What if you DONT have blood ever in the stool?

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debilitated
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Date Joined Jan 2010
Total Posts : 448
   Posted 3/17/2010 12:56 PM (GMT -7)   
Does scar tissue come from inflimation only? Or bleeding of some sort and than healing?

Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 3/17/2010 1:21 PM (GMT -7)   
The only time in my 35 years with this disease that I had blood was when I was first diagnosed. Scar tissue occurs when inflammation has healed. What happens is the inflammation causes like a wound that when it heals it creates a scar. Within time as you have more inflammation that then heals, it continues to add more scar tissue. As the scar tissue gets thicker and thicker, you eventually obstruct.

You know debilitated, I think it is kinda funny you pointed out that PeaceandHappiness was posting alot. You do too:) Not a problem though! I just thought it was funny you said that to her.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/17/2010 1:27 PM (GMT -7)   
yes i do post a lot. I post informational, successes, looking for answers.
But, I have had this disease for 9 years. I'm in a different situation. I'm not looking for quick fixes, im not in denial. And I Know what type of support I can expect.

Big difference.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/17/2010 1:32 PM (GMT -7)   
As I said its not a problem. Many new folks will post alot of questions especially when first diagnosed as they are trying to learn how to best live with this darn disease. I have had the disease nearly 35 years and I still am learning all the time too as it always seems something new crops up from time to time.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/17/2010 1:51 PM (GMT -7)   
I agree, we learn something new all the time.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs
Currently On SSDI


NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 8544
   Posted 3/17/2010 2:07 PM (GMT -7)   
I've never heard of scar tissue causing bleeding.

I'd like to know what does exactly, though. I've never had blood in my stools, and yet I have disease throughout my colon. Don't get the difference between me and somebody else with Crohn's colitis/UC who does get blood in their stools, to be honest. Maybe to have fresh (red) blood showing up, the active disease needs to be really low down - in the rectum, for example, which tends to be spared in Crohn's. ("Rectum-sparing" it's called - the things that I have learned... <_<.) It would also explain why nearly everybody with UC gets blood in their stools, but far fewer people with Crohn's do.

Jen77
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Date Joined Mar 2006
Total Posts : 2687
   Posted 3/17/2010 2:27 PM (GMT -7)   
The only real bleeding I had was when an ulcer ate it way through and hit an artery in my TI. Otherwise I don't get blood. On the other hand I think many of us have it and just don't know it. Unless we have stool samples done very frequently!


~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/17/2010 7:33 PM (GMT -7)   
Must be nice to never have blood!
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/17/2010 7:38 PM (GMT -7)   
i was waiting for you to respond, navy. I see it sometimes.. small amounts.

But we bleed for a reason. I mean it heals the same.. but more scar tissue with blood? or no.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/17/2010 7:47 PM (GMT -7)   
For me it is like my guts blister, the blister busts, refills and then busts again. So it looks like a melty volcanos on my scopes.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/17/2010 7:58 PM (GMT -7)   
I would say that my bleeding is from scraping along the GI tract.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


randynoguts
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Date Joined Jan 2003
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   Posted 3/17/2010 8:29 PM (GMT -7)   
you could have blood every day but dont know it..thats why the have the "occult" blood tests.
randynoguts 



     http://www.geocities.com/randynogutsweb/


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/17/2010 10:03 PM (GMT -7)   
Bleeding with crohn's is more common when CD is affecting the colon, so many CDers that don't have crohn's colitis (CD affecting the colon) but instead higher up in the small intestines may never bleed, if they do, then the blood is typically very dark, the higher up the bleeding is comming from, the darker the blood generally.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


tsitodawg
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Date Joined Sep 2006
Total Posts : 845
   Posted 3/17/2010 11:12 PM (GMT -7)   
I am one of the Crohnies with recurrent bleeding but my disease is mainly in the small bowel. The bleeding typically comes from the internal hemorrhoids and fissures that many of us get from chronic D. I also get bleeding from the T.I. area when I am in a large flare but it is typically darker when that occurs. If it is bright red then you probably have some internal hemorrhoids. I have had a major G.I. bleed when I was first diagnosed and it was mostly black and I did not recognize it as blood at first. If you do not have bleeding frequently, you should feel very grateful and pray that it stays that way. I have had to go in a couple times for blood transfusions and have a hard time when I am bleeding because my energy level is so low.

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2687
   Posted 3/17/2010 11:47 PM (GMT -7)   
My bleeding in the T.I. was bright red. It never had the time to turn dark, it was flowing out too fast. I know I've said this before on here, but I think it's worth repeating. Don't go by color alone. I always look at how much bleeding I have now, rather then just the color. I felt misled by doctors telling me to look out for black, because my bright red blood was just as dangerous.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/18/2010 10:39 AM (GMT -7)   
Yes, I agree with Navy. I have bled, back in the early days, without passing anything... Just came out. But recently it's only been when passing stool and/or mucus. So, something about the intestines working and stuff passing by prompts the bleeding.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 3/18/2010 10:55 AM (GMT -7)   
Never bled. I have the disease in the ileum and ascending colon. Mine ulcerates and inflame which in turn causes
me to obstruct, too frequently...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/18/2010 11:13 AM (GMT -7)   
Vicky that the way my Crohns has behaved too. And in the same area.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 3/18/2010 2:39 PM (GMT -7)   
I only know I'm bleeding when I'm anemic. I've had ulcers in my small intestine. I think the bleeding is high up and I can't see it in my stools. The occult blood tests have indicated blood, even when my stool looks ok to me.
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics


NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 8544
   Posted 3/18/2010 2:57 PM (GMT -7)   
tsitodawg said...
If you do not have bleeding frequently, you should feel very grateful and pray that it stays that way


Lack of (visible at least) blood never stopped me from getting anaemia or from having low energy and feeling a general sense of malaise most of the time. I'm not "very grateful" to put it bluntly. I acknowledge I could have a far worse case of this disease than I do, but I'm still not very grateful for the last five years.

