Am I overreacting? My butt hurts!

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grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 3/19/2010 11:33 AM (GMT -7)   
First off, I usually handle pain pretty well. I cannot remember EVER missing work because of crohn's other than for an appt.

My son wanted german chocolate cake for his birthday Monday. I stayed strong. I knew the coconut pecan frosting would just tear me up. Tues...I was weak. shocked It was only bout 3 bites but I was up every half hour to 45 min. that night. My symptoms are always worse from bout 8pm to round 6 am. I'm usually up at least 3-4 times once I get to sleep and that's after taking immodium every night. That night I swear I went 10 times, didn't get any good sleep and went to work Wed. Well Wednesday was also St. Patricks Day so, because it's tradition, did the whole corn beef and cabbage thing. It cooked in crock pot all day, and all veggies were very well cooked. Only ate a couple bites of each because I was still not feeling well from the night before. Once again, surprise, I'm up all night again with the D.

I am SO sore right now it hurts to do anything but lay on my back with a heating pad on my bottom. I know I have fissure's down there although they are not really deep. Pretty sure all the D has basically given me a diaper rash. I had to leave work early yesterday and call in today because it hurts to sit and when I walk it looks like I have a stick up my butt. (My husbands words) I have been sitting in a warm tub with epsom salts, using different stuff to help with the pain, bag balm, an ointment I found specifically for people with incontinence, a pain relieving cream with lidocaine in it. I called the pharmacy and ordered Calmoseptine which will be in today after 2. When I go to the bathroom I'm trying to wipe lightly then get in the shower and use the handheld to get rid of the rest of it. Nothing is helping!!! Even using the hand held in the shower which usually makes my bottom feel much better has me in tears. My husband wants me to go to the ER but I really don't think they can do anything for it.

Any advice? Maybe something I haven't tried yet? I'm also feeling a little nauseus and my whole body aches but I think that is because of the pain in my bottom making me so tense. Should I just give in and go to the ER? I'm supposed to be starting Humira, I hope next Thursday. I made the appt and told the receptionist that I was only coming in if he was starting me on it. I have paid way too many copays just to go in an "talk" to him. I want something started. My flare is bad and I would think he would want to get me started on this ASAP, but I get the feeling once I leave his office, I am forgotten about until the next time I come in. I don't want special treatment, just some help! Isn't that what I'm paying him for? Well, and the insurance of course. Sorry, I know this is long, but I feel as if I have no where else to turn. Thanks for reading!
Dx'd w/ Crohn's in 1979 at age 14, have had minor flares throughout the years, but mostly kept in remission. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. Was on Pred. Dr. wants to try Humira...
Currently just take a multivitamin, calcium, magnesium, and fish oil.


Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 3/19/2010 1:11 PM (GMT -7)   
I don't think I would have done the corned beef and cabbage personally, even if it was very well cooked, cabbage is not with crohns and the big D!!!
I use sudocrem cream for my butt when it is bad,but as you are using a cream with lidocaine in it,don't know if this would work. Also use bepanthen, which is a nappy rash cream helps relieve the stinging but has no 'numbing' effect. I dont know if theres much else they can do if you are already using creams and lotions and doing the baths and showers as well. I also use baby wipes not toilet paper when my butt is really bad, a hell of a lot softer on the bottom than toilet paper!!!
Have you tried something to stop the D?
I take loperamide (immodium) and have also got questran, which is a powder you mix with liquid before you eat, that seems to help with D, as it 'binds' everything together inside and makes most things digestible. I can sympathize with you though, I have been through the same experience but luckily mine lasts a few days and then goes away,so gives me time to get over bouts before the next turn!!
I hope you get some relief soon from something, but I think if you can't handle the pain any more then maybe your husband should take you to the ER, maybe there is something stronger cream wise or suppositories that they can give you.
Good luck and hopefully relief!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 3/19/2010 1:16 PM (GMT -7)   
Ditto with what ashworthml said. I have to be very careful with cabbage and really don't eat it at all anymore. Have you ever tried cortifoam? When I have had rectal problems, it cleared it up fast for me but I have never had strictures, just fissures. If it hurts that bad, you may need to go to the ER and get some pain meds. Also, for me, when having diarrhea, you may want to cut back on the fish oil and magnesium, those can actually cause diarrhea for some people. It does when I am flaring. Have you tried sitting in a tub of warm water with a lot of epsom salts? Bless your heart, I hope you feel better soon. Let us know how it goes, ok?
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma, IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid,claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal
pexeva, rolaids, pepsid (as needed)


