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dorothy678
New Member


Date Joined Sep 2009
Total Posts : 15
   Posted 3/16/2010 1:41 PM (GMT -7)   
Hello. This is my first time posting here, although I have lurked at times. I am pretty new to Crohns and am not sure what 'normal' is yet.
 
I have been experiencing stomach pain and diarhea for the past few weeks, but generally only in the morning. It tapers off towards noon and I generally feel alot better once I eat lunch. Yet if I try eat breakfast it goes right through me.  Has anyone else experienced symptoms like this? It seems odd to me. I have tried taking my medication and not and it doens't make a difference. I am on pentasa.
 
Also, since this started I have noticed some blood and white mucousy stuff in my stool (which is nothing new for me in small amounts) but it is really increasing. I think the last time, just now which freaked me out was two "clots" about dime size and about three times the amount of white with it. That was my bowel movement. Should I be concerned?
 
I am scheduled for another gastro and colonoscopy on April 8th. This was scheduled as a regular cancer screening for me and not due to any of these new symptoms. Should I just wait or do you think I should call my doctor?
 
Thanks.

Post Edited By Moderator (Nanners) : 3/17/2010 7:40:10 AM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/16/2010 1:50 PM (GMT -7)   
While I do think that blood does need to be checked out by a doc, the white mucous is your intestinal snot. Generally it means you are not processing fats as well.
I chronically bleed with this darn disease. But not more then a period type leakage.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 3/16/2010 2:21 PM (GMT -7)   
hey, nice to meet you, I wish it wasn't under these circumstances, but oh well. Your symptoms are pretty typical cd, as far as blood and mucos go. i don't ever have blood but plenty of mucos,I've had cd for 40 years and you learn what will cause pain and what will cause diarreha, so you learn what your body can tolerate, evan that changes, i went years with no med's, just surgically induce remission, i.e. blockage that had to be removed, diseased area, for me I've had 9ft removed, 4 surgeries and 2 resections, take your med's and go with the flo, don't know if I would have been on med's during my remission years if i would not have had to have surgery or not, my thoughts probably would have, I have inflammation and narrowing, good luck to you, you will get a lot of answers here at this forum, it's a good one

artist guy


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8581
   Posted 3/16/2010 2:53 PM (GMT -7)   
From previous threads on here and the UC board about symptoms being the worst in the morning, I would say your morning experiences are probably typical. Not for me, though: I've always been worse in the evenings and at night time. By the time morning rolls around I'm usually feeling miles better if I had a bad night. But you're not alone with the morning symptoms. Try a search for "Crohn's morning" to see what I mean.

Any medication you're on you should stay on; it won't work properly if you keep stop-starting it.

If it was me, I'd probably wait until the gastro and colonoscopy, but I do have a deeply engrained "wait and see" attitude. Waiting gives you more time to assess the pentasa and see it it kicks in again or fails to do its job - if the pentasa isn't working, you'll need to try something else.

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/16/2010 3:00 PM (GMT -7)   
Pentasa is crap. Sorry but it is.

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4101
   Posted 3/16/2010 3:28 PM (GMT -7)   
The studies I read seem to indicate that Pentasa is no better than placebo for Crohn's, but it really seems to have helped me, so I take it anyway. Most people have worse symptoms in the morning....there is a medical reason for this, but I can't remember why. I get the big clumps of mucous when I am flaring but not when I am in remission. I hope this helps...good luck to you.
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 3/16/2010 3:30 PM (GMT -7)   
pentasa was, i believe the expression is, like pissing in the wind, another words crap for me as well. I'm on imuran for me small bowel and pred. for my throat and mouth flare's, my gi said he would give the imuran one more month if itsn't to his liking he said he'll go to remicade. I've got to get my throat and mouth flared down it's really rough, their is no surgery to correct it, it has to come from med's.

