I had my surgery.

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Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/21/2010 1:49 PM (GMT -7)   
Hey guys, I had my surgery on Tuesday morning as I said. It was supposed to be single incision, but they told me right before they'd be doing it with the traditional 4 incisions - they said it would be really risky with one for one incision for me because of all of the problems I had been having, they didn't think it would be too good of an idea.

I got there around 6 am, and I was in the OR before 8. I woke up around 11 AM in the OR. I didn't get an epidural, I asked for a pain pump instead since I was afraid of getting one. Apparently the epidurals are better for pain control, but oh well. When I woke up, I remember being SO tired and I was in so much pain that even talking hurt. Within 15 mins, I was able to drink a bit of water which was nice. I also haven't thrown up since my surgery! I felt fine to go up to my room around 12:30, but they kept me there until 1 since they had to prepare my room. I got very lucky, my insurance covers semi-private rooms (I'm in Canada), but they didn't have any left so I was upgraded to a private room. The hospital is on the top of a mountain so it has gorgeous views and great air, which was awesome. I was able to get in and out of bed within 15 minutes of getting there, without any help, which was awesome. I also didn't need a catheter nasogastric tube reinserted, but it was HARD to pee for a while. Things only started going back to normal on Friday.

By the next day, I was eating toast and had some chicken noodle soup. My pain started getting worse again by early afternoon, and stayed quite bad until Friday morning (I was discharged Friday afternoon around 4:30). I had my first BM on Wednesday, but I didn't pass any gas until Friday, which was kind of weird, except that I was able to burp a couple of hours after my surgery. My bowels also did start moving very quickly after returning to my room, which I guess was a good sign, since them and I could hear them. I was taken off the pain pump on Thursday and switched to oral meds, I'm on 4 things now, a stool softener, antibiotics, 10 mg Oxycodone every 3 hours and 10 mg Oxycontin every 12. Wednesday and Thursday I was feeling a lot worse though, it felt like I wasn't going to get better or something, but Friday night, I just started dramatically feeling better and I feel almost back to normal already, which is great. I'm going to try to go to a movie tonight, it'll be my first try driving. I'm going to bring a pillow to put over my tummy in the car like I did when I came home from the hospital. I'm in pain, but it's manageable. Just more tired than anything. I've been taking lots of naps and reading.

Those stupid socks they make you wear are so annoying!! They were driving me nuts, I was so glad to have them taken off on Friday. When I did, my feet were huge too. I couldn't fit into my flats, I had to wear slippers home (and use a wheelchair since my room was on the 18th floor lol). They're finally shrinking a bit, not normal yet but not as huge as they were. I hate those stupid respirometers too, I actually had quite a bit of trouble with it, even though my breathing and oxygen levels and all that are fine. Being a smoker probably doesn't help with that though.

They ended up taking out 20 CM from my ileum - ascending colon, which isn't too bad. Here's a couple of pics, I still have tape on them so I wonder what it looks like underneath. The second is a closeup of the big one over my bellybutton, which is somewhere under there, I guess. haha.

http://i31.photobucket.com/albums/c377/valerie295/scars.jpg?t=1269221772
http://i31.photobucket.com/albums/c377/valerie295/bellybutton.jpg?t=1269221857


I'll keep you guys updated on my recovery. Do you guys have any advice about what type of stuff I should be eating? I didn't get a chance to ask a lot before I left unfortunately, because I thought I'd be seeing my doctor again before I left, but I left sooner than expected. How long should I wait before eating stuff that's spicy, pizza, burgers, subs, stuff like that? I know some of you are probably going to say I never should, but I've never had to restrict my diet, and my doctor has actually advised me not to. For the time being, I'm sticking to stuff like chicken salad sandwiches, mac and cheese, scrambled eggs, toast, popsicles, jello and soup, but I want to know when I can eat other stuff that I enjoy, especially since I have a birthday party for a close friend that I wanted to attend next weekend.

Also, how soon after is it safe to drink alcohol?

Thanks guys, when the tape falls off I'll post more pics. I've got to go and shower and get ready for going out, I'll let you know how that pans out. I can't believe it's already been 5 days since my surgery. Time flies!

