How much blood is too much blood?

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mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 3/15/2010 8:47 PM (GMT -7)   
My Crohn's originally manifested itself in bloody stools--this symptom is what got me to the hospital and in for a colonoscopy and diagnosis.

I've occasionally had problems with a touch of blood here and there, but recently I've been having very bloody stools--no diarrhea, just soft formed with what almost looks like bloody, fleshy pieces. Since I haven't had this problem post-diagnosis, I'm not sure what is severe enough to warrant attention. Overall, I feel fine.

I'm out of town and would not be able to see a GI for two weeks, but if this continues to worsen at the rate that it has been, I'm wondering at what point I may need to head to an ER.

Any advice or experiences for those who experience this symptom?
21 y/o, diagnosed 6/2007

Symptoms currently under control with Humira and a wheat-free, processed food-free diet. Beginning to have symptoms of GERD...


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/15/2010 10:33 PM (GMT -7)   
For just blood I could give you my opinion but bloody fleshy pieces sounds like emergency right away and take a sample if you can.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 3/16/2010 1:03 AM (GMT -7)   
Maybe it's some mucous coated with blood? In any case, I think any change in bowel habits should be mentioned to your doctor right away. Even if you can't get in to see one, I think you should call and leave a message for your GI, and see what he says you should do. He may say wait and see, or he may say add entocort/Lialda/canasa, or schedule a colonoscopy, etc.

I am a strong believer in treating it at the earliest signs of a flare up. My husband really was hurt by a very slow diagnosis while in the hospital, which made him go from bad to worse.

I hope you feel better soon.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/16/2010 6:29 AM (GMT -7)   
I really think you need to bring this to your doctors attention, sooner rather than later. The bloody clots is concerning. Good luck and do keep us posted. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/16/2010 6:33 AM (GMT -7)   
I too am a heavy bleeder and I have in past emailed cell phone pictures of my poop to them, to ask that same question.
 
If nothing else call them and tell them that you are taking a stool sample to the lab to get checked out and need an order for it. 


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


sheep87
Regular Member


Date Joined Jan 2010
Total Posts : 31
   Posted 3/17/2010 6:57 AM (GMT -7)   
I suffer the same thing. Stools that have clots in them look alot like pieces of flesh. My GI said its normal in us crohnies. Sometimes i have blood and mucus just gush out of me but again it seems to be normal.

Nobody on here is a doc and only you will know how your feeling and whether its worth checking out

Good luck and i wish you well!!!

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/17/2010 8:48 AM (GMT -7)   
I am also a bleeder... Less so now but there have been times I swear I've lost about 4 oz at once. (From watching not just because it turned the bowl red, which doesn't take much blood.) My docs have told me this is nothing to worry about, but to let them know.

However, one time I hemorrhaged - according to ER I had only half my "normal" level of blood in my system. That time I passed clots (that looked like red jello) that were over an inch around - like 2-3 dice or so. The blood just gushed and gushed. *that* took me to ER followed by a week in the hospital.

So, heavy bleeding is never anything to overlook. If it's a finite amount and stops on its own quickly, it's probably not anything to really worry about. If it's seemingly a large amount, get to ER. No matter what, bleeding is *always* something to discuss with your doctor. It's amazing what we get used to over time... ;-) Hang in there. Hope you're feeling better soon!

Oh! Just thought to add this... If you are bleeding quite a bit each day, it might be a good idea to kind of lay low. I've had the doctors tell me that when I'm actively bleeding that I should hold off or go really light on any type of exercise.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09

Post Edited (sr5599) : 3/17/2010 9:53:44 AM (GMT-6)


mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 3/17/2010 7:49 PM (GMT -7)   
Thank you everyone! Very helpful and reassuring as usual. I did get in touch with the office, but my GI was in emergency surgery all day (eek) so I won't hear until tomorrow. Mostly, I just don't want to be put on prednisone again, but not sure what else they would do to curb the bleeding and inflammation. We shall see...
21 y/o, diagnosed 6/2007

Symptoms currently under control with Humira and a wheat-free, processed food-free diet. Beginning to have symptoms of GERD...


JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 3/18/2010 6:44 AM (GMT -7)   
IMHO ...  If you have to ask "how much is too much", then you have too much.  I would continue to try to talk to your doctor.  Let his receptionist know it is very important.  Good luck and feel better.

36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily


sheep87
Regular Member


Date Joined Jan 2010
Total Posts : 31
   Posted 3/18/2010 12:33 PM (GMT -7)   
sr5599 i couldn't agree with you more when you said its amazing what we get used to over time. I think most people would be shocked at some of the things we now class as normal

mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 3/18/2010 10:41 PM (GMT -7)   
Hey everyone--

Finally heard back from the doc and he's putting me on a 2x/day suppository (for hemorrhoids) for a week--if no improvement I will get a scope done. I'm fairly sure it's not hemorrhoids as this is exactly what I had when I was diagnosed (this GI did not diagnose me) and a complete exam for hemorrhoids at the time. But, fingers crossed!

Thanks again!
21 y/o, diagnosed 6/2007

Symptoms currently under control with Humira and a wheat-free, processed food-free diet. Beginning to have symptoms of GERD...


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/19/2010 9:12 AM (GMT -7)   
My bleeding is not hemorrhoids. I've just got a rectum that's torn every which way and back. What type of suppository did he put you on?

I use nightly budesonide suppositories (compounded, no name brand) and they keep me stable... Or out of the hospital at least. the CortEnemas do a lot to help with bleeding from rectal issues too. Puts the steroid right where you need it most. And, you actually do absorb it systemically from rectal use.

I hope this helps you! It's not too bad to have suppositories -they're easier than enemas and if the issue is all rectal, they help.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 3/19/2010 2:36 PM (GMT -7)   
I would not panic, but call your GI and tell him about this as soon as you can.
Just so he knows what is going on and so he can schedule appointment to see you when you get into town.

I was a heavy bleeder for 3 months nothing we could do just wait till the meds started working.
But my doc was well aver of my situation and he had me come in for regular check ups.
I also needed to get some iron infusions but other than that I was fine
25 year old female from Iceland.
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they don't know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Humira, Asacol, Cipralex and Cerazette.
Past medication Remicade, Imuran, Entocort
My wonderful dogs :) ~ www.poodle.is ~


mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 3/23/2010 7:06 AM (GMT -7)   
Update:

I haven't had a BM for 4-5 days and am only passing bloody mucous. My GI has me on steroid suppositories and miralax and I've scheduled a flex sig for when I return to town ( am on spring break right now). Funny thing is I feel fine--no pain, energy ok. Eager to find out what's wrong...
21 y/o, diagnosed 6/2007

Symptoms currently under control with Humira and a wheat-free, processed food-free diet. Beginning to have symptoms of GERD...

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