Imodium is it bad for me?

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bluemoon7
Regular Member


Date Joined Sep 2007
Total Posts : 62
   Posted 3/19/2010 2:57 PM (GMT -7)   
I was wondering is anyone else using alot of imodium?

I don't have insurance and Take it alot with my Pentasa trying to stop the Extreme D I have Every day of my life.

I wonder some times why I take it, since It really doesn't stop the D....

What U do think fellow Chronies...

Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 3/19/2010 3:42 PM (GMT -7)   
I used to take alot of immodiums every day until this last flare, and I am also on pentasa.It was prescribed to me by the doctor, and he actually told me I could take up 32 a day, considering the max dose for a 'normal' person is 8 a day. But it didn't stop the D completely, and didn't make me constipated either. But I tried not to take more than 10 a day, as that did seem to help.
The questran light helped me more with the D though, so was taking that twice a day, once in the morning before food and then again at night before my main evening meal,I didn't take it at lunch time because I generally don't eat a big lunch, if anything.
I did notice that since being on the questran and having B12 injections that my D did slow down considerably, so maybe these are an option for you.But obviously everyone is different, so what works for one, may not work for another.
Also through diet as well, once you learn what you can and can't tolerate food wise, this helps too with D.
Hope you find some relief!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 3/19/2010 4:31 PM (GMT -7)   
wow 32? I wonder how the doc comes up with a number like that lol
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.

Post Edited (aoccc) : 3/19/2010 5:34:29 PM (GMT-6)


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/19/2010 4:53 PM (GMT -7)   
i also took more than rec dosage of immodium along with that b 12 and trying to really watch foods i was eating did help...
Long Time Member of da Family

Crohns..Fibromyalgia,,Neuropathy...Deaf...Seizures Pyoderma gangrenosum


Co mod for Crohns...Anxiety/Panic and Alzheimers

lyn


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 3/19/2010 5:44 PM (GMT -7)   
My GI prescribed me Immodium. He told me I could take up to 16 a day.  6 usually does the trick.
Dianogsed with Crohns: At 16 years old. 23 years old now.
Surgeries:3 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings, Fistula Repair
Current Meds: Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: None.
 

Peaceandhappiness
Regular Member


Date Joined Mar 2010
Total Posts : 131
   Posted 3/19/2010 5:47 PM (GMT -7)   
My gastro told me I can take it every day, all I want as needed. I only take 1/2 a pill a day, I seem to be doing "better" (yeah). But in the past I have gotten into some Sorbitol (in some ice cream) and I couldn't leave my sister's house until I took like 4.5 or 5 of them in a row. I was nervous about taking that many, but it worked.
-Mom of a preschool boy and teenage girl and wife to a wonderful man.
 
Hypothyroid, newly dx'd Crohn's, Gerd. I love to look for natural ways to heal first, conventional ways second and keep my faith.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5854
   Posted 3/21/2010 12:52 PM (GMT -7)   
     Never take ingest anything ending in tol....gives you diarrhea big time.
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Flare May of 09 thru Aug of 09.  Very short remission.  Flared again Nov 1st.  Started Remicade Nov 18th.  Felt great after first two infusions.  Suffered a set back after 3rd infusion on Dec 31st. 
But suffered thru a 4th infusion...nada.  Starting Humira Mar 24th.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/21/2010 2:48 PM (GMT -7)   
I think you should check with your doctor before taking Imodium. Whether it is safe for us to take it or not depends on where our Crohn's is, and how severe it is.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 3/21/2010 5:11 PM (GMT -7)   
I take Immodium when I am going out and have D symptoms - I also carry it with me just in case.  I use it for the convenience of occasionally wanting to be out and eating and drinking and not have to be tied to the bathroom.  Usually I use my medicine and diet to control my symptoms but as we all know that doesn't always work.  For example, yesterday I was out on a date and ate or drank something that didn't agree with me - thank goodness I had Immodium with me, I took 2 and drank a big glass of water and I was fine - if I was having more symptoms I would have had to go home.
 
I usually don't take more than 4 within a few hours; if I need more than that I go/stay home and rest.  It sucks but is part of what I go through with my Crohn's. 
33 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, starting Humira, 55 mg Prednisone, Multivitamin, Calcium, Probiotics, Vitamin D, a few other herbal supplements my natureopath has me on.
 