________________________________________________--

just activated links

Post Edited (Valerie3) : 3/21/2010 7:37:46 PM (GMT-6)


Zazucat
Regular Member


Date Joined Dec 2006
Total Posts : 177
   Posted 3/21/2010 2:27 PM (GMT -7)   
Thanks for sharing that, it's interesting to see what it's like because I've never had surgery- but I'm afraid I may have to soon. I'm amazed that you're feeling so much better already! Keep getting better!
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/21/2010 2:34 PM (GMT -7)   
Thanks for keeping us in the loop
great you are doing so well after only 5 days
i am thinking alcohol might not be a good idea but thats jmho....
let us know how you are continuing to make out
lyn
Long Time Member of da Family

Crohns..Fibromyalgia,,Neuropathy...Deaf...Seizures Pyoderma gangrenosum


Co mod for Crohns...Anxiety/Panic and Alzheimers

lyn


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/21/2010 2:41 PM (GMT -7)   
I know it wouldn't be yet, but I'm wondering how long until it'll be OK.
I'm seeing my GI on Wednesday and my surgeron in 2 weeks though, which is good.
I'll keep you guys updated though.

Another thing I found kind of scary was that after my surgery, my hgb was 105, then the next day, it went down to 88. That was quite scary, but then somehow, the next day it went back up again to 99. Weird how it fluctuates so much.
I'm also having a LOT of D, is this normal? Like whenever I have to pee, almost. It's sort of weird since I don't really have much feeling down there, lol.

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/21/2010 3:25 PM (GMT -7)   
Those pics dont seem to work. But Im happy for you!
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


Djin
Regular Member


Date Joined Jan 2010
Total Posts : 265
   Posted 3/21/2010 3:49 PM (GMT -7)   
Congratz for your success!!!

A good estimation for food liberation (to exagerate, if you dare tongue ) is 3 months. But ppl start before that. In one month and so you are going to feel quite free.

Pizza (take care here!) is usually ok after 3-4 weeks.

good luck.
 
-------------------------------------------
Diagnosed in nov/94 - Started with Prednisone, followed by Pentasa, entocort, flagyl, Imuran, Cipro, etc.
Blockage - First Surgery 2001 (no ressection)
Severe bleedind - 2003 - Stopped by 60mg of Prednisone
Stricture leading to a ressection in Dec/2008 - Second Surgery
Now on Remicade + 100 mg Imuran + Iron (sort of remission, not sure at all)
 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/21/2010 4:18 PM (GMT -7)   
I also tried to get the links to work and cannot.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


mull
Regular Member


Date Joined Feb 2009
Total Posts : 86
   Posted 3/21/2010 4:37 PM (GMT -7)   
god u are flying i remember when i had my first i was 3 and a half monthsbut its 12 yrs since i had any thank god good on u
im a 40 yr old woman who has CD since 1993..
current medication is pentassa and purinethol.


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 3/21/2010 4:47 PM (GMT -7)   
Sounds like you're doing quite well. I stayed away from booze for at least a couple weeks, and had no problems.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/21/2010 5:17 PM (GMT -7)   
I am glad you are doing well!
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/21/2010 6:17 PM (GMT -7)   
I edited the links, they should work now. Weird that they didn't. Sorry about that!

Thanks for your support guys, I was hoping I'd do well. I did great at the movies, driving was fine as well. It was a bit weird doing tight turns, but I was fine. I left a really soft pillow in my car so I place it between my tummy and seatbelt to avoid pressure. It's really comfy actually. Tomorrow I may go in to work to visit people, and I think I'll be able to work from home for a few hours a week. I could probably start again in a week or so if I wanted to, but I think I need some time to rest up instead of overexerting myself. I don't even need pain meds really now though, it's crazy!

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/21/2010 6:34 PM (GMT -7)   
No, Your links take you straight to the website
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/21/2010 6:36 PM (GMT -7)   
ugh, OK, copy and paste them now, they work. too many meds make me confused apparently. haha sorry!

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/21/2010 6:42 PM (GMT -7)   
Wow not to bad at all, looks really good considering how close to surgery you are.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 3/21/2010 8:14 PM (GMT -7)   
I'm so glad to hear you're doing well. It's good, and much quicker since you weren't completely opened up. After my surgeries I just ate light and gradually added foods. Just see how things go and adjust what you're eating based on how your body reacts.

