well that didn't last long...

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sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 3/22/2010 6:02 PM (GMT -7)   
I've been off prednisone for approximately 3 days and already I can't get out of bed, my stomach is huge and puffy and I'm in a lot of pain with D. Does this mean imuran is out the window for me?
I have an appointment with my GI tomorrow morning... do you think she will just put me back on prednisone? I really don't like the idea of starting this stupid cycle all over again! I was being so careful with what I ate too... I missed my first day of class this semester at school :(
ETA: My stomach feels huge and like there is alot of air trapped in there... earlier I wasn't passing gas or going to the bathroom but since around 3 hours ago I have had D and some gas escaping. Could I have a partial obstruction? I'm not nauseous at all... blah!!!
female 20, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone(tapering) & 100 mg imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin

Post Edited (sickandlucky) : 3/22/2010 7:05:33 PM (GMT-6)


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/22/2010 6:16 PM (GMT -7)   
If your passing gas, or diarrhea and not vomiting.. Theres no way you even have a partial obstruction. It's common for inflammation to act up after prednisone.

I wish it wasn't so, but you seem to be acting up again because of Prednisone dependency...
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


What A Life
Regular Member


Date Joined Mar 2010
Total Posts : 116
   Posted 3/22/2010 7:18 PM (GMT -7)   
I know when I came off prednisone I didn't feel so hot. Almost as if my body needed a few days to recover because I was on it for a few months. See if your GI will let you stay off it for another day or two to see if your symptoms subside a little bit. I know it took me some time.

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/22/2010 9:46 PM (GMT -7)   
I respectfully diagree. Gas will pass through a partial obstruction as can liquids. Problem is if it doesn't clear up eventually something may plug it up and become a total obstruction.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 3/23/2010 3:58 AM (GMT -7)   
Thanks for the replies guys.... I haven't eaten except for boost since sunday and I feel a tiny bit better. Maybe she will let me go on entocort instead of prednisone? That would be good. I don't think this is just an adjustment period because I feel about as bad as I did before I went on the pred, and I did experience those each time I bumped down 5 mg after 20 mg and they were never that bad.
Hope you're all well!
female 20, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone(tapering) & 100 mg imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin

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