Eating a Macrobiotic diet, no meat or dairy, trying to cut way back on sugar and white foods.  Trying to focus on a more holistic approach to healing. 
 
 
 


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 3/21/2010 7:36 PM (GMT -7)   
I have found it has a rebound effect on me. I use it (usually a half, sometimes a whole one) if I must but I end up with worse D and pain in a day or two. JMHO
 


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 3/22/2010 12:56 AM (GMT -7)   
I agree that it's best to talk to your doctor about it. It can depend on your disease as to whether or not they think it's okay for you.

With that said I've taken it every day for over a decade. Before getting diagnosed I was at around 5-6 Immodium a day. It helped, but honestly really didn't touch the pain and D I had back then. Which amazed everyone I knew, because if they took that much they'd be plugged for weeks! Now I also take Questran, and that helps me SO much. My "magic bullet," as I call it, is my questran and 2 immodium daily. Without it I wouldn't have a quality of life!
 
Of course it doesn't do much if I'm in a full out flare. I lost my gallbladder several years back, so I'm also dealing with having diarrhea from too much bile in my system.


~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


Djin
Regular Member


Date Joined Jan 2010
Total Posts : 265
   Posted 3/22/2010 6:51 AM (GMT -7)   
Why 32 immodium at most? I don't know about immodium, but overdosage, for many meds, is more than 4 times the maximum. Then 8 immodium a day... 4 times 8... do the math.

Immodium helped me in the past. Now, I'm ok just with questran for the D. My doc says immodium is a safe med, so I woudn't worry in going that path again.
 
-------------------------------------------
Diagnosed in nov/94 - Started with Prednisone, followed by Pentasa, entocort, flagyl, Imuran, Cipro, etc.
Blockage - First Surgery 2001 (no ressection)
Severe bleedind - 2003 - Stopped by 60mg of Prednisone
Stricture leading to a ressection in Dec/2008 - Second Surgery
Now on Remicade + 100 mg Imuran + Iron (sort of remission, not sure at all)
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/22/2010 6:56 AM (GMT -7)   
If you have any kind of strictures or narrowing you should use the Immodium with caution. I am like Funguy I only use it once in awhile, but when I do I get the rebound effect too,
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 3/22/2010 7:41 AM (GMT -7)   
If you know for sure your problem is crohn's, and not caused by a bacterial or viral infection, then it's probably ok to take immodium every once in a while to help get through a difficult situation. My husband has had problems with recurring c-diff infections, and one of the worst things you can do is take immodium and counter the body's reaction to purge the system of the bacteria, therefore allowing the bacteria to replicate and make the infection worse. For my husband, if he starts having D, the first thing we have to go is test his stool for possible pathogens, before taking any course of action.

So, my advice would be to make sure that you have no infectious causes for the D, before starting immodium.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/22/2010 9:34 AM (GMT -7)   
Honestly, I'm scared to try immodium. My doc was telling me that it actually stops the system and some people don't start back up again causing trouble. Then I read all of these posts and it seems like most everyone takes it. I guess that I get some slowing with the pain meds, which is a nice side effect.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 3/22/2010 12:00 PM (GMT -7)   
After having a right hemicolectomy (part of the colon resected) years ago I was told that I would have to live with the D years down the line i was given Lomotil which starts working when it hit the large bowel, it was excellent! could take up to 8 tabs aday but only needed to take 2 in the morning and would get through a whole day eating and drinking normal amounts. Immodium in melt form or tab does nothing for me. Bev x
Diagnosed with crohns at 13 now 43
Reversal of temp ileostomy finally have a date 7th April 2010
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)


" I may not be there yet, but I'm closer than I was yesterday."


pdmhol
Regular Member


Date Joined Apr 2007
Total Posts : 40
   Posted 3/22/2010 2:20 PM (GMT -7)   
I have Cd illieum and colon. 2 surgeries. My Gi said I could take 4 imodium at a time every six hours. But I only take it when I going somewhere or I just can,t stand another bath room visit becaue like the others I hate the rebound too.
Crohns dx in 2002. ilieum and colon resection 2002. Ilieum resection 2007.
Started Humira dec, 08

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