Are your feet still swollen? Walking around should help that quite a bit. Just try to walk about 5 minutes each hour, and you'll see an improvement! (mine got really swollen and gross when I was in the hospital this last time...I hated it, so I walked as much as I could)

Hope you continue to improve!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 3/21/2010 8:18 PM (GMT -7)   
Soooo glad to hear that you are doing well and DID so well :)

It is reassuring to hear your story, if I should ever need surgery in the future.. I'll think of your story.. Positive thoughts lead to positive experiences, for the most part anyways :)

Good luck on your recovery and I hope it continues at a good pace!!
 Diagnosed with Ulcerative Colitis January 31st, 2005, Testing for Crohn's 3/10
 Prior Meds:
Canasa, Rowasa, Lialda, Apriso, Prednisone, 1 infusion of Remicade.. none of those worked for too long... Had neurological complications from the Remicade...
 Current Meds:
Pentasa 2000mg 2x a day, Entocort 9mg daily, Nexium 40mg once a day, Wellbutrin 150mg once a day. Culturelle 2x a day, Xanax as needed and Ambien at night for sleep..  
       http://www.myspace.com/77016897  


Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 3/21/2010 9:13 PM (GMT -7)   
Hey there, from one Canadian to another, great to hear your doing well! Reading your post took me back when I had surgery and my god it wasn't so easy, I was pretty sick. I ended up with a temp. ostomy and it was a very hard thing to deal with.
Just a bit of advice - take it easy!!! These types of diseases I sure we can all say they tend to spring up out of nowhere and suprise the heck out of us for the good AND for the bad too!
So just be careful! Feeling good or better and not so sick is a GREAT feeling! But don't go too crazie if you know what I mean.
If you want to drink beer or wine, coolers or whatever you wish I would ease into it very slowly, sip it and use in moderation.

Have FUN and best wishes!
33 yr. old female CANADIAN
dx with UC October 1998
had temp j-pouch: '98-'99
disease free & back to norm: '99-'07
dx. with CD March 2009
Currently taking: Remicade mthly & Imarun


In my next life: I want to be a big beautiful oak tree or something like that... so I can live off of just sunshine and water.


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/21/2010 10:13 PM (GMT -7)   
Congrats on your sucess! Just don't be in a huge hurry to introduce foods that are hard to digest and keep to smaller amounts. give those inside scars time to heal.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1718
   Posted 3/22/2010 3:59 AM (GMT -7)   
Wow, you were eating toast & soup that soon? It was at least 5 days before I could have anything that wasn't clear. Then once home I gradually added back soft foods. It was at least 3 weeks or so before I was brave enough to try anything with any texture or spice. But now I'm ok, surgery was Jan 15. The hospital dietary gave me a list of foods prior to discharge that guided my on when I could try to add what foods. I think it's alot to do with not wanting to aggrevate the anastamosis and let it heal.

good luck, keep feeling well.
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/22/2010 7:02 AM (GMT -7)   
Congrats on making it thru your surgery. Lets hope this leads to a long long remission. Remember to take your maintainence meds, you don't want a repeat. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/26/2010 4:29 PM (GMT -7)   
Update! I went to see my doctor on Wednesday, and it was lucky I did because my pain started to get pretty bad on Tuesday morning, then Wednesday before my appointment I kept almost passing out. I ended up having to be readmitted, I needed 2 blood transfusions because my hgb was at 72, and I had post-op peritonitis. I was let out again today after being on IV antibiotics, and I've got a 10 day course of Cipro and Flagyl. My doctor wants to see me on a weekly basis to make sure nothing else happens, and I've got his nurse's home number in case anything goes wrong over the weekend. I must say, I'm lucky I've got such a good GI and nurse, it was amazing how they got me through the ER so quickly. They got my fast tracked so I didn't have to wait in the ER (I'm in Canada) and I got another private room. Definitely sick of the hospital though, I really hope I don't have to go back again!

smallgit
Regular Member


Date Joined Feb 2010
Total Posts : 29
   Posted 3/26/2010 10:44 PM (GMT -7)   
Hey Valerie, I'm just reading your posts for the first time and was wondering what type of surgery did you have? Was it a partial enterectomy because of your crohn's or did you also have a fistula? I have a fistula - enterocutaneous - and am considering surgery for the same...i've had it for 8 months now but i also had a partial enterectomy last July (hence the fistula)...I'm trying to find people in a similar situation as me...the only diff is that i don't have crohns...however, most people with enterocutaneous fistulas tend also to have crohns so this is my best bet :o/

anyone out there familiarize with me? I am in dire need of getting rid of this fistula :o(
A survivor of CAPS - Catastrophic Antiphospholipid Syndrome with infarcts in one kidney, spleen, liver, and intestines in July '09

