for candians please.. A few Q'S

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randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 3/21/2010 12:17 AM (GMT -7)   
  i try to help people as much as i can. im only visit on 3 health related sites, here and two others specifically for TPN users and other wierd crap.
 
 so heres my little story and questions, a person in alberta has eating issues and let's just say is emaciated and starving,  says they have a stomach tube for eating )long story but not CD)  has other issues about leaving the house as well etc..
 
 now heres the question, this person says there is NO home health in Alberta. that drs are not allowed to talk to patients on the phone in case its "not them" or some ooo"privacy rules and laws" and that there is NO hospital willing to treat this "special" problem of having a minimum temp in the room of 85, no air blowing on the face etc.. not even the mayo clinic. some "rare" disorder.
 
  so this person comes online looking for advice about getting back to health etc... so i watched a few days worth of posting reading some pretty far out stuff and some very good advice.. i echoed what a couple others had said, get to a dr get hospitalized, and get back to health both physicaly and mentaly (this person admits to eating disorders etc..)
 
 this person insists that there is no help available except her dietician (whom doesnt know what they are doing) of course right, and the internet..
 
 if you have any agencies or public health offices i can contact or any type of place in Alberta that you think may help can you let me know please. if the story is true its the saddest thing ive ever heard and would like to help , but with some of the things that were said, im thinkng a strong possibility of a hoax . in which case the person need shrink help even more. thanks guys.. oh its supposed to be in southern Alberta
randynoguts 



     http://www.geocities.com/randynogutsweb/


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 3/21/2010 1:42 PM (GMT -7)   
Randy I know for sure pb4 lives in Calgary, Alberta. It might be worth holding out for her. Good luck.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/21/2010 7:48 PM (GMT -7)   
Yup, I live in Alberta, just outside of Calgary (for now)...Randy, this sounds bizarre to me...

Some docs take phone calls with patients and some don't, the ones that don't, don't because they can't bill their time to alberta health care, the ones that do, care more about the patient then charging the health care system for every interaction with a patient.

There is some degree of home health care (don't know what it's officially called though) mainly for elderly people and I'm sure some other exceptions.

I don't really know what kind of health issue this person you're referring to has but if it's something oddly rare, then I can't imagine that they wouldn't get proper treatment on a regular basis...it may be a hoax, I don't know, it's a very bizarre story.

The only suggestion of who to contact would be alberta health care directly...here's a link
 
 
:)


bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 3/21/2010 8:44 PM (GMT -7)   
Yeah, Randy - what you have indicated is quite "off the wall" to me too. Man, and I thought I had issues! My goodness!
I am from Northern AB. and well sorry I can't be of much help to the situation or persons that you are talking about either.
All I know is that many times I too feel like the medical system here or maybe other places too is just so darn slow and it seems it takes forever to get in to see someone, especially the smaller cities, like the one I happen to be living in.
Anyhow, I usually just "tuff it out" many many times before I go in to the hospital, and really it should be like that.
Well, if it helps I send "get well wishes" to your friend and say it may be something upstairs that's causing the problems.
But who knows. I know I spend most of my days wishing I was a flower or an oak tree so I guess we all have our moments!

Cheers!
33 yr. old female CANADIAN
dx with UC October 1998
had temp j-pouch: '98-'99
disease free & back to norm: '99-'07
dx. with CD March 2009
Currently taking: Remicade mthly & Imarun


In my next life: I want to be a big beautiful oak tree or something like that... so I can live off of just sunshine and water.


Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 3/21/2010 8:49 PM (GMT -7)   
Randy after giving your story another read, I must say when I had my ostomy on my side awhile back, I had help from home care which was arranged thru the hospial and drs. that I saw when I was really sick back in '98.
There should be help ava. out there - you just gotta know where to look and who to talk to.
Home Care should be able to help this person, if not I would be suprized.
Call HEALTH LINK - I did once and they are very helpful with many things.
I also agree with the diatition thing as well, I have seen many and sometimes it can be a waste of time.
33 yr. old female CANADIAN
dx with UC October 1998
had temp j-pouch: '98-'99
disease free & back to norm: '99-'07
dx. with CD March 2009
Currently taking: Remicade mthly & Imarun


In my next life: I want to be a big beautiful oak tree or something like that... so I can live off of just sunshine and water.


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/21/2010 10:41 PM (GMT -7)   
Sounds like BC is like Alberta. Some Dr's will talk on the phone. I'd think in the major cities any care would be avaliable. If this person's in a small town there may be access problems. Perhaps this person is putting up imaginary blocks to avoid treatment? Sounds like a tough situation. Don't get buried in it Randy, it may end up affecting your health. Rob
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 3/22/2010 1:16 AM (GMT -7)   
ok thanks guys i will send along the link to alberta health.. in a way i hope its a hoax, so that somebody really aint that bad off, but who knows.. if i figure it out ill let ya know.
randynoguts 



     http://www.geocities.com/randynogutsweb/


AB crohnie
New Member


Date Joined Oct 2008
Total Posts : 17
   Posted 3/22/2010 11:20 AM (GMT -7)   
I am also from Southern Alberta (Taber). My mom has Devic's Disease (NMO & TM) and she has home care on a regular basis. They come and change catheters and are also able to do other stuff that she doesn't want. My dad does the majority but can have help if needed. Mom went to a doctor in our local clinic who helped set it all up.

Our doctors in this local area are very willing to talk on the phone. They will verify alberta health care number and date of birth before they will give out any information. Our clinic feels that they are able to save a lot of time and money (government) by doing refills and test results over the phone. This way, they can see the patients that require office visits a lot sooner. If you need more info, please let me know. If I live in the right area, I can also get some phone numbers for you to pass on. Hope this helps!
Diagnosed on my birthday in April 2008. Happy birthday to me!!
Currently on Imuran and Pantoloc and various vitamins
Resection in October 2008, feel great now
Female, 42 years young


comedybob
Regular Member


Date Joined Jan 2010
Total Posts : 241
   Posted 3/22/2010 12:58 PM (GMT -7)   

Randy

the VON still exists, and there is a new next door nurse service. I will get the name and number for you later today. I also live in alberta, and it is the doctor who decides if they will talk on the phone. because they can't bill for phone calls, some refuse. $$$$


bob b
13 year old son diagnosed at 9,
one month of pred at beginning 
2 years of immuran ineffective
SCD seems to be helping(less pain gained 3 pounds in three weeks)


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 3/23/2010 1:54 AM (GMT -7)   
thanks AB and BOB.. ill pass that on.. they way the story goes, this person apparently has been kinda kept at home by family that may not be to hospitable to the outside world, so that may have some bearing on the issue as well. apparently the computer access is fairly new and the person is seeking help. so thanks again guys and gals.
randynoguts 



     http://www.geocities.com/randynogutsweb/


comedybob
Regular Member


Date Joined Jan 2010
Total Posts : 241
   Posted 3/23/2010 5:48 AM (GMT -7)   
try that
bob b
13 year old son diagnosed at 9,
one month of pred at beginning 
2 years of immuran ineffective
SCD seems to be helping(less pain gained 3 pounds in three weeks)


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 3/23/2010 9:31 PM (GMT -7)   
thanks everyone i passed on the info and links..;0)
randynoguts 



     http://www.geocities.com/randynogutsweb/

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