New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Mar 2010
Total Posts : 3
   Posted 3/17/2010 12:45 AM (GMT -6)   
Hi, I'm new here, just found this site. I've done some research on the internet and I'm 99.9% sure that I have a rv fistula. I pass gas and stool through my vagina. And have leakage all the time. I've had it for several years. I've found it really comforting to know that I'm not alone with this. (For years I assumed I was, as I was too embarrassed to talk to anyone about it.)

What have others done for their rv fistula? What works, what doesn't? Can this be fixed w/o doing an ileostomy? I've learned how to live w/it and probably could go on just dealing w/it, but if someone has found a better solution, I would love one.


Crohn's disease since 1992
I've tried asacol, immuran: (caused pancreatitis), humira, remicade: (difficulty breathing), predinsone: (caused osteoporosis, fractured back), pentasa, methotrexate, several studies.

Never had any surgeries to remove my bowel, and wants to avoid it while I can still live a relatively normal life.

Veteran Member

Date Joined Sep 2005
Total Posts : 517
   Posted 3/17/2010 7:44 AM (GMT -6)   
possibly. something to discuss with doctor asap. in my opinion you probably need surgery. not necessarily an illeostomy. perhaps removal of the fistula origin, resection of the bowel at the origin, and also repair of the point of entry to vagina. Im male so cannot give connection to vagina experience. I had fistula in various locations however, and if the remicade doesnt close it, you need surgery. No the remicade didnt close it for me as started remicade long after the presence of the fistula, but there was some improvement.

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 3/17/2010 4:42 PM (GMT -6)   

Fistulas can be very distressing, can't they? I agree with medchrt that this is probably something you should be discussing with your doctor as soon as possible.

As far as treatments go, you might like to click on the "abscesses and fistulae" link in my signature (below). When you do that, you'll find some of our very best threads on living with and treating fistulas and I hope they'll be able to give you some reassurance and helpful information.

All the best to you; looking forward to getting to know you better,

Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Regular Member

Date Joined Aug 2006
Total Posts : 443
   Posted 3/17/2010 8:29 PM (GMT -6)   
Usually, the first thing to try for a fistula is antibiotic treatment, especially Flagyl. That will sometimes close them up. Surgery is more problematic. The success rates aren't very good because the fistulas tend to reopen or reappear in a nearby spot. I'd give medication a shot first. RE: personal experience: I had a never-proven rectovaginal fistula (leaked a few days per month for four years, but never showed up on imaging) that disappeared and never returned after a course of Augmentin for a persistent sinus infection. I hadn't tried Flagyl earlier because I have issues with neuropathy, but it would usually be the first choice.

New Member

Date Joined Mar 2010
Total Posts : 3
   Posted 3/17/2010 11:31 PM (GMT -6)   
Thanks for the suggestions. I have a doctors appt in a couple of days and just wanted to know some options to discuss with him. And thanks Ivy, I'll check out that link. This is a great site!

New Member

Date Joined Mar 2010
Total Posts : 3
   Posted 3/22/2010 8:10 PM (GMT -6)   
So I went to my doctor and and told him what was happening regarding my rv fistula. His response was, "Oh ya, that's very common in people with crohns." Wow! That was painless. I've got a colonoscopy scheduled for this Sat. Hopefully I can start to get this taken care of.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, October 21, 2016 10:08 AM (GMT -6)
There are a total of 2,709,452 posts in 298,814 threads.
View Active Threads

Who's Online
This forum has 153335 registered members. Please welcome our newest member, Mom of boys.
370 Guest(s), 17 Registered Member(s) are currently online.  Details
Chapelle, JayMot, 81GyGuy, LymePickle, tidalmouse, ChristyLat, JNF, Scaredy Cat, TilTheEndOfTime, ks1905, exqualls, Traveler, brucen36, nynj2008, Nosila, straydog, iPoop

Follow on Facebook  Follow on Twitter  Follow on Pinterest

©1996-2016 LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer