Second Opinion today

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junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 3/23/2010 1:52 PM (GMT -7)   
Well first let me say thank you to everyone and all the support...this is an amazing group of people..

I had my appointment today. I liked him so much, he was kind and listened and didn't dismiss me. He said he actually gets quite a few complaints of that clinic. He went over everything. I had made this appointment before I knew what I had so it was with an internist. He acknowledged that he is not a GI but does feel it is crohn's based on the clinical symptoms and the results. He made me an appointment with the GI on April 9th. But he said he was not going to leave me miserable . He pulled up all this information on the computer and sat there and discussed all the options. He feels that since I have been flaring since December, and with the 20lbs lost that it would be better to put me on prednisone for two weeks. on the last 4 days where I am only taking 1 tablet of prednisone, add the entocort back in and see what happens..he also put me on Colestipol to firm things up..by the end of two weeks I should be seeing the new GI and he will be able to go through a more thorough management schedule. He promised me that I would not be forgotten, that when you have Crohn's , you do need a team of doctors to explain things, put you on the right course and make sure you stay there. He was flabbergasted that they gave me a medicine and sent me on my way.. no education.. nothing.

I was completely impressed with the amount of time he took, he assured me the GI is the same way.

As always.. would love your thoughts on all of this.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..

Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- just started Entocort

Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 3/23/2010 6:37 PM (GMT -7)   
I am really proud of you for being proactive and not taking no action from you G.I. as acceptable. I had a feeling that prednisone would probably be better from you since the entocort has not helped. Be aware that you are going to have some side effects like a racing heart at times, a ton of energy causing a bit of insomnia, and may get a swollen face called moon face. These are all temporary and a small price to pay if you get some relief from the Crohn's pain and symptoms. Prednisone is not an end all medication but it can help you until they get you on a Crohn's med to maintain you.
I am also really glad that you got in with an Internist. They really will take care of you and watch over you better than just having a G.I. I love my internist and see him the most. Continue to keep on them to find a medication but stay patient too in that these things take time. I am sure that you will be extremely grateful with the new G.I. considering the experience that you have already had. Stay positive and Endure till the End.

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/23/2010 10:22 PM (GMT -7)   
Prednisone can have many side effect so watch for them. I'd recommend not looking them up for a while and see if you have any.While tsitodawg got lots of energy I've also had severe fatigue from prednisone so you never know how each person will react. Good luck!
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/24/2010 6:51 AM (GMT -7)   
Sounds like you found a keeper there. And yes sometimes Pred is needed to give the Crohns what it needs to quickly quiet the inflammation down. As Grandpato2 said some people get lots of energy, and sometimes a little more fatigue. I have experienced the same as both of the above and taken Pred many many times in my many years with this dd. Oh by the way, my family doc is an internist and then I have a GI for the rest. The two work together to keep me healthier. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 3/24/2010 6:54 AM (GMT -7)   
thanks so much!! I will keep an eye on the side effects but will not read them.. I started but got scared =) I know I need something to get ahead of this so maybe this will be my answer along with the colestipol.. I really felt like I went to a dr who cared.. how wonderful!!

definitely a step in the right direction...I know its a journey but now I have a dr whom I can trust..
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..

Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- currently Prednisone, Colestipol, Propranolol

Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 3/24/2010 11:22 PM (GMT -7)   
Sometimes even when you are flaring and can not find a medication to get you into remission, an understanding doctor reassuring you that it is not in your head and they have your back can work wonders. Sure it will not take all the pain away but just having the confidence that you are truly sick and not a hypocondriac can make the hard times a lot easier. Good luck with the new doc.

kmfdm
Regular Member


Date Joined Jun 2008
Total Posts : 78
   Posted 3/25/2010 1:13 AM (GMT -7)   
I am currently on Humira shots twice a week and they have helped me tremendously. Prior to that I was on Remicade. I don't hear alot of Crohns patients on this medication and I am wondering why. Prednisone has a full page list of side effects but granted it does aid in the inflammation that occurs with Crohns'. Glychosamine Hydrochloride is also a benefit for the lack of calcium intake when you take prednisone.

junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 3/25/2010 6:08 AM (GMT -7)   
I do find that the new dr reassured me and listened and that made a world of difference... I imagine it will take some time before I see a difference with the prednisone.. its not over night... right?

Unfortunately.. I seem to be really sick with a sore throat..I noticed that the colestipol had slowed things down yesterday but this morning I seem to be back to diarrhea.. but yesterday was nice.. only went to the bathroom 4x...and I was really wired...I was up until 3am... and now feel awful..

just a rollercoaster, isn't it?
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..

Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- currently Prednisone, Colestipol, Propranolol

Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 3/25/2010 6:15 AM (GMT -7)   
Kmfdm, There are a ton of us here on Remicade or who have been on remicade. I am one of those who was on remicade for a long time, tried cimzia and humira, and now have returned back to Remicade. If you do a thread search you will find a ton of information on here from us and any of us will be more than happy to help you out if you start a thread. There are more people on humira and cimzia because they are about half the price and can be given at home through a simple injection.
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