I've been on really high doses and suffered the terrible side effects. Now I refuse to go higher than 30, maybe 40 if they insist, but they have to give me something to calm me down because my heart races all day and then sleeping pills because I can't sleep. Its a bit crazy, I end up taking tons of meds to counter the side effects. But prednisone is the one drug that seems to stop my flares in their tracks.
CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!
Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....