A question for the ladies

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PinkFlipFlops
Regular Member


Date Joined Dec 2008
Total Posts : 73
   Posted 3/14/2010 10:49 AM (GMT -7)   
Ladies, I have this strange thing going on and it's starting to become commonplace for me.

To back up a little, I've had intestinal issues during my period (loose bowel) for most of my menstruating life. I'm 38. I started having Crohn's symptoms about 3 years ago after giving birth to my daughter and was officially diagnosed in 2009.

I have been doing great for many months except for one day out of each month, each time I have my period. Last night, I was literally leaning over my 3 year old daughter's bed giving her a goodnight kiss when all of a sudden it hit me - I knew I only had seconds to get to the bathroom (no warning at all) and I ended up having a watery bowel explosion. This happened last month, and the month before, and the month before. Just one time, one day during my menstrual cycle. Does this happen to anyone else? I don't know if it's technically a flare or if my bowel is just overly-irritated from the cramps? I felt fine before it happened and I feel fine now.

What the heck?
Diagnosed with Crohn's this year at age 38.


ALgirl
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 3/14/2010 11:08 AM (GMT -7)   
I have only  had 1 period since my Crohn's symptoms started, and it was awful!  I awoke at about 4 a.m. with the worst cramping pain and had to rush to the bathroom just as you described.  I think somehow the hormones play a role in all of this. 

cutie
Regular Member


Date Joined Jan 2009
Total Posts : 80
   Posted 3/14/2010 11:10 AM (GMT -7)   
This happens to me every couple months or so. I also have allot more cramping and pain than I used to have. I turned 40 when I was diagnosed and I don't know if that has anything to do with it. I have met a couple other women in the Crohn's meeting I go to which have similar problems. When I spoke to my gyn about it--he said when I was ready he would do the hysterectomy but I really don't think that is something I want.
age 41,diagnosed with CD in 11/07, Rx Pentasa 4000mg and Remicade.


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 3/14/2010 12:10 PM (GMT -7)   
Yep! In fact the periods before I had my first Crohns flare whenever I had a period I'd get a really bad stomach with it and have to miss about 3 days off school, I got put on the Pill after a year and that seemed to help though the pains were still horrific. Then when I was diagnosed with Crohn's they mentioned periods really effect it and it was like "ooohhh THATS why they always sucked!" I'm now on the implanon implant - I didn't get any periods with the first one and now I only get them every couple of months but they don't give me a bad stomach with it luckily. The doctors did tell me that going on some form of birth control is good idea if periods effect the Crohn's which is quite common.
 
 


gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 336
   Posted 3/14/2010 12:28 PM (GMT -7)   
Man, I've always had it waaaaaaaaayyyyyyyy worse during the curse.
Eating anything would cause problems. I wouldn't want to go anywhere.
My waistline felt super expanded. My sternum to my junk was just in pain.
To make matters worse, having a BM did not make things better for me like it usually did.
You just learn to live with it like everything else.
Diagnosed with typical Crohn's at 16.
Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
My HMO refused the Remicade and now I could be going on Lialda or sulfa? blah


newfoundsun
Regular Member


Date Joined Nov 2009
Total Posts : 145
   Posted 3/14/2010 1:00 PM (GMT -7)   
YES!!!  That's something that I just noticed last month as a possible pattern, and have started to track it.  But during my period for the past two months I had one day, and only one hour, where I couldn't get off the pot.  Wow!!!  Glad to hear that it's not just in my head!!!
newfoundsun
 
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
 
CD diagnosed 11/12/09
Seeing a Naturopath and modifying my diet, so far


PinkFlipFlops
Regular Member


Date Joined Dec 2008
Total Posts : 73
   Posted 3/14/2010 1:42 PM (GMT -7)   
Thanks for all the input ladies! Good to know it's not just me but sorry to hear you have issues with this too... :(
Diagnosed with Crohn's this year at age 38.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/14/2010 3:48 PM (GMT -7)   
What you're experiancing pinkflipflops is very normal for female crohnies....hormones are strongly linked to exacerbating IBD symptoms during "that time of the month", for me it can start happening a week to a few days before "it" arrives, during and a few days or up to a week after "it's" gone. Not all women notice this exacerbation of symptoms but plenty of us do, and I didn't always notice this issue since being sick for the last 19 yrs, but more often than not it has been noticable for me.


If you tend to get really bad menstral cramps, drink chamomile tea, it's scientifically proven to aid with menstral cramps....so long as you're not allergic to ragweed.  Chamomile tea can be drank daily regardless of menstral cramps, it's a natural antibacterial, antifungal and anti-inflammatory....so you may find it helpful with your CD symptoms in general.

:)


bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/14/2010 3:57 PM (GMT -7)   
I read somewhere that there is some research to suggest that having a period causes inflamation, so it would follow that it could make more pressure on the surrounding area...
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Peaceandhappiness
Regular Member


Date Joined Mar 2010
Total Posts : 131
   Posted 3/14/2010 7:17 PM (GMT -7)   
I've never had much symptoms before during that time of the month, but I will say that I would get diarrhea that time of the month on and off over the years. I wasn't dgn'd crohn's then, nor think I had it or anything, but I always thought it was odd.
-Mom of a preschool boy and teenage girl and wife to a wonderful man.
 
Hypothyroid, newly dx'd Crohn's, Gerd. I love to look for natural ways to heal first, conventional ways second and keep my faith.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/14/2010 10:45 PM (GMT -7)   
My GP explained that many women (even those without bowel issues) notice a change in the bowel habits just before, during and/or after their periods...he says basically that with hormonal changes and swelling from the uterus during menstration time it can cause these changes, but some women don't really notice any differences and some are more sensitive to it....he says without a doubt the women with IBS and/or IBD it's more common for it to be an issue...makes sense.

I've just had crohn's for so long that I hardly remember what things were like in the poop dept during my periods before I got sick with CD (and then IBS aprox 8 yrs after CD).

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 3/15/2010 2:13 AM (GMT -7)   
Every month when I am due to start my period I am on the loo ALOT. I hate it,but its predictable,even my partner knows when I'm just about to have my period because with out fail the loose movements are there and they dont stop until I'm nearly finished my period.
I don't know if us crohnies can take anything to stop our periods as it is so bad some months and the cramps become unbearable as then I get the flaring pains and the period pains wih it too.
Atleast if we didnt have periods we would only be suffering the inflamation cramps and nothing else!!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/15/2010 7:50 AM (GMT -7)   
I was miserable 3 weeks out of every month because of my periods. I finally ended up getting a hysterectomy at 36 (I was done having kids) because I was so miserable all the time. At least for me, that was one of the best decisions I ever made:)
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 3/15/2010 8:17 AM (GMT -7)   
I also have ALOT of bowel trouble just before my period. I always get bad cramps and D for 2-3 days before my period and it's been like that even before I was diagnosed with Crohns :( At times like those I really wish we could take some of those pain killers aimed at periods, but alas it's just tylenol which hardly works.
female 20, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone(tapering) & 100 mg imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin

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