anyone else with back pain?

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debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/17/2010 5:42 PM (GMT -7)   
If so, what kind is it?
Only when you flare? Or during more bouts of pain?

Mine is more achy at times and Stiff. Lower back to be exact.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


ALgirl
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 3/17/2010 5:59 PM (GMT -7)   
Yes, I have really bad lower back pain related to a stricture/partial obstruction.

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 3/17/2010 6:01 PM (GMT -7)   
debilitated, i see you are ssdi, and your 22 years old, was it hard for you to get on? I applied march 3rd, I'm on SDI right now and my gi and dr have agreed with me on getting ssdi, I'm 59  and just can't seem to work in a situation where bathroom is difficult or I can't lay down wheN I have gas cramps or bouts of hypoglycemia due to dumping syndrome, from 9ft of small bowel removed, how many appeals did you go thru or were you accepted right away?


and yes when my stomach is flareing, it goes thru to my back. way worse when my cd was in blockage mode, before my resections
artist guy

Post Edited (artist guy) : 3/17/2010 7:06:40 PM (GMT-6)


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/17/2010 6:12 PM (GMT -7)   
ALgirl, is yours achy? Sharp? I know Im real thin so my back pain is related to simple things also.

artist, i was one of the fastest approvals they ever seen they said. LOL.

The first time i applied.. I was stupid enough to say forget it after waiting months... Because I thought Humira was going to finally put me in remission.. Wow, was I wrong.

I re applied... and got approved immediatly. I met certain criteria. No lawyer needed. I got 2 years of back pay and was very excited.
The criteria i met was having a Digestive Disease and being underweight ALONG with Lower than normal Albumin.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


onedaymore
Regular Member


Date Joined Apr 2009
Total Posts : 111
   Posted 3/17/2010 6:19 PM (GMT -7)   
Not to hijack your post, debilitated, but I'm really interested in hearing answers for this, too. I've had horrible right flank pain for the past few days, and my internist's PA was convinced it was either a kidney stone or a continuation/worsening of last week's UTI. Alas, no stone showed up on the CT, and the urinalysis was clear. So they have no clue what's going on.
Diagnosed with Crohn's in 2008 at the age of 22.
Currently on: Remicade, Imuran, Pentasa, Zofran, Tramadol, Welchol, Phenergan, Ambien, Metoclopramide, Omeprazole, Hyoscyamine


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/17/2010 6:26 PM (GMT -7)   
You had a UTI? I'd say it was probably continuous.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 3/17/2010 6:29 PM (GMT -7)   
I had the same kind of side pain when i first started imuran, and was tested for kidney stone but urine was clear, i drank plenty of electrolite fluids but the pain was relentless, gi took me off of imuran and it went away, he wants to start me on remicade, but now just pred, i've started lower dose of imuran again but at 100mg x1 a day, and gi said give it 1 month only if reocurs stop, but i have cd in my esophogus and throat, mouth and leasions on my tongue. but debilitate what is albumin?

artist guy


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/17/2010 6:32 PM (GMT -7)   
Albumin is a certain type of protein in the blood responsible for a lot things. If it is low, you are malnourished. Usually tells whether you are nourished, healthy etc..
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 3/17/2010 6:45 PM (GMT -7)   
when you say under weight what are you talking, because if you are under a certain weight with cd it is a big factor on recieving ssdi. I'm hoping because of my age and so long with cd that I'll only have to go thru one appeal, but my dr's are on the same page as Iam so that is a plus, I really like the part time work program they have as well, because I can do my art work because it is at my own pace, and when i feel like crap i don't have to work or if I'm in my shop creating and have to stop and go d i can go immediatly, or gas cramp i can lay down. I've been contacted by a few lawyers, but I'm waiting for first denial

artist guy


imissicecream
Regular Member


Date Joined Oct 2009
Total Posts : 157
   Posted 3/17/2010 7:56 PM (GMT -7)   
I started having horrible back pain after I started imuran. It's in my lower back and across my ribs in the morning. It hurts so much I can hardly breathe. Gradually, it dissipates.
The pain is much less than it was when I was on imuran, but it's never fully gone away. They thought I had a kidney infection/UTI, but everything came back clear. *rolls eyes* Just another CD mystery.
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Currently taking: Entocort 6mg
Off nearly all meds so the doctor can re-evaluate my diagnosis. Ugh.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/18/2010 6:48 AM (GMT -7)   
I am currently in remission, but always suffer with alot of joint pain. Sometimes it is caused when you are flaring, and sometimes it can be Fibromyalgia or Arthritis. Alot of us with Crohns suffer with some type of joint pain. Some even have Ankolysing Spondylitis along with their Crohns. I have Fibro and Osteoarthritis along with my Crohns. Thats why I have to take pain killers daily in order to be able to function. In fact, I will be seeing an orthopedic surgeon at the end of this month, as I need both knees replaced. So one this year, and probably the other next year.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 3/18/2010 7:19 AM (GMT -7)   
I get a lot of back pain, and have sacroilitis in my lower back, I have had it for numerous years nows and it especially worsens during a flare.The high dose of preds seems to ease it but as soon as I start tapering down on the pred, it starts acting up again.It is very stiff first thing inthe morning, sometimes I cant even bend to get dressed it's so bad!It does ease off during the day with movement, but still a dull ache.
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


pdmhol
Regular Member


Date Joined Apr 2007
Total Posts : 40
   Posted 3/18/2010 12:25 PM (GMT -7)   
After my second resection my back would hurt so bad I could hardly walk. When i described it to my GI which had already said anko spondy he determined they had my adrenal glands messed up from all the prednisone. So after another round of pred and a taper off my back got back to just hurting. So to answer your question keep talking to your doctor. IT could be anthing and everything.
Crohns dx in 2002. ilieum and colon resection 2002. Ilieum resection 2007.
Started Humira dec, 08

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