I had the exact thing happen, although my GI doesn't think that the Remicade was the cause.. he and I both think I already had the leisions in my brain and possibly the Remicade brought out the symptoms but didn't cause them. I only had 1 infusion and 3 weeks later was when my symptoms started.. I had numbness on the complete right side of my body, even my face and some tingling also.. They suspected MS, but spinal tap was negative.. Treatment for the numbness was to stop remicade, and within about 3 or 4 weeks, it all went away... Thank goodness the one infusion I had helped me quite a bit, cause I don't know what I'd do if I were having bad symptoms.. I'd probably be on the operating table.. UGH.. If my Crohn's symptoms do return full bore, then I will have to go right to surgery because I cant use any of the big gun medications because of this side effect..
If she is still using Remicade, Talk to the GI first, but I suggest she stop, because the scientists at Remicade think that the side effects could be permanent or even worse should I ever do it again.. After my GI talked to the Sales Reps at Humira and told them what happened, they said I can't take Humira either...
Good luck and I hope she can resolve this problem... If you have any other questions, please ask, I'll be happy to answer anything I can help you with :)
Diagnosed with Ulcerative Colitis January 31st, 2005, Testing for Crohn's 3/10
Canasa, Rowasa, Lialda, Apriso, Prednisone, 1 infusion of Remicade.. none of those worked for too long... Had neurological complications from the Remicade...
Pentasa 2000mg 2x a day, Entocort 9mg daily, Nexium 40mg once a day, Wellbutrin 150mg once a day. Culturelle 2x a day, Xanax as needed and Ambien at night for sleep.. http://www.myspace.com/77016897