Flaring on Cimzia

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LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 3/21/2010 2:08 PM (GMT -7)   
sad   I started on Cimzia end of Sept. and really started feeling good after I got going on it.
Well last injection I did actually on my b-day 3/5 and two days later I was flaring living
in the bathroom.  I can't get it under control.  Saw my GI doc this past Friday and he doesn't
know what to do with me.  I am running out of med choices. :-(   I am due for injection
this Friday and he wants me to call him the following friday and let him know how I am.
If not better he is going to order another Cimzia injection for me to take. He said sometimes
when flaring on it if I double up on it again 2 weeks after last one it will sometimes jump start
it to settle down....sometimes....  Sigh.....   I don't understand how it was doing so good and
now I'm flaring. shakehead
Living with Crohn's Disease since Jan./2000 
I'm a true Crohnie with IBS and Arthrities too. I have Crohn's very mild compared to a lot of Crohn's people.
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Tramadol for the pain
                               Cimzia Injections. Just started on 9/30/2009                      
No Surgeries
 


Zazucat
Regular Member


Date Joined Dec 2006
Total Posts : 177
   Posted 3/21/2010 2:22 PM (GMT -7)   
I'm going through the exact same thing with Humira. It sucks... after the loading doses I thought I had my life back, and now I feel worse than I did before I started the drugs. I hope you start feeling better soon.

pmedic
Veteran Member


Date Joined Nov 2009
Total Posts : 1658
   Posted 3/21/2010 2:23 PM (GMT -7)   
The exact same thing is happening to me. I have been on Cimzia for about 8 months and I am now flaring and wondering if this is the end of this drug. I will call my GI tomorrow and thinking about a course of prednisone to get the bleeding under control if herbal products won't do the trick. Is your Dr. considering putting you on Prednisone to possibly throw you back into remission?
Dx:Ulcerative Colitis March 2008
Dx: Crohns May 2008
No surgeries yet but I am desperately trying to keep my colon.
8 blood transfusions, SVT due to low H&H, Anxiety during new medication injections due to past reactions. 
Been through MANY medications with terrible results.
Currently on Cimzia, Welchol (for crohns), Ambien (prn), xanax(prn), Cod Liver Oil and Feosol iron.
Organic diet has made a big difference for me. 
Learning how to love life and relax. 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/21/2010 2:30 PM (GMT -7)   
So sorry to hear bout all you going thru this
i was not on this med and i can only wish you better in the future
plz do keep us posted
am sure others will be along as well with their input
lyn
Long Time Member of da Family

Crohns..Fibromyalgia,,Neuropathy...Deaf...Seizures Pyoderma gangrenosum


Co mod for Crohns...Anxiety/Panic and Alzheimers

lyn


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 3/21/2010 2:40 PM (GMT -7)   
I think flares do happen even if you are taking anti-tnf agents. They should limit the frequency of the flares, but like everything else for crohn's, as I'm sure you already know, they are just therapies meant to reduce the number of flares. I have heard of others on remicade who have some break through flare ups taking prednisone to control those flares, or pushing up the infusion date, to get the flare under control.

I think the problem comes if you are unable to control the flare up with cimzia and maybe pred. I think the doctor is on the right track - increase the dosage/frequency of the cimzia, and hopefully that'll stop the flare in its tracks. Now, if this doesn't work, then, you have to think about other med choices (perhaps add mtx to the mix perhaps) to help control the flare up. Hopefully it will work, and continue working for a long time. I'll keep my fingers crossed for you.

Hope you get to feeling back to normal soon.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 3/22/2010 3:18 PM (GMT -7)   
Thank you everyone. He wanted to put me on predisone and I turned it down. lol I know bad
but I don't like that stuff. It doesn't put me in remission and it makes me feel horrible everywhere
else meaning it effects my mood, I break out, gain weight, and just feel horrible on it. I can't handle
the side effects. I would rather try and push up my shot date and try the double dosing first. I'm
trying to hang in there until then.
Living with Crohn's Disease since Jan./2000 
I'm a true Crohnie with IBS and Arthrities too. I have Crohn's very mild compared to a lot of Crohn's people.
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Tramadol for the pain
                               Cimzia Injections. Just started on 9/30/2009                      
No Surgeries
 

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