Blood test positive for Crohn's via prometheus ibd serology panel


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/19/2010 1:27 PM (GMT -7)   
I would like to also add to the above comments, that maybe you should go on a liquid diet for a few days to allow your guts to calm down some. If it continues to be so excrutiating, do go to the ER. Big hugs to you!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

What A Life
Regular Member


Date Joined Mar 2010
Total Posts : 116
   Posted 3/19/2010 1:40 PM (GMT -7)   
I use preparation-H wipes with Witch Hazel in them every time I go to the bathroom. It has a nice soothing feeling to it, and it helps my anxiety knowing that I'm somewhat "clean" in an area that sees so much "action" persay lol.

You could actually try some goldbond medicated powder. It has some cooling/soothing agents in it that help with diaper-rash, itching, irritation, etc. I know the feeling you are going through; I normally get that way after prepping for a colonoscopy. It hurts to even touch your rear-end or move! Especially if you are having a flare at the moment, irritation could be notably worse and take longer to heal. Just keep applying all your creams and load up on water and vitamin C to kick your system into gear. You could also try taking some vitamin E as it helps moisturize the skin. (Or so I hear)

grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 3/19/2010 1:59 PM (GMT -7)   
Thanks for the replies. I have been doing everything I could think of and even searched this forum, but wanted to make sure there wasn't something I had missed.

I use toilet paper for the initial wipe, then the baby wipes to get the rest, the finish up with toilet paper to pat dry. I've also been using my hair dryer after I get out of the tub or shower to dry off before I put more creams on it.

I found some of Tylenol 3 up in cabinet and took one of those so was actually able to sleep for a couple of hours before I got woke up with D again. I am also taking immodium and trying to stay hydrated with water and gatorade becuz of all the D. I'm sure we all have had pain and irritation from too much D, but I have never had it this bad and am getting desparate. I guess I will wait and see how it is tomorrow. It can't last forever, right? Right??? smhair
Dx'd w/ Crohn's in 1979 at age 14, have had minor flares throughout the years, but mostly kept in remission. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. Was on Pred. Dr. wants to try Humira...
Currently just take a multivitamin, calcium, magnesium, and fish oil.


Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 3/19/2010 3:35 PM (GMT -7)   
Oh gosh, I so know what you mean, I have the same things going on with me and have been the same for quite a while now. And yes me too, I AM GETTING SICK OF IT! I need help & relief as well. It jsut seems to never end!
I wish I could be the bearer of better news but you may be at the begining of a "ruff road" unless the Humira works.
I am on Remicade and not sure if its really working for me.
I live off of Emtec - codine - like tylenol 3 and natural source ginger gravol.
I was taking imodium - loparimide - for almost like 7 years.
Then quit as I was up to 4 pills every time I put something in my mouth.
Most of my colon is gone and I miss it BAD. I wish I would of never let them take it out of me.
I am always tired, and working gets hard to do when this disease and the BM's seem to run your life for you.
It's so hard to stay positive. It's nice to know I'm not alone.
33 yr. old female CANADIAN
dx with UC October 1998
had temp j-pouch: '98-'99
disease free & back to norm: '99-'07
dx. with CD March 2009
Currently taking: Remicade mthly & Imarun


In my next life: I want to be a big beautiful oak tree or something like that... so I can live off of just sunshine and water.

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