Excessive bleeding- blood smells- emergency?

New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

rrina
Regular Member


Date Joined Mar 2010
Total Posts : 20
   Posted 3/19/2010 3:46 PM (GMT -7)   
I've been bleeding now and then, and it has increased in the amount of blood recently, but today I am bleeding excessively, I can compare the amount of blood with menstrual one (second day), which is a lot. There are fleshy pieces in it (no stool, only blood that has to go out every hour approximately). This evening I started to feel the unpleasant smell of blood, like it's old. Tell me what to do.
 
I am taking 4800 mg of asacol a day, 3x rudacol, probiotic and oligogal se (selen and vitamins).
 
I am pretty much in panic now, so pardon my bad English.
And thank you all in advance.

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/19/2010 3:59 PM (GMT -7)   
If your bleeding to the point where it's like a "period"....

I'd go to the E.R... And i don't usually go to the E.R.. Thing is.. your going to pass out from blood loss, plus I doubt you can keep your blood levels up orally if you are bleeding So.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


rrina
Regular Member


Date Joined Mar 2010
Total Posts : 20
   Posted 3/19/2010 4:04 PM (GMT -7)   
The thing is I live in a country where I couldn't get proper medical help, and I got diagnosed with ulcerative pancolitis and Crohn's desease in another country, where I am neing treated for the last 4 years. I don't know where to turn for help. I could phone my dr tomorrow, it is very late here... What does this smell mean? I've never had it before. There is no stool, I am practically empty.
Thank you very much...

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/19/2010 5:39 PM (GMT -7)   
Smells? Anything coming out of the other end is going to smell. what are you eating?
If you are not eating, it's probably nothing. unless you have C-diff.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 3/19/2010 5:44 PM (GMT -7)   
Your heart will continue to make blood. If you have to change a pad every hour or so, you are bleeding quite a bit and need medical help.

If you do not have medical help available, have someone help you at home and rest as much as possible until you can get a doctor's help.
My advice is that if you are sick alot of time, you should look into moving with your family to a country where medical help is more available.

I don't know which country you are from but perhaps you can look into claiming refugee status in Canada or the USA.

***Also, there are organizations you can call to help. IE: World Vision, CBN Operation Blessing, Red Cross, etc. Look them up on the internet and call them if you need help.

Take care and God bless.

rrina
Regular Member


Date Joined Mar 2010
Total Posts : 20
   Posted 3/19/2010 5:47 PM (GMT -7)   
No, no stool... Just clear blood with those fleshy litlle pieces, which smell like rotten blood, not stool, like blood that's been accumulating for a longer period, which worries me, I don't know where it's coming from... It never happened to me before... I had a bit of soup...
I feel very tired now, and I'll go to sleep. Tommorrow is another day, I hope it will all be better when I rest. Then I'll contact my dr, and see what happens. She was into giving me prednisone and imuran again, but I refused it since I had a very bad experience with it...
I'll skip my Salofalk rectal suspension for this evening to avoid making it an obstacle for all this blood.

Thank you for your support.
And I don't know what C-diff means... I was in remission for three years, and it all came back in july, not even the hospitalisation helped.

rrina
Regular Member


Date Joined Mar 2010
Total Posts : 20
   Posted 3/19/2010 5:55 PM (GMT -7)   
No pads, only urgency, but caused by blood accumulated in my colon instead of a stool. I feel a bit of pain in my stomach too, but not much.
Moving to another country sounds like a fairytale... I can hardly even get to my doctors, and have to pay for everything. Even for all the medicines, which I get from abroad too.
I might check the organizations you've suggested, thank you very very much...

I wish you all the luck, and you should feel blessed for the ability of getting help when you need it.

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/19/2010 5:58 PM (GMT -7)   
rrina - I agree with the idea of just taking it easy and laying down. Bed rest is good if you're bleeding like you are. If you can't get to an ER, just keep a close eye on it and do your best to touch base with a doctor if you can. Maybe they have someone on call you can just talk on the phone to?