artist guy


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/16/2010 6:10 PM (GMT -7)   
But if pentasa worked for you it wouldn't be crap would it? It works for some.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/17/2010 6:42 AM (GMT -7)   
Pentasa and Asacol type meds work well for some of us. Many have thought they weren't working and quit taking them only to become sick quickly and go back on them and feel better again. I am maintained solely on Asacol and it works really well for me. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

sheep87
Regular Member


Date Joined Jan 2010
Total Posts : 31
   Posted 3/17/2010 6:50 AM (GMT -7)   
I wouldnt worry about the blood and mucus. I bleed loads! sometimes it gushes out of me like water when im having D but my GI said its normal. From what you have said it just seems to be typical crohns symptoms so all we can all say is welcome to the family :-)

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 3/17/2010 11:24 AM (GMT -7)   
Hi Dorothy678, I don't have any answers to your question, but just wanted to say Hi and welcome to this friendly/ supportive site Bev x
Diagnosed with crohns at 13 now 43
Reversal of temp ileostomy finally have a date 7th April 2010
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)


" I may not be there yet, but I'm closer than I was yesterday."


tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 3/17/2010 12:57 PM (GMT -7)   
Hi dorothy 678! Sorry to meet under the crudy circumstances but welcome to our Crohns party. You will get to hear from tons of great intresting people with varying degrees of this disease. I have mild crohns and I do see mucus in my stool off and on which my gastro said is normal. I too always seem to feel crudy first thing and then as the day progresses it gets a little better. My gi doc explained to me that with my case being mild it is probably because while I sleep the colon naturally slows down. then when you wake up so does your colon. Some nights I am up with cramping but not all the time. Typically I have to have a BM within 5-10 minutes of being up so I think your feeling bad in the mornings is pretty typical. I can't speak to blood because while I was obviously bleeding some from my inflammation as I had some anemia I never saw it in my stool. Dr found a trace amount when he did a stool sample so I do not (so far) seem to have the massive bleeding. If you are concerned call your GI and ask their opinion. My GI has a pa that is wonderful about calling me back and answering any concerns I have. If they are concerned they will tell you to come in.

Post Edited By Moderator (Nanners) : 3/17/2010 2:26:12 PM (GMT-6)


Djin
Regular Member


Date Joined Jan 2010
Total Posts : 265
   Posted 3/18/2010 9:26 AM (GMT -7)   

 

Wellcome to this crazy ppl den.

I would just like to add, in the "what's normal" subject, that many women say that the simptoms get worse in your period days...  

Interesting, my doc give pentasa to my sister, who is in the beginning of her crhonnie journey, but keeps saying that it woudn't work for me, a chron vet.
 
-------------------------------------------
Diagnosed in nov/94 - Started with Prednisone, followed by Pentasa, entocort, flagyl, Imuran, Cipro, etc.
Blockage - First Surgery 2001 (no ressection)
Severe bleedind - 2003 - Stopped by 60mg of Prednisone
Stricture leading to a ressection in Dec/2008 - Second Surgery
Now on Remicade + 100 mg Imuran + Iron (sort of remission, not sure at all)
 


dorothy678
New Member


Date Joined Sep 2009
Total Posts : 15
   Posted 3/18/2010 8:18 PM (GMT -7)   
Thank you all for your responses. It's nice to know that there are others out there who are experiencing similar things. I do seem to be very lucky in that my case seems to be very mild. (at least so far) I would liken it to the person who described themselves as having "slow-burning" chrohns. It always seems to kind of be there but it doesn't get near as bad as what some of you describe. I have a really hard time even saying what a "flare" is because my symptoms can come and go so quickly. I already feel tons better from this last bit.

I have heard things about the pentasa not working, but it must be working for me. When I was diagnosed my dr wanted me on pentasa and prednisone. I read about the prednisone and felt that the side effects of it would be worse than what I experience with Chrohns. I opted out and only took the pentasa. My dr got mad and told me to come back in three weeks. he said I would be begging for the prednisone because my colonoscopy had showed that I had severe inflammation that would only get worse untreated. ...but when i went back I was fine. The nurse pulled me aside after the exam and said 'good call'. I would definately try something else if my symptoms worsen over time.

Thanks again. Like I said I am new to this (1.5 years) and I still freak out over every new thing (fistula, etc) thinking the worst. Your reassurances helped me relax about the whole thing.
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