Good Day All,
Well, I hid as long as I could, but finally flared so bad I thought I might die. whew
Travelled to next city to a university hospital and got a black-n-white diagnosis.
Was able to get on-the-spot flex-sigmoidoscope, but alas no anesthetic for my tender bowel.
-blood showed inflamation markers through the roof
-C-reactive protein greater than 100
-mouth sores (thought I was brushing and flossing too much)
-skin tags of Crohn's perianal disease (thought I had 'roids)
-aphthous ulcers in rectum
-granulomas ruled out UC
-bro and sis have Crohn's
-been bleeding on the bowl for about 20 yrs off/on
So, I've been mostly sick for a couple decades...
but now finally have my Dx: Uncle Crohn's
Things feel real difficult now. I do not have a new disease, that is an old 'friend'.
What I am struggling with is the weight of this specific label hung on me, for the rest of my days.
Funny, but knowing I am in shock, does not allow me to avoid moving through the stages of shock.
Kinda overwhelmed in these ouchy moments.
These strong and scarey drugs have not helped much yet...
so, I am still quite violently sick, plus the added negative side effects as a bonus.
Bleeding, snotting, cramping, dizzy, anxious and nauseous!
Been living on mostly liquids for about 6 weeks. Pushing vitamins and Ensure all I can.
Prednisone makes me hungry like a bear, but I am afraid to eat. (catch 22 and heck to pay if I do)
I have zits like a teenager, restless, panic attacks and an extra chin!
My brain knew, but wasn't telling me... All my layers of denial are falling away.
Looking forward to better days.
I hope you feel well,
and I hope to see you around here,
ps Tomorrow is promised to noone...
Post Edited By Moderator (Nanners) : 3/17/2010 7:33:56 AM (GMT-6)