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 3/18/2010 3:22 PM (GMT -7)   
NiceCupofTea, if you are anemic that would mean that you have some bleeding somewhere or an iron deficiency. Of course you would not be grateful for that but you should be grateful that you case is not any worse than it is. I have a severe case of Crohn's but I am still grateful that I am not in the hospital or in surgery at the moment. Don't take my words too you personally but I would challenge everyone to be more optimistic. My whole point about the feeling grateful was that if you have bleeding that means that your disease is active to the point that you are litterally ulcerating. Why would you not be grateful that you are not suffering from that symptom?
I have seen a lot of posts as of late about people assuming that they are going to have this symptom or that symptom and it is troubling to think of the unnecessary anxiety that they are suffering from worrying about when it is going to happen to them. Not every person here is going to end up with a worst case scenerio and you will only hurt yourself emotionally living in fear that you will.The majority of people with Crohn's do not suffer as bad as some of the people have suffered on this board and it is good to keep that in the back of your mind as you read the posts.There are some of us here who have gone through a tremendous time with all of the surgeries and hospitalizations or failing medications but we should ALL have something to be grateful for regardless. The number one thing that you can do with this disease is stay positive no matter what.

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8544
   Posted 3/18/2010 3:56 PM (GMT -7)   
You can have ulcers without bleeding. My 2007 colonoscopy showed that I had ulcers throughout my TI and my colon, and I probably still do. That's why I'm slightly surprised I have almost never seen any blood in my stools. Unless it's all "occult", I suppose...

I'm not a great one for feeling gratitude, to be honest. I get tired of feeling like rubbish, whether it's due to Crohn's or depression, and there is no positive thinking which is going to make me grateful and happy to be alive, when the black hole at the centre of my soul is making me feel the diametric opposite.

That said, I do the best I can, given my circumstances and temperament - that's the most positive, truthful thing I can say. I could only wish it was a lot more.

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 3/18/2010 4:13 PM (GMT -7)   
I am so sorry that you are suffering through as much depression as you are and honestly feel like we have all been there a time or two. That is one of the huge benefits of having an online support groups. I never ever questioned your disease or the fact that you have ulcers because I honestly would be shocked if you did not have bleeding if you are anemic and I would be almost certain that it is occult. An ulcer is a open wound which means that you are going to have bleeding.
My major concern with your particular situation is that on a number of posts I have seen that you are not talking any medications to help suppress your disease. If you have ulcers and are that sick, you need to be on some type of medicaiton to get your disease under control. Just because you are not visibly bleeding does not mean that you do not need medication. I am positive that if you were in less pain and having less symptoms your depression level would be greatly improved. In the meantime you should really contact your G.I. for a reassessment of your treatment and set an appointment up with your primary care to discuss your depression. Depression is not an embarrassing thing and needs to be confronted head on before it gets out of control. Your disease and depression go hand in hand and should not be taken lightly. There are many times that I have gotten to the point that I was so sick that I did not see a light at the end of the tunnel but you have to pull yourself out of it. Sometimes it takes the use of antidepressants either short or long term to stabalize you but do what you have to do because if left untreated it will only get worse. Many people here have joined a support group or sought professional counseling to help them with the emotional damage that Crohn's disease can cause. You should never feel ashamed and realize that there are so many people championing for your success even though you may not see it now. Attitude is everything and only you can change how you are going to react to a situation. You can choose to use setback or trial as a stumbling stone in your path and fall or use it as a steping stone and STEP UP. Only you can choose the mindset that will set you on a course to peace and happiness.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/18/2010 5:54 PM (GMT -7)   
Nice cup of tea,
You can have anemia from b-12 def, so ulcerating, scarring, or lack of TI can cause it as well. So have you gotten your vit b-12 and D checked?
I have to admit I am also concerned about your wellbeing. Mental and physical health are intertwined, so the question now becomes how are you dealing with the depression that is very common with being ill? I have to admit I am a big fan of therapy (and meds if you can tolerate them), because it has help me work thru the crap that this disease and other life circumstances. Like being shot, breaking my back, getting dx with this dd, not ever reaching remission so far, losing a fiancee, losing all the financial resourses, incuring about 100,000 in debt, a break down of alot of my relationships, and losing both my parents all in about 5 years time. Hey I am far from pollyanna and hey I know what it is to be in so much pain one prays to die. I am still grateful that God did not listen to me during that time, althought I was po'ed at the time.
Concerned about you,
Navy
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/18/2010 5:57 PM (GMT -7)   
Doing the best you can is really all one can really ask for.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

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