Bring on the emotions

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Prayer247
New Member


Date Joined Mar 2010
Total Posts : 10
   Posted 3/19/2010 8:04 PM (GMT -7)   
Am I just going crazy or do people with CD have severe emotional issues? One health thing after another is coming up lately in my life. Crohn's is mild as of now. It seems my flare ups are sporatic  so I'm blessed in that department. However, my body hurts daily! I feel like I'm crippling. My knees hurt, my hip hurts, I'm always sore, & I just want to stay in bed to sleep.
 
I've had CBC tests and only shows high white blood count. I've had a UTI for 7 months. They checked my kidneys they are fine. However, there is 1 small spot on the left side of my bladder. ???? 
 
What hurts the most is my knees & right hip. I would love to dance. HECK, I would love to walk normal.  I'm not sure if that is why I get emotional and snap at times or if I'm just a loon. lol.. I mean, on a serious note I feel that my kids or husband will do something and I'll snap (just a stern voice actually yell). Then I look at them and say "What the heck?" "Sorry babies, Sorry hubby. That came out of no where. I'm just tense & my heart is racing."  I appologize and they are understanding (praise God). Is this something I need to get checked or should I just go to a massage therapist? I don't feel I'm bi polar cause I'm always laughing joking & having fun but am getting stressed easily now adays.
 
I just wonder if my mind is focusing more on my health than I realized & it's secretly stressing me. shocked Now they are talking I MAY have endometriosis and if I take hormones I'll feel even more like a crazy.
 
Anyways.....I am new to the site and the only bright emotion is that I know i'm not alone. I am finding here that the symptoms I have are not all in my head or I'm not a hypochondriac.... They're the same as others on here.
 
 
"It's 1 health issue after another so quickly. I feel like I'm losing my mind!"
 
Diagnosed Feb. 2007 w/Crohn's
6 erosions on small intestine 2010
1 flat polyp removed 2010
Asthma 1992 (found out by blowing a hole in my lungs air was trapped under my skin- sounded like rice crispies crackling)
Swollen & Painful hip & knees!! NON STOP!
------------------------------------------------------------------------------------------------------------------
Epidural Steroidal Injection C4&C6 herniated disks April 2007
Tonsilectomy/Adnoidectomy & Tubes Sept. 2007 @ 30yrs old (DO NOT recommend for any adult)
Partial meniscus removal March 2009 (Still not 100% recovered)
___________________________________________________________________________
Macrodantin-daily for 3 months (UTI), Pentasa-8daily for 1month & 4daily thereafter, Hyoscyamine-As needed for abdominal pain


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/19/2010 8:14 PM (GMT -7)   
People with Crohn's are known to have all over body pain.
Gas
inflammation of the joints, hips (sacrioilitis)(sp?)

I know my body hurts all the time. Even on these heavy pain meds.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/19/2010 8:15 PM (GMT -7)   
Welcome to Healingwell by the way.
God bless you and your family. Hope days get better for us both.

And no, I doubt your crazy.
If you need to ask yourself.... Your probably not crazy :D
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/19/2010 8:41 PM (GMT -7)   
It is not unusual for there to be mental health issues with any kind of physical illness, especially with the chronic kind.
Being ill is sometimes like having your psychological skin burned. You become more sensitive to things going on in your life.
To advocate for your children here, there is nothing wrong with going to a therapist (there are ones that specialize in chronic illness, and it might take you several to find one you like) to help you deal with this, because there will be a time when "I am sorry babies" is not ok.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Prayer247
New Member


Date Joined Mar 2010
Total Posts : 10
   Posted 3/19/2010 9:37 PM (GMT -7)   
I have thought of seeing a therapist. This tension or stressed issues have just recently started. No I don't want it to ever get to where "I'm sorry" is not enough. At this time I don't see that ever happening. However, I didn't see me having the health issues I now have either. I just feel the emotions are over running me and I let my family know in advance that it is NOT them and if I snap at them I have no right and they know I love them. They also know how I have treated them with respect, love, & care for all the years past but have seen how the last few weeks I have emotional trigger moments.

My kids are my medicine. They sit with me and say "It's ok momma. You love us. We love you. Do you want to play a game?" and of course it's play time and we have fun. All is over. It always ALWAYS calms me. Even if we don't have time at that moment for fun time. It's just their little voice with such innocense that makes me realize. "You're being a booger head momma, chill out."