Surgeries: cholecystectomy, partial enterectomy x 2 with surgical complication of EC fistula
Meds: Lovenox daily subQ injections, Metoprolol for hi BP
Previous Meds: Ritoxan, Methotrexate, Plasmapheresis, innumerable blood transfusions, and antibiotics galore.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/27/2010 6:45 AM (GMT -7)   
Hey Valerie, please don't rush your healing along. Just allow yourself to rest and recuperate. If you rush you could end up setting yourself back some. Give yourself the time off of work allotted to you. You may think you are stronger, but end up going back to work too soon sometimes will surprise you how much it wears you out. Just take it slow and easy. Remember you just had major surgery, so take it slow and easy. Good luck to you!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/27/2010 7:17 AM (GMT -7)   
Smallgit - My fistula was between 2 segments of my bowel, not to my skin, but plenty of people here have enterocutaneous fistulas, I see more posts about them than the internal ones like I had. I had a portion of my intestines removed from my terminal ileum to my ascending colon, due to a combination of factors - the fistula, abscesses, perforation, and severe inflammation in general. I'm sure plenty of people here will be able to help you, but unfortunately, my fistula was totally different than yours, I actually had no idea that I even had it lol. Sorry!

Nanners - You're totally right. I have a really hard time sitting still! I'm resting a lot though, which is good, after being hospitalized again, I definitely don't think I'll be rushing to go back to work, but I do like to try to get out for a little bit each day so that I don't go stir crazy. I'm not running marathons or anything, and I'm generally a lot more tired than usual, but I have virtually no pain right now, so it's hard to remember that I'm recovering from a major surgery.

After the whole peritonitis thing though, I've had really bad D (going every half hour), which made me miserable, so I'm taking Imodium (my surgeon told me it was OK as long as I was careful), which has taken away my cramping and need to run to the bathroom 24/7, which is nice. I only took 1 yesterday around 2 PM, so I'm going to wait until I have a substantial BM before having another so that I don't end up obstructing or something, because that definitely wouldn't be good for my healing. The last thing I want is to be hospitalized AGAIN next week, twice was more than enough for me.

Also, on another note - I've got the tape off my incisions. They look pretty good, except the one on my belly button is driving me nuts. They actually went above and below my belly button (basically, they went entirely through it), about half an inch on either side. It looks like I have no belly button now! I asked my surgeon and he said that once the sutures come out of my belly button in a couple of months, it should go back to a relatively normal looking shape. Have you guys had it done this way or heard of it being done this way? It feels/looks like my belly button will never look normal again, which is driving me nuts. :(

I'll keep you guys updated as things progress, hopefully the antibiotics clear everything up. I'm just relieved that it was peritonitis and not an anastomotic leak, because my GI was worried that I might have had one with the way my symptoms were presenting. On the scans, they didn't see any contrast leak into my abdominal cavity and they said that the anastomosis looked great, so it's likely that there was some bacteria that just ended up in my abdominal cavity during surgery. I was really worried that I might've had to have an ileostomy or something with the way that things were going on Wednesday.

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 3/28/2010 3:25 PM (GMT -7)   
wow, that is amazing - they discharged you before you had a bowel movement (assuming i read it correctly). in the US they wont let you go until you have a BM. typically you are kept about 4 days. in my case it was 13 cos my system would shut down and then i'd get pneumonia (yeah).

dont be quick to drive. i did it a week after surgery and it set me back 2-4 weeks. very bad idea. driving is actually very taxing cos of the sitting position requiring your abs to hold your core up like that - dont count on the seat doing all the work. and driving is worse than sitting in the car cos with driving you have a lot of movements and everything is ab related. so ease into it is my advice.

take everything super easy and slow. dont be in a hurry to go running or lift weights. i had to literally start from scratch going back to the gym. i went from bench pressing like 200 lbs to 10 lbs when i started going again cos it is hard at first to do any movements where you engage the abdominal muscles to a large degree. even if you are not working the abs directly, any physical activity is demanding on the core.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

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