When my husband was on pred, he put on a pot belly and looked like a puffer fish. He stopped the pred, and the weight just slowly melted away, and he stopped having a pot belly and looking like a puffer fish. So, once you're off the pred, things will come back to normal in terms of weight - not immediately, but they will. So don't worry about that right now. Do make sure you eat well, and don't let pred dictate what and when you eat (since pred can make you hungry a lot). Also, while on pred, and in general, it would be good for you to add calcium and vitamin D supplementation to help your bones. That is one of the most insidious dangers of prednisone use. So, if you aren't already, get to the store (after confirming with your doc that this is ok) and get vitamin D3 and Calcium Citrate and start taking them in divided doses along with meals.
My husband relies on ensure when he is flaring. I've also read that enteral nutrition can give your bowels a break and help get you out of a flare up. Maybe you can give that a shot, so that you maybe able to taper off the prednisone, and not have to up the dosage.
I'm sorry I don't have any magic bullets for you, but it sounds like you are getting good care. Hang in there honey. Hopefully you'll turn the corner soon, and be back to your life in no time!
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission