Entocort is working!!!

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Veteran Member

Date Joined Feb 2005
Total Posts : 1373
   Posted 3/16/2010 10:23 PM (GMT -6)   
Hi everyone :)

Just wanted to update you all... I've been on Entocort EC for 4 days now and I swear, it's a miracle! My right sided pain is just about completely gone and the bloated feeling I had in the upper right side IS completely gone.. I haven't felt this good in over a YEAR! Also, NO side effects as of yet.. pretty cool considering Pred you feel immediately and it's just so nasty.. lol...

I did have to stay on the Pentasa as well, I stopped taking it for 2 days when I first started the Entocort, but started getting major flaring symptoms on the Left side and in my stomach, so I started the Pentasa again yesterday am and now that is also resolved... wow... Didn't think the Pentasa was helping until I quit taking it... LOL...

Won't do THAT again.... :)
 Diagnosed with Ulcerative Colitis January 31st, 2005, Testing for Crohn's 3/10
 Prior Meds:
Canasa, Rowasa, Lialda, Apriso, Prednisone, 1 infusion of Remicade.. none of those worked for too long... Had neurological complications from the Remicade...
 Current Meds:
Pentasa 2000mg 2x a day, Entocort 9mg daily, Nexium 40mg once a day, Wellbutrin 150mg once a day. Culturelle 2x a day, Xanax as needed and Ambien at night for sleep..  

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 3/17/2010 8:29 AM (GMT -6)   
Whoo Hoo!!! Glad to hear your meds are working and you are starting to feel better. Thats such a relief isn't it?

Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Jan 2010
Total Posts : 448
   Posted 3/17/2010 9:10 AM (GMT -6)   
Told you. Entocort is stronger then prednisone 4-fold. but topical vs systematic

Veteran Member

Date Joined May 2006
Total Posts : 1177
   Posted 3/17/2010 12:07 PM (GMT -6)   
Yay! I'm so glad it's working! Gail, I agree it is such a relief when something starts to work! That's the part I worry about most when my hubby gets sick. Is anything going to work this time around?

Hope things continue to improve Susie. I'm glad you're feeling better.
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 3/18/2010 12:56 AM (GMT -6)   
Great news Susiebuddy! Glad to hear it.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

Regular Member

Date Joined Dec 2008
Total Posts : 75
   Posted 3/19/2010 10:46 AM (GMT -6)   
I am so happy its working for you! Its great to hear good things about meds. I too LOVE LOVE my entocort. I was taking Humira alone and was still feeling icky but as I started the entocort, I felt 100% better. I tried tapering, and sure enough symptoms returned. I will be staying on this as long as I can.
27 yo Female, Crohn's, stricturing type- terminal illeum.
symptoms at age 2....Diagnosed at 6
Bal-resection 1998
Have tried it ALL Currently on Humira, Fish Oil, D3, Entocort, B-12 shots, Align, Multi

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