This is just awesome to read/hear responses to help guide each other along. I have researched off & on for 3 years now on Crohn's but have been on this site for just a few hours and have learned a great deal more.

I had no idea there could be knee/hip/joint issues, mental issues, or any other issues associated with Crohn's. I was just narrow minded at only the digestive system. I literally only visioned mouth to anus. Just trying to take "mental note" of everything I read and write down this and that to ask my doc. WOW I just saw him yesterday and already have a list.
"It's 1 health issue after another so quickly. I feel like I'm losing my mind!"
 
Diagnosed Feb. 2007 w/Crohn's
6 erosions on small intestine 2010
1 flat polyp removed 2010
Asthma 1992 (found out by blowing a hole in my lungs air was trapped under my skin- sounded like rice crispies crackling)
Swollen & Painful hip & knees!! NON STOP!
------------------------------------------------------------------------------------------------------------------
Epidural Steroidal Injection C4&C6 herniated disks April 2007
Tonsilectomy/Adnoidectomy & Tubes Sept. 2007 @ 30yrs old (DO NOT recommend for any adult)
Partial meniscus removal March 2009 (Still not 100% recovered)
___________________________________________________________________________
Macrodantin-daily for 3 months (UTI), Pentasa-8daily for 1month & 4daily thereafter, Hyoscyamine-As needed for abdominal pain


1asalsa
Regular Member


Date Joined Feb 2010
Total Posts : 40
   Posted 3/20/2010 5:52 AM (GMT -7)   
If you have access to a health club or Y with a pool, a water exercise class or water therapy would be great for you. Any exercise improves your mental well-being, and from personal experience (I have had a lot of hip and back problems), water takes a lot of pressure off your joints and allows for greater range of motion; it is also very soothing. It is the safest form of exercise. Also, some time for yourself is great for mental health!! Being a mom is a tough job, even tho it has great rewards!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/20/2010 8:33 AM (GMT -7)   
Oh the emotional issues with Crohns!!! I have had this darn disease for nearly 35 years, and about 3 years ago I developed the worst anxiety related to it. But thru the help of therapy and the occasional Xanax I am in better control of it. I only use my Xanax now about 1-3 times a month. But if my Crohns is acting up, I will tell you my anxiety likes to add to the party too. As for the joint issues, I once had a Rheumatologist tell me that joint pain is often a precursor to a flare. But....many of us suffer with Osteoarthritis and other joint issues with our Crohns too. I have osteoarthritis really bad in my knees, and will in fact, be having a total knee replacement soon. I think the steroids we have to take, do alot of damage to our bones. Oh, and let me welcome you to Healingwell too. Glad to have you with us, and ask any questions you might have, one of our great members is sure to have an answer for you. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

jjdmathnut
Regular Member


Date Joined Feb 2006
Total Posts : 23
   Posted 3/20/2010 8:35 AM (GMT -7)   
Hi Prayer 247 - I feel for you. I'm 32, a homeschooling mother to 2 boys (6 and 5). I love my family but can get so stressed sometimes that I snap at them, mostly when I'm in pain. I've had joint pain too in the hands and feet, but it's been better lately. When my fistula is flared up though, I just feel crabby and want to be left alone. I get in slumps of feeling sorry for myself, the whole "no one understands what I'm going through/how I'm feeling..." All this to say that yes, I've had my bouts of emotional stress with this disease. I'm a Christian, and I know that my faith in God has helped me through a lot of difficult times, and I'm looking forward to an eternity with Him where there will be no more pain. Feel free to e-mail me if you need a listening ear. God bless you.......Jennifer
diagnosed with Crohn's in January 2002
bowel resection in October 2005
in remission ever since, other than a perianal fistula that just won't go away...
Remicade April 2006 - December 2009
planning to start Humira...