The smell - I know that. I notice it when I start really getting further down my spiral. To me it smells like sickness. I don't know what it is, but remember if you're bleeding that much then there is plenty of ulceration and... think what an open sore does... it pusses over, bleeds, closes a little, breaks, pusses, bleeds, etc. An open would, if not cleaned, would smell too. Considering you can't clean the insides, that's what I always think it is. Of course, I don't really know but that's my thoughts when I notice it.

Hang in there. It might stop on it's own, so it's best to try to get help, but try to stay calm and just rest. Maybe you can watch a movie or tv?
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


rrina
Regular Member


Date Joined Mar 2010
Total Posts : 20
   Posted 3/19/2010 6:05 PM (GMT -7)   
sr5599, thank you.
I turned to you guys, since there was no one else to turn to at this point, and you are the ones who truly understand.
I feel too tired to watch a movie, it is 2 am here, I will lay don't and hopefully have some nice dreams, and wake up healthier:)
My last colonoscopy showed no ulcers (october), but things changed, apparently.
I hope for the best for all of you.

Good night and hope to chat again soon!

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 3/19/2010 7:03 PM (GMT -7)   
rrina, i know what you mean,, blood has a distinctive smell when it gets old and lots of it, its not something most people have ever smelled . its part of that "smell of death" people talk about at disasters... if you can get to a dr, and try to keep getting fluids in.

roni, the heart does not make blood.. its is made in your bone marrow and not as quickly as we would expect. ;0)
randynoguts 



     http://www.geocities.com/randynogutsweb/


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/19/2010 9:38 PM (GMT -7)   
I too know that smell but the one time I had it, it was from old blood, not fresh and red, it looked like coffee grounds.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


rrina
Regular Member


Date Joined Mar 2010
Total Posts : 20
   Posted 3/20/2010 4:44 AM (GMT -7)   
Good morning, everyone. And thank you.
Yes, that is how Francis Bacon wrote about the smell of death. And that is how I imagined it.
I had one liquid stool during the night with some blood, and another woke me up, but with less blood, which is encouraging. It did appear at the end of the process. I'll wait a little bit longer to see how it goes, and if it continues, I'll phone my doctor.

Grandpato2
It was a mixture of fresh and old blood, yes... What do you think, where it comes from?

So good to know that someone out there knows how you feel... Advice from the healthy people sorrounding me feels so fake, in spite of all the good intentions.

rrina
Regular Member


Date Joined Mar 2010
Total Posts : 20
   Posted 3/20/2010 8:12 AM (GMT -7)   
OK, I called her. She suggested I get to a hospital immediately, but I assured her I was feeling a bit better now. I am a student and can't be absent from the classes, my teachers are very strict. And I don't want to go through the agony of hopsitalisation one more time.
She told me to be persistant with Salofalk, every night, and call her again on Monday. The hospital is in another country, 400 km away from me, not to mention difficulties of being admitted as a foreigner, and all the costs.
I'll get an IV now.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/20/2010 8:23 AM (GMT -7)   
Hi rrina, I really don't think this is an issue you should ignore. Blood loss can have some serious issues. I think you would be better off doing as your doctor recommends and going in to the hospital. You can never take in enough fluids to replace what you are losing. I am worried that you are not taking this seriously enough. Please be careful, your health is important too. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

rrina
Regular Member


Date Joined Mar 2010
Total Posts : 20
   Posted 3/20/2010 8:32 AM (GMT -7)   
Hi, Nanners.
Thank you.
I know that ignoring the illness doesn't make me healthy, but thinking about it a lot makes me sicker. I try not to identify with it, but cases like this are sobering... I will see what happens until Monday, call her again and accept whatever she has to offer.
I believe Prednisone and Imuran are the main course on the menu. And I hate that.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/20/2010 8:34 AM (GMT -7)   
I totally agree with Nanners and Randy on this i understand your concerns about school and the distance but the blood loss is not good and no you will not get enough fluids to replace lost..as was already stated..i really think you need to go to hospital n get this checked out n under control...lyn..keep us posted
Long Time Member of da Family

