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Janger84
New Member


Date Joined Mar 2010
Total Posts : 8
   Posted 3/21/2010 8:34 AM (GMT -7)   
does anyone else suffer from Kidney Stones as a result of their chron's disease. if so any tips or advice you can offer?

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/21/2010 8:37 AM (GMT -7)   
We have a few members here who suffer with kidney stones. Hopefully one will be along soon, but yes it does happen with Crohns. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/21/2010 8:37 AM (GMT -7)   
As a result? I talked to my rheummy and I dont think Kidney stones and Crohn's Are really related. Most of the time Stones are Chronic.. As in you get em once or prone to them again.

I learned that there are a few things you can do to decrease your chance of kidney stones by A LOT.
1. Asparagus - #1 Veggie for Kidneys.
2. Water Water Water
3. Have Citrus or Acidic fluids such as orange juice or lemonade atleast a few times a week.
4. Very important: Have VITAMIN D with your calcium containing foods. <--- Will allow absorption instead of calcification.

I hope these helped. I bet they will if you follow them. :-D
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 3/21/2010 1:34 PM (GMT -7)   
Yep. I get them & I was told they are linked. The only sound advice I can give is, plenty of fluids.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Sarah_B
Regular Member


Date Joined Feb 2009
Total Posts : 82
   Posted 3/23/2010 7:22 AM (GMT -7)   
The only kidney stone I have had was before my diagnosis and likely the result of dehydration (Crohn's-related). Everyone's right about the water; stay hydrated! There are a whole bunch of foods you're supposed to avoid to reduce the risk of kidney stones, but it doesn't seem to practical too avoid all of them, so as long as you don't have chronic stones, just try to stay hydrated.
22 years old, Female.
Diagnosed with Crohn's Ileocolitis November 2008.
Currently taking Remicade, 50 mg 6-MP.


mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 3/23/2010 7:39 AM (GMT -7)   
I most likely passed a small kidney stone in October (worst. pain. ever.) and was told they could be linked. They did a scan and found a handful of other stones, but they should be too small to give me any more problems. But yes, as everyone else said, plenty of fluids.
21 y/o, diagnosed 6/2007

Symptoms currently under control with Humira and a wheat-free, processed food-free diet. Beginning to have symptoms of GERD...


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 3/23/2010 8:28 AM (GMT -7)   
I have had enough kidney stones to pave my drive and yes they are crohns related. The fluid that does not get taken out of your stool never makes it to the kidney. Call it dehidration if you will but all the water intake in the world will not help if it passes through you and never gets to the body. First of all find out what type of stones you are having. If they are uric acid, there is a med called alapurinal that will lower the acid level in you body and this will help you. If they are calcium stones your diet will need to be altered. See your urologist if you have doubts. Do drink more water but that alone will not solve the problem. Hope this helps.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 3/23/2010 12:09 PM (GMT -7)   
Sniper is correct. Stones are more common with CD patients due to some fluid absorbtion issues in the bowel related to the inflammation and scarring. I would suggest consulting a urologist. Thereis a urine collection test they can do to determine what minerals are contributing to your stones, and then various medications and dietary changes that can greatly reduce the likelihood of them recurring. One note on allopurinol -- if you are on Imuran or 6mp for your Crohns, dosages of that and allopurinol may have to be adjusted, as they are related medications.

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 4/1/2010 9:51 PM (GMT -7)   
oh yeah...i've had about 8 of them now...old pro i guess. haha. all the docs told me with crohn's it's not so uncommon...they told me to drink beer and lemonade- i guess the chemical compunds help to break up the stones...of course beer and lemonade are not good for my gut...haven't had one in a few months now...keeping fingers crossed.
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently tapering prednisone (15 mgs) and I've been on 6_MP for 2 months.
In the middle of a bad flare now for 6 months...lost almost 30 lbs.


$rules
New Member


Date Joined Feb 2010
Total Posts : 15
   Posted 4/8/2010 4:41 AM (GMT -7)   
I had a kidney stone 5 years ago...darn it hurt! Eventually it came out (like 2 months passed!), yes i did see a consultant & did the lypotripsy thing.

They analysed it and was a calcium build up. Stopped drinking dairy 3 yrs ago & havn't had any problems since. It's only common sense that if it is calcium based, maybe you're consuming too much calcium? Our body's get rid of excess minerals. But the doc didn't tell me that, like everything else i've learnt, all from my own research

cindywchrones
Veteran Member


Date Joined Mar 2005
Total Posts : 1115
   Posted 4/8/2010 1:48 PM (GMT -7)   

I was told with inflammed bowels that it can cause the malabsorbtion of calcium which causes kidney stones.  I had a real problem with those when I was at my worst.  I still suffer from frequent UTIs.  I did have a procedure done called dialation therapy due to scar tissue build up.  I still have stones present in my kidneys everytime a CT is done.

Cindy


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 4/8/2010 4:12 PM (GMT -7)   
What Gastro said there wasn't a link? Gimme a break!
The link between stones & CD is long established.
Personally, I lost count of how many I have had some years ago. Fortunately, I haven't suffered with them since 2007.
****
I think, Sniper, you are now Stone King. I hated the title while I held it.

Matthew

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/10/2010 8:53 PM (GMT -7)   
Matthew, I dont wantstabe da stone king !!! Glad your passing the title and not the stones though....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

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