New to posting and need advice!

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JennA1300
New Member


Date Joined Jan 2010
Total Posts : 4
   Posted 3/21/2010 2:06 PM (GMT -7)   
I've been reading the forums since it was first mentioned to me that I may or may not have crohns.  I was JUST diagnosed in January but my "stomach problems" started three years ago when I thought I had an allergy to specific foods which gave me abdominal craps and nausia.  And occasionally pain that would cause me to black out...
 
After being diagnosed I was given Pentasa, which I still take, as well as Purinethol, which from what was explained to me could elimnate the need for surgery in the furture.  (Something called a fisher? had attached itself from the bowel wall to my bladder.)
 
Last week I was rushed to emergency because of extreme abdominal pain but outside of what my norm is.  After and ultra sound, MRI and multiple blood tests they told me I had a panceitic attack set off my gallstones.  Now I need to have my gallbladder removed, but the surgen informed me that I got those gallstones from my crohns disease.
 
Anyone else in the same boat that can lend assistance? I'm told a low fat and low fiber diet... Which is looking harder and harder to accomplish.
 
J.

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 3/21/2010 2:11 PM (GMT -7)   
I am sorry you having trouble. I have never had problems with with my gallbladder due to disease so
I'm not sure about that. I hope others here have some good advice for you. Hang in there.
Living with Crohn's Disease since Jan./2000 
I'm a true Crohnie with IBS and Arthrities too. I have Crohn's very mild compared to a lot of Crohn's people.
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Tramadol for the pain
                               Cimzia Injections. Just started on 9/30/2009                      
No Surgeries
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/21/2010 2:27 PM (GMT -7)   
A warm welcome to you
like LBJ I have not had issues with gallbladder but iam sure that those that have will post to you soon...
sometimes wknds are a bit slower
again welcome and stay with us
lyn
Long Time Member of da Family

Crohns..Fibromyalgia,,Neuropathy...Deaf...Seizures Pyoderma gangrenosum


Co mod for Crohns...Anxiety/Panic and Alzheimers

lyn


JennA1300
New Member


Date Joined Jan 2010
Total Posts : 4
   Posted 3/21/2010 3:48 PM (GMT -7)   
Thanks guys! From what I'm reading most people don't flare much... I guess I'm going to have to talk to my GI after my surgery and recovery because for me I end up in pain at least three times a week... I'm hoping most of this goes away after the surgery.

mull
Regular Member


Date Joined Feb 2009
Total Posts : 86
   Posted 3/21/2010 4:42 PM (GMT -7)   
well i am on the same meds but i remember last yr i got bad pain like that but i honestly thought it was the crohns they said it was an emflamed gallblader and stones but they settled down to be honest dont no weather its the crohns that brings it on
im a 40 yr old woman who has CD since 1993..
current medication is pentassa and purinethol.


What A Life
Regular Member


Date Joined Mar 2010
Total Posts : 116
   Posted 3/21/2010 7:01 PM (GMT -7)   
Pain is not directly associated with a flare. I think a lot of us have stomach pains even when we aren't flaring. Sometimes it's hard to tell what your pain is coming from. I have so many different types of stomach-pains; that I attribute it to gas, inflammation, ate something that didn't agree with me, having a spout of D brewing, indigestion, intestinal spasm, ulcer, etc etc etc. Of course; many of us show now symptoms when in remission, but I would never say I'm completely "pain free."

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/21/2010 10:51 PM (GMT -7)   
I had similar problems and when I was diagnosed with gallstones I had laproscopic surgury to remove my gallbladder in Nov 2009. It did eliminate a certain pain I almost always had above my belly button. So I consider the surgury sucessful. It was easy to recover from, just 3 small incisions. It was sore for 2 or 3 days then calmed down fairly quickly. I've noticed that my acid reflux problems have really calmed down as well.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

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