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Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 3/24/2010 7:28 AM (GMT -7)   
I have A S and bone spurs down my backbone. I am in the middle of several days of many bathroom visits and my back is killing me. I'm sorta bent over and cant straighten up. I have a theory that the excess gas is pushing my spine out of line from the inside causing more pain that usual . What do you guys think ? Is that possible ?
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


ebrukilic
Regular Member


Date Joined Mar 2010
Total Posts : 21
   Posted 3/24/2010 8:13 AM (GMT -7)   
hi
hope u feeling ok...
i get this alot in a bad flare up and feel like i cant move :( crohns has so much more problems then just the stomach it affects everything and it annoys meeee grrrrrrrrrrrrrrrrrrrrrrr stupid crohns :)..
after a while i got my back checked out and all my joints by having a scan and found out the medicine i took for the crohns (a type of steriod) had made my bones very weak and caused me to begin athritis in my back neck wrists and ankles. get a scan and make sure u dnt have a back problem u dnt know about...
hope u get better soon

ebru
21yrs old have had crohns disease since 2003
previous meds include pentasa imuran prednisone budesinide remicade and plenty more that havent worked :)
currently on humira 20mg every 2weeks
1 operation to date removed 30cm of bowel and 1 fistula
trying to get pregnant (fingers crossed) :)))


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/24/2010 8:21 AM (GMT -7)   
Sniper, I feel the same way i hate it. Im real thin so every little push or anything touching my spine hurts. I really need to gain weight. And trying.

repeated bathroom visits causes me to lean a bit forward to. I def. Think all my back issues are crohn's related. Especially when i hurt it lifting.

Horrible Amounts of gas as well.
Hope I helped. TC
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


1asalsa
Regular Member


Date Joined Feb 2010
Total Posts : 40
   Posted 3/24/2010 3:13 PM (GMT -7)   
When that happens to me, I pay a visit to the osteopath, and get an adjustment. He works wonders for me, and it usually lasts a couple months.

SaraOnThisSite
Regular Member


Date Joined Feb 2006
Total Posts : 211
   Posted 3/24/2010 4:15 PM (GMT -7)   
My back has been in so much pain the past few months that I've been out of remission. I feel like an 80 year old woman sometimes hobbling around (And one of my many parttime jobs is retail where I constantly have to bend down and reach and it make it even worse)

Don't know about your theory but at least you're not alone with the crazy back pain! (Not that it helps your pain, but ya know, gotta stick together I suppose!)

Hope you feel better soon!
 
25 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year.  Currently on 100 mg of Mercaptopurine.  Have been on Prednisone, Asacol, and Remicade in the past.


Sarah_B
Regular Member


Date Joined Feb 2009
Total Posts : 82
   Posted 3/29/2010 1:06 PM (GMT -7)   
Sniper, if you have AS, do you think it's possible you are getting some fusion? Maybe you should go in for an X-ray.
22 years old, Female.
Diagnosed with Crohn's Ileocolitis November 2008.
Currently taking Remicade, 50 mg 6-MP.


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 3/29/2010 1:16 PM (GMT -7)   
Sniper...the pain you describe may also be inflammation pushing on a nerve. That was my problem with my severly protruding disc. The nerve pain was worse when anything nearby it inflammed including my guts.
Are you getting Physical Therapy? That was the only thing that provided relief for me other than my final result of surgery. i still get PT once in a while as the nerve was destroyed and I need to restore strength to the core muscles.

When you have back issues, you need to strengthen your core more...wondering if the gut issues are making you use the core muscles less and that is adding to the back pain too.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/29/2010 1:30 PM (GMT -7)   
I was having all kinds of back pain last fall. I was in PT and basically had all kinds of things wrong (I still think all the doctors were wrong, but what do I know). But the only thing that seemed to give me any relief was hanging from a bar for short periods of time. My husband has a pull up bar in the basement and I would stand on a chair and pull my feet up for about 20 seconds, for 3 repetitions. It was amazing how fast the relief was. If it is going to work it should work in the first day or so. I would do it 2 or 3 times a day. And I would use a heating pad, but probably just cause heat feels nice. You might be able to hang from one of those nice trees you have in your bayoo or a pipe in the basement. Basically you just want to release the pressure on your spine so anything that you can get your feet off the ground will work.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 3/29/2010 5:08 PM (GMT -7)   
James,

I don't know, in my case, Gas bubbles just find anything that HURTS if it is in my torso in general.

Sincerely,
Matthew

Yes, esp. in my back. I had that with my old slipped disc in 1989!

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/29/2010 6:04 PM (GMT -7)   
Sniper,
You might want to stop wresting gators. I do not know what else to tell ya...
Hugs,
Navy
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/6/2010 12:46 PM (GMT -7)   
LOL navy i like that one and hmmm i can picture our Sniper out there with them gators....

feel better soon my friend
huggles
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


chatter
Regular Member


Date Joined Oct 2009
Total Posts : 51
   Posted 4/6/2010 1:34 PM (GMT -7)   
yes, back pain is a constant feature and is particularly bad during a flare, along with all the other joints. I have osteoarthritis in my back and spine. I used to be a nurse so a bad back was always seen as an occupational hazard anyway. Back pain is particularly wearing, hope your feeling better soon.

