question..need input

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tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 3/25/2010 8:12 AM (GMT -7)   
Well I was just starting to feel better after my crohns diag a month ago. medicine finally seems like it is kicking in after a week of steroids. I went to the GYN yesterday for my yearly and he found protein in my urine. He is sending it off for a culture to see if it is an infection but I don't think it is. I am so freaked out right now thinking on top of crohns my kidneys are now failing me. He said if the culture came back negative he wanted me to come in and retake the test and make sure I was hydrated. I know this is TMI but my urine is very yellow first thing in the morning and throughout the day it gets lighter. (I had my appt at 9:30am) Has anyone else had this issue? I checked up on my meds and none of them indicate they can cause protein to show up so I am at a loss. I almost didn't post this because I am afraid to know. Every website I have gone to indicates usually it is kidney issues. Some have quoted that dehydration can cause it but I am so freaked out right now. I don't know how much protein he found but he did say my urine was very concentrated.
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 3/25/2010 8:30 AM (GMT -7)   
My urine tends to be a lot darker in the morning, I guess that during the 7-8 hours sleep time I start dehydrating then during the day as I replenish the fluids it gets clearer.
In the meantime make sure you keep hydrated, I'll be keeping my fingers crossed for you that it is nothing sinister and hopefully just one of those random flukey things, let us know how things go.
 
 


JaSanne
Veteran Member


Date Joined Oct 2006
Total Posts : 2044
   Posted 3/25/2010 9:03 AM (GMT -7)   
Urine will normally be darker after a night of sleep and lighter during the day because of intake of fluids.  And meds make a difference too. 
 
Your doctor is watching this so that's a good thing, but it may not be a bad idea to contact your GI.  Sometimes meds have to be adjusted.  I'm assuming your Gyn. knows about your meds, but honestly, many doctors who aren't familiar with IBD treatment will not know about these drugs' side effects or symptoms of this disease; at least that's my experience.
 
Just keep your fluid intake going.  Hope all will be okay.
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.


tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 3/25/2010 9:23 AM (GMT -7)   
thanks guys. My gyn does know about my meds and my dx of crohns and he did admit that he is not super familiar with those drugs and their possible side effects. I have my followup with my GI in 2 weeks and I will definitely keep them in the loop regardless of the outcome. I know all about flukey tests. It was with my GYN last march that I had my first health scare. High white blood cell count, anemia and a false positive HIV test(was determined to be false positive after 4 elisa, 3 western blots and 2 DNA tests to detect it. DNA came back completly negative. The infectious disease dr I did follow up testing with said I was very lucky because there are not many instances he has seen of a false positive but now they are recognizing that autoimmune disorders can skew the initial test). The consensus is now that my crohns is what caused all of that and I was probably in an active flare. (even though through all that stress I was not having issues with my gut..go figure). I took the crohns dianosis pretty well and I believe that is because I had already faced down the possibility of one chronic horrible disease so when I was told crohns given the alternative I was ok with it.  I did not think anything could scare me as much as the possibility of HIV but this is right up there. Thank you for the support and well wishes. I will report back when I hear something from my GYN. He said it might be monday.
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.


JaSanne
Veteran Member


Date Joined Oct 2006
Total Posts : 2044
   Posted 3/25/2010 9:40 AM (GMT -7)   
Well no wonder you're concerned! That's a huge ordeal to go through!
50 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.  Severe depression past two years.


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/25/2010 10:35 PM (GMT -7)   
Most of us have darker urine in the morning but if it's darker than usual(I call it Gold) then you need to hydrate better before bed, which means getting up to pee during the night unfortunately but at least it's easier on the kidneys
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/26/2010 11:47 AM (GMT -7)   
Don't get all freaked out until you get the results back. I went for my regular check up last year and they found I had a UTI. You could have knocked me over with a feather when they called me. I had NO symptoms. I've had multiple UTI's in my life so I know what to expect, but this time, no symptoms. It was just a routine physical that found it. So just keep positive thoughts and hopefully it will just be a normal old UTI with nothing else going on. It can happen.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 3/27/2010 5:27 AM (GMT -7)   
Thank Zanne. the nurse practitioner for the GYN called yesterday with my lab results (the dr does cbc every year also) she said it looked to be consistent with my dx of crohns and they were wanting the number for my GI to send the results to. So I feel better knowing I have doctors that actually talk to each other and keep each other in the loop. I have a friend who had a daughter who consistently had protein in her urine they could not figure it out and then after two years the problem just went away..really freaky. I am praying for it to be nothing because I think a dx of kidney disease would just push me over the edge. I finally feel good after my first major flare up that lasted since October. I have energy again and my pain is more than manageable. I am trying not to thinkabout it because I know the stress is not good for me.
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.

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