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Janger84
New Member


Date Joined Mar 2010
Total Posts : 8
   Posted 3/21/2010 2:40 PM (GMT -7)   
hi! . I am 25 Yrs old, I have had chron's disease for 11 years now. At first i had a rough time with flares, i had about 7 from age 14 - 20. For the past 5 years though i have been flare up free first i was on remicade for 3 years which worked good but i had some reactions and since then i have been on the humira pen. overall compared to alot of people with this i have been very lucky i have been doing good for the most part but i am starting to get some arthritis like pain and a lil more fatigue than usual. Im not really sure what i want to get out of this site im just looking to talk with people who deal with the same things and maybe give some advice from my expiriences.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/21/2010 2:45 PM (GMT -7)   
Hi there, Janger, and welcome.

Fatigue is really hard to cope with, isn't it? Have you spoken with your doctor about the joint pain and fatigue? Did s/he have any ideas about what might be causing it?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/21/2010 2:52 PM (GMT -7)   
Hi and welcome
i have extreme fatigue as well as joint pain but am learning i just need to slow down n cat nap when i have gotten to the point of cant keep eyes open
hot tubbys for me and lyrica helps me out alot with joint pain
stay with us n again welcome
lyn
Long Time Member of da Family

Crohns..Fibromyalgia,,Neuropathy...Deaf...Seizures Pyoderma gangrenosum


Co mod for Crohns...Anxiety/Panic and Alzheimers

lyn


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/21/2010 11:03 PM (GMT -7)   
Fatigue is a problem because so many things can cause it, it's so hard to figure out what it is. Personally I've found 2 drugs that cause it in me, predinsone above 20 mg per day and 5-asa's at medium to high doses.


Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/22/2010 6:44 AM (GMT -7)   
One thing I always encourage people with fatigue is to check out your b-12 level, and of course if you have anemia.
Heat also helps with my joint pain.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/22/2010 6:53 AM (GMT -7)   
Hey Janger and welcome to Healingwell. I am currently in remission, but always have two things that stay with me. 1) Fatigue and 2) joint pain. Many of us with Crohns also suffer with some form of arthritis, I personally have Osteoarthritis. Currently needing knee replacements. I think part of my damage is from using Prednisone, but I also believe part of it from the disease. I agree with Navy, heat is my best friend when I am hurting. Hope to hear more from you.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Janger84
New Member


Date Joined Mar 2010
Total Posts : 8
   Posted 3/25/2010 4:07 AM (GMT -7)   
MMMNAVY said...
One thing I always encourage people with fatigue is to check out your b-12 level, and of course if you have anemia.
Heat also helps with my joint pain.


hey thanx for the advice. i know im not anemic but what b 12 could do for me no one ever mentioned that before to me.
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