Posts : 16
   Posted 3/13/2010 5:13 PM (GMT -7)   
were you at UCLH NiceCupOfTea???

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8568
   Posted 3/13/2010 6:03 PM (GMT -7)   
No, why? Don't happen to know somebody called NiceCupOfTea there, do you? ;p

I was at St Mark's in Northwick Park hospital first of all, then the Royal Free in Hampstead. I'm now at Stoke Mandeville, a reassuringly easy 20-minute drive away and, more importantly, seems to be a decent hospital.

mazey
New Member


Date Joined Mar 2010
Total Posts : 16
   Posted 3/13/2010 6:11 PM (GMT -7)   
Haha no i just assumed as its the main hospital in central london for gastro! I used to be at the Royal Free but moved from there a few years ago, not the nicest of places! Glad you have found yourself a good hospital now though :)
CD for 15 Years, Ileostomy for 9.
7 Re-sections since then and just started on Methotrexate!


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 3/13/2010 6:20 PM (GMT -7)   
greyeyedblonde -

i totally agree with you. the first colonoscopy i had my GI hardly gave me anything. i was painfully awake for all of it, begging for drugs. kids should have this done to them instead of taking a field trip to a jail if they want to get "scared straight". i too had my colon perforated during a colonoscopy. but of course i found out like 2 hours after i was released and i went back and made them take x-rays of me cos i was in so much pain (they didnt want to believe me something was direly wrong). then i was admitted to the ER for emergency exploratory surgery. and this was 6 months after my first surgery....



after 17 years or so of living with this disease i can now drink anything. barium/contrast is so much easier now that it is flavored. but i will admit, i have never made it through the entire colonoscopy prep. i can get 1/2 to 2/3 way through the drink before i get serious convulsions/gag reflex which will make things come out the wrong end.

a colonoscopy where you are knocked out is cake - you are passed out! yeah the prep sucks, but that is the prep, not the TEST, which is the subject of the email thread.

the first NG tube i had was gnarly getting it in. it was like a scene from the exorcist and i hadnt eaten in like 5 days cos i just had surgery. the second time i told them to give me a hit of demmoral (sp?) first to relax me. that did the trick - tube went down no problem.

this is why i firmly believe it is hands down, without argument, the colonoscopy without any sedation or the barium enema. if you havent had either of these, once you do, you will change your vote and adamantly agree with me. but pray it doesnt happen. somethings are best left not experienced in our lifetimes...
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 3/13/2010 7:15 PM (GMT -7)   
Well I handle all the test pretty well I think.

But there is one thing that just makes me want to cry just by thinking about it and that is the scope prep :S
I get so sick and throw up constantly I am always scared that I am not clean enough and so on.

But at least I get a treat in the end and that is the drugs for the scope it self.

I love getting pain killers that actually WORK.
25 year old female from Iceland.
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they don't know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Humira, Asacol, Cipralex and Cerazette.
Past medication Remicade, Imuran, Entocort
My wonderful dogs :) ~ www.poodle.is ~


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 3/13/2010 7:33 PM (GMT -7)   
Not really a test, but I've had 10 attempts at getting an NG tube in and all failed. I think they tried 6 times during 1 ER visit. Even after Valium, I couldn't stop shaking. Not like it was really necessary anyway, I already vomited up everything in my tract. It has since been noted in my chart that if they insist on putting in an NG tube that I be fully sedated.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche

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