Entocort question

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junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 3/16/2010 3:48 PM (GMT -7)   
Ok.. I started the entocort on Saturday.. haven't noticed much difference until yesterday when my numbers I have to go a day increased..and today I have been tired and dizzy...since my drs are on vacation.. and my second opinion isn't until the 23rd..ummm what is normal? I know he said it would take time for the entocort to work but the dizziness concerns me... before all of this, i would only get dizzy if i consumed gluten.. I am barely consuming one meal a day and drinking ensure the rest. I still have pain and no appetite.. food just looks awful to me.

help ?
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..

Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- just started Entocort

Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/16/2010 4:30 PM (GMT -7)   
I've never been on Entocort, only prednisone which is similar, but different, if you know what I mean. Prednisone can make your heart race so dizzy might not be all that out of line. I would make sure you are really hydrated, maybe check your heart rate and if it keeps up call your doctors office. Even if the doctor is on vacation, someone should be covering to answer questions.

I'm sure someone will be along soon who has been/or is on Entocort and can give you some more info. Hang in there.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Brad P
Regular Member


Date Joined Feb 2010
Total Posts : 51
   Posted 3/16/2010 4:37 PM (GMT -7)   
I've tried Entocort twice. I had mod-severe CD at the time, and still do. I didn't get much from Entocort and didn't really feel like I was on it. As far as I know, its for mild-moderate Crohn's. But for side effects, its suppose to be better than Pred.

Here's a list of side effects
http://chealth.canoe.ca/drug_info_details.asp?channel_id=0&relation_id=0&brand_name_id=796&page_no=2#AdverseEffects
CD since Fall 1987
Small Bowel Cancer - Sept 2008
Surgery to remove tumor - Oct 1st, 2008
Chemo - Dec 2008 to May 2009
Jan 2010 - NED


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 3/16/2010 5:14 PM (GMT -7)   
How many Ensure are you taking in? Perhaps you're just not eating enough.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 3/16/2010 5:34 PM (GMT -7)   
I am wondering the same thing.. I have not been eating enough...but I haven't been eating very much since christmas , and yet the dizziness chose now to make its reappearance. I have struggled with dizziness for years.. went gluten free and the dizziness and migraines disappeared, only came back with medication side effects which is guess I why I went to the entocort. Just fishing now..
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..

Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- just started Entocort

Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


Timnlay
Regular Member


Date Joined Feb 2003
Total Posts : 231
   Posted 3/18/2010 8:28 PM (GMT -7)   
I am currently on Entocort and have had no adverse side effects. It did take a little but to kick in and start working though. Almost 3 weeks I think.
Compared to pred, which was the alternative for me, it is a godsend of a drug...

Keep well.
La.

Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 3/18/2010 9:05 PM (GMT -7)   
Hey junerainbow :)

I'm sorry to hear you aren't feeling well... I also started the Entocort on Saturday, but it did make a difference in how I felt.. that is until I had a wisdom tooth pulled out on Wednesday.. I was feeling ALMOST normal too!!!! Now I'm almost back to square one, and hoping that I didn't screw something up big time by having to adjust my dosing schedule and going through the major stress of getting a wisdom tooth pulled with no sedation, only novacaine.. :(

I do have to say, that the only side effect I've noticed from Entocort is that I can't fall asleep as easily as I could before, but I do feel that I need to take a cat nap during the days.. but other than that, I haven't noticed any side effects.. Plus, I'm taking my Pentasa still...

Like some others have said, maybe it's diet, but if it wasn't a problem until you started the Entocort then I would suspect that.. I think dizziness is one of the side effects...

Gosh, I sure hope things turn around for you... and me too... I'm PRAYING that I haven't messed up a good thing, and that you turn the corner soon and start feeling better..
 Diagnosed with Ulcerative Colitis January 31st, 2005, Testing for Crohn's 3/10
 Prior Meds:
Canasa, Rowasa, Lialda, Apriso, Prednisone, 1 infusion of Remicade.. none of those worked for too long... Had neurological complications from the Remicade...
 Current Meds:
Pentasa 2000mg 2x a day, Entocort 9mg daily, Nexium 40mg once a day, Wellbutrin 150mg once a day. Culturelle 2x a day, Xanax as needed and Ambien at night for sleep..  
       http://www.myspace.com/77016897  


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 3/19/2010 6:47 AM (GMT -7)   
hey Susie, I am sorry to hear that things reversed.. that is terrible.. I was so hopeful after your other post. I think my diet did have something to do with it and my water intake. Yesterday I felt okay..but no change in my movements.. I really had hoped after a week I would feel a difference.. I am so worried now....I wonder if I will ever have a normal bowel movement again and only go once a day.. I hate going all day long. I want my life back. =(
I hope we both turn corners soon.. and stay there.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..

Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- just started Entocort

Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.

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