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 4/6/2010 4:11 PM (GMT -7)   
Yeah, along with my kness, the Osteo has got me in my Lumbar region. Wrestling alligators really isn't recommended, even if you are a crazy Cajun! ( Is there any other kind?)

Matthew

rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 4/6/2010 5:21 PM (GMT -7)   
Sniper, I rarely hear you complain!!! I have no advice,but a prayer has been sent up for you.

Mary Lynn


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/6/2010 9:34 PM (GMT -7)   
I talked to my doc about it and he says gas can exert pressure on the bone spurs and muscle tissue in my back. Yep bone spurs. Doc says best way to describe my back is to take a candle and tilt it letting the wax run down the side, ta dahhhh, picture of my back. Zanne, I will try hanging around from a bar, but didn't you mean hang around a bar ? I've tried PT and things got worse .MMMNAVY, I havn't wrestled a gator in about 25 years . They are much easier to drag into a boat after there is a hole in their head about the size of a 22 Cal. Hard part is their brain is the size of a wallnut and the only spot that slows them down. Also remember they are reptiles so just because they are dead dosen't mean they cant still bite. Tsitodawg, down here is south louisiana we dont have basements, they tend to fill up with water . No fun going down in a flooded basement to exercise less one wants to play ,,swim for your life , thats a snake. Mary Lynn , I do complain , its usually not printable though but thanks for the prayers....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1199
   Posted 4/6/2010 9:52 PM (GMT -7)   
Awwww Sniper sorry about the back i do know where your comming from ((((((Hugs))))))!!!!!

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/7/2010 5:39 AM (GMT -7)   
Thanks Auntkay. I'm doing better now. Guess you can say I'm not full of it anymore, maybe...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 4/8/2010 7:35 AM (GMT -7)   
Hey, Snip
Hope your back is better by now? Going potty have bent isn't a good thing.
Hard enough that going potty is a constant but...if your half bent..just thinking maybe you should stay there? save some time:)
Amazing how my hernia was causing back pain. lots and lots of back pain. The nerves of the Intestinal track are everywhere in our gut. You don't have a fistual do you?  and where exactly is the bone spur?
I'm sure the warm warm weather doesn't help things from swelling either... need to break out a little ICE TEA!
 
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


KristiniaLeAnna
New Member


Date Joined Apr 2010
Total Posts : 5
   Posted 4/8/2010 8:38 AM (GMT -7)   
My back has hurt ever since I was diagnosed with Crohns too (at 16).. I feel like an old lady.. I won't even carry my children around really, it always seems to be mid to lower back.. Heating pad helps me.. I did go to the Chiro but what he did only helped for 3 days.. and it gets pricey.

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4100
   Posted 4/8/2010 10:51 AM (GMT -7)   
I have lower back pain too.  My internist and GI don't think it's related to my CD because the Crohn's is in remisssion, but I suspect they are wrong.  I get nerve pain in my groin, and numbness down my left leg.  PT definitely was expensive and made it worse.  I'm seeing a chiropractor tomorrow because I don't know what else to do.  I am constipated a lot, but I noticed that when I have D, the pain is better, which leads me to believe something is pressing on a nerve.  It really is irritating to me that my docs don't see a relationship, but it is somewhat comforting to know I'm not the only Crohnnie who has these issues.  I hope you feel better soon....I keep searching to try to figure out what will help!

51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics


AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 4/8/2010 11:50 PM (GMT -7)   
Spider, you have Crohn's, AS & bone spurs? You have a full plate. I know how much a bone spur hurts and it sounds like you have several going down your spine, OUCH!. All I can say is "pain killers" - better living through modern chemistry. Are you planning to have the spurs surgically removed? That's the only way I know of to end that pain and allow full motion again.

Take care guy.
AzJohnny

I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 4/9/2010 3:16 AM (GMT -7)   
ya think maybe you hurt it in the yard when the water meter blew? slip in the mud? trying to reach down in da hole? etc..
randynoguts 



     http://www.geocities.com/randynogutsweb/


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/9/2010 5:42 AM (GMT -7)   
Nope Randy, I was all ready bent into the turn off the water position before the waterworks show, just could not find the turn off valve with old faithful blasting me in the face. I dont plan of surgery for now AzJohnny because they will come back. My artho says wear a brace but its such an aggravation that I dont . I usually dont hurt too bad less I bend to pick something up or worse, bump into something, but when I am gassed up there is no excape from the pain. I hate pain killers too so only when I can not stand it do I take them.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/9/2010 4:00 PM (GMT -7)   
Thinking of you my friend wishing this wasnt happening
yep i hv had those gas pains but not quite as bad as you are getting but sure nuff bad for lil ole me the whiner
luvs ya
say hi to other half
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/10/2010 6:08 AM (GMT -7)   
I'll do that Lyn, in fact today is our 39th wedding anniversary. Hard to believe such a sweet lady has stayed with me long enough to be stuck with the old geezer I am now.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

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