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/20/2010 8:46 AM (GMT -7)   
I would like to also extend a warm welcome to you....i also suffer with anxiety and a few other issues..Navy said it well about there will come a time when your words ..im sorry babes..just will not work or be enough i know this from firsthand experience with my 17 yr old daughter..cait has been fantastic but my lack of hearing n emotional/physical well being is def taking a toll on her.....i am doing tons better than i was a few mths ago but still hv ways to go..we are here for you ..tell your sweet kids to go play have fun n be kids mommy is gonna be fine...they need to know that you the centre of their universe is still in charge imho..im not trying to be mean nor rude just letting you know what can happen....lyn
Long Time Member of da Family

Crohns..Fibromyalgia,,Neuropathy...Deaf...Seizures Pyoderma gangrenosum


Co mod for Crohns...Anxiety/Panic and Alzheimers

lyn


Prayer247
New Member


Date Joined Mar 2010
Total Posts : 10
   Posted 3/20/2010 12:25 PM (GMT -7)   
Thanks everyone! Not rude or mean at all Howlyncat, I understand that totally. We are a very tight family and are constantly in play/fun mode which is why this makes it hard when pyscho momma comes out. I don't think it's any where near as bad as it could be but I don't even want to get 1/4 way to that point. I guess we always have so much fun that I'm afraid this will ruin it all and in return I'm letting it happen or should I say making it happen on my own.

I love the water exercise, I live in a small rural community where that is not available. However, my sister has lupus & possibly fibromyalgia, she was told to do that as well. Maybe we can find a place & go together.

Myself & the kids will be fine. Just when I'm getting tense & anxiety pops in, it scares me. I don't like that feeling at all. When it comes to emotions or mental issues that reallly bothers me. Well it all bothers me but that's scarier to me for some reason. Maybe its the lack of control of your actions.

Thank you again everyone. You guys are truely the best. It's good to hear/read all points of view.
"It's 1 health issue after another so quickly. I feel like I'm losing my mind!"
 
Diagnosed Feb. 2007 w/Crohn's
6 erosions on small intestine 2010
1 flat polyp removed 2010
Asthma 1992 (found out by blowing a hole in my lungs air was trapped under my skin- sounded like rice crispies crackling)
Swollen & Painful hip & knees!! NON STOP!
I was once not allergic to anything yet finding more & more that this is changing.
------------------------------------------------------------------------------------------------------------------
Epidural Steroidal Injection C4&C6 herniated disks April 2007
Tonsilectomy/Adnoidectomy & Tubes Sept. 2007 @ 30yrs old (DO NOT recommend for any adult)
Partial meniscus removal March 2009 (Still not 100% recovered)
___________________________________________________________________________
Macrodantin-daily for 3 months (UTI), Pentasa-8daily for 1month & 4daily thereafter, Hyoscyamine-As needed for abdominal pain(haven't taken yet)


soppendeuff
Regular Member


Date Joined Jun 2008
Total Posts : 27
   Posted 3/20/2010 1:40 PM (GMT -7)   
Sometimes I think the fear, anxiety and loss of control over my own body/my own fate is the worst part of the disease. It's simply a battle we cannot win or reason our way out of. Forgiving myself for the "downs" that come with struggling with chronic illness is difficult...but it also helps to remind myself that the other "healthly" adults around me don't seem to suffer from being overly perfect in the mental health area either.

I don't have children, but I have nieces that I'm close to - and I agree that the love of a child (or young adults they turn into) is absolutely the best medicine of all. A few minutes with them even on the phone can turn the worst day around.

Dealing with the way chronic illness changes your life is as hard as dealing with the disease. The first few years are definitely the hardest. After a time, you adjust to the roller coaster ride. My experience with Crohn's (and later asthma, bronchiectasis and constant respiratory infections from Remicade or Humira) is much like yours - one thing after another. Today it's hip pain - earlier in the week it was diarrhea and pain keeping me up all night. It's always something.

Over time, I think I've sorted integrated this "diseased" part of myself into my life as best I can. Once you've accepted it, it gets a little easier and it will translate into how you handle your relationships.

As much as I abhor this disease (and boy, do I ever) and how it's required me to change parts of my life to cope, I honestly think that in some ways, it's helped shape me into a better person. It's made me more empathetic. I can feel the pain of others acutely when I've experienced so much of it myself.

It sounds to me like you are handling all this really well. Being open about how you're feeling with those closest to you is key. We have a disease that most of us wear only on the inside. Don't make the ones you love guess - if you tell them you're fine, they'll believe you. The words and the actions must agree - when they do, they'll understand.
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