Crohns..Fibromyalgia,,Neuropathy...Deaf...Seizures Pyoderma gangrenosum


Co mod for Crohns...Anxiety/Panic and Alzheimers

lyn


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/20/2010 8:36 AM (GMT -7)   
But rrina you really need to accept the fact that you have a chronic and incurable bowel disease and one that must be treated at all times. And the amount of blood you are losing is concerning especially the old blood, because that means its coming from higher up in your system. Take the meds, they will help to heal your insides and get you feeling better. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

rrina
Regular Member


Date Joined Mar 2010
Total Posts : 20
   Posted 3/20/2010 8:48 AM (GMT -7)   
Thank you both...
I do understand that... It's just that I am tired of all this, and I believe all of you are, and all of you understand that. I do take all the meds I am prescribed, but I am terrified of prednisone, since it made my life miserable before. Of course I will take advice from my doctor and certainly advice from you, and take this much more seriously. Thank you for your concerne.
I will get an IV of glucose, vitamins C, B1 and B6 this evening. Any more suggestions for this tasty cocktail?
Hugs!

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/20/2010 10:44 AM (GMT -7)   
JUST this please watch the loss of ..dirty blood....as Nanners has said it is indicative of serious issues higher up and she has 35 yrs of this under her belt ya know..not trying to be rude just am concerned....lyn
Long Time Member of da Family

Crohns..Fibromyalgia,,Neuropathy...Deaf...Seizures Pyoderma gangrenosum


Co mod for Crohns...Anxiety/Panic and Alzheimers

lyn


rrina
Regular Member


Date Joined Mar 2010
Total Posts : 20
   Posted 3/20/2010 10:59 AM (GMT -7)   
Of course you're not trying to be rude, I am taking all the advice as friendly:). And I am very greatful to all of you.
I already contacted a doctor close by in case of an emergency... I'll keep you updated.
THANK YOU ALL!!!!

rrina
Regular Member


Date Joined Mar 2010
Total Posts : 20
   Posted 3/21/2010 7:37 AM (GMT -7)   
Still bleeding (dark blood), but less, still alive and cheerful. Another IV on the way. 15 bowel movements yesterday. Hospitalisation tomorrow or the day after (99%), no social security coverage.

How are you guys doing?

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/21/2010 8:12 AM (GMT -7)   
I am glad you are able to get the IV's at least at this point. That will help alot. Do keep us posted, okay. We do care. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/21/2010 11:16 PM (GMT -7)   
I know that my "old' coffee grounds blood came from upstream somewhere but I never had it again. That was 7 years ago when I came out of remission. I'll never forget that smell, it scared me badly. I was on a high dose of prednisone the next day and 2 or 3 days later the smell went away.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


rrina
Regular Member


Date Joined Mar 2010
Total Posts : 20
   Posted 3/22/2010 12:16 AM (GMT -7)   
Yes, Grandpato2, I expect to get prednisone soon...
Today my mission is to get a paper from my birth town that I need a check up at a clinic in a town I live in now, as a student... In order for them to give me a consent to leave the country for a treatment, which is very complicated and difficult to get here. Although I have been a patient at that clinic abroad for 4 years... It's all about the money. If I don;t get it, I'll go anyway, and pay for the treatment.
Another problem would be a trip of 400 km without a toilette.

How much check ups, hospitalisations and medications cost in your country/ies???

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/22/2010 10:47 PM (GMT -7)   
I sorry to say that in Canada health care costs are very low and I'm sorry you have such a difficult system to deal with and pay so much. Rob
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Sunday, December 04, 2016 5:28 AM (GMT -7)
There are a total of 2,732,452 posts in 301,021 threads.
View Active Threads


Who's Online
This forum has 151186 registered members. Please welcome our newest member, debbixij.
191 Guest(s), 9 Registered Member(s) are currently online.  Details
Georgia Hunter, 73monte, imagardener2, mtm3461, reminder, Tudpock18, Hilander64, Buddy Blank, Graytech


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer