Prednisone and puffiness - how long does it take to go away? Like, in actual time :)

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wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 363
   Posted 3/25/2010 8:02 PM (GMT -7)   
So I have been on prednisone several times and have gotten a puffy face several times.  Each time i can never remember how long it took for the chipmonk cheeks to go away.  Is it usually after the pred is completely out of your system?  Or as you wean down does the puffiness go down?
 
I am on 20 mg now (down from 60) and my face and chin are puffy.  In the gramd scheme of things, I can deal with it.  But I will be happy when it goes down.  How long does it usually take?  I have gone through this about 5 times before and can't remember what it was like for me before.
 
Any input is helpful! :)
33 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, Humira, 55 30 mg Prednisone, Multivitamin, Calcium, Probiotics, Vitamin D, a few other herbal supplements my natureopath has me on.
 
Eating a Macrobiotic diet, no meat or dairy, trying to cut way back on sugar and white foods.  Trying to focus on a more holistic approach to healing. 
 
 
 


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 3/25/2010 8:49 PM (GMT -7)   
Hi Wednesday :)

I was on Pred one time, for almost 8 months.. I was on 50mg and BOY O BOY, did I get moon face... and moon back, moon neck, and about 30 extra pounds.. UGH...

Anyhow, for me, I started noticing the puffiness going away at around 15mg or so.. Then by the time I was completely off it, the changes back to normal were very noticeable. I'd say though, that now it's been about 2 months since my last dose of 2.5mg, and it's pretty much gone. You should be noticing gradual changes soon :) I still have about 10 pounds to go, but 20 of it came off without even trying, just took a bit of time..

Hope that helps :)
 Diagnosed with Ulcerative Colitis January 31st, 2005, Testing for Crohn's 3/10
 Prior Meds:
Canasa, Rowasa, Lialda, Apriso, Prednisone, 1 infusion of Remicade.. none of those worked for too long... Had neurological complications from the Remicade...
 Current Meds:
Pentasa 2000mg 2x a day, Entocort 9mg daily, Nexium 40mg once a day, Wellbutrin 150mg once a day. Culturelle 2x a day, Xanax as needed and Ambien at night for sleep..  
       http://www.myspace.com/77016897  


wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 363
   Posted 3/25/2010 8:59 PM (GMT -7)   
Thank you Susie!!  I love resposes to my questions. :)
 
I was on 40 mg (which wasn't working) then my GI bumped it up to 60 mg (which did work) - I think he kind of forgot about me though and I had to make an appt to go in and have him tell me to start weaning off.  He bumped me down from 60 to 50 right away, then 50 to 40 a week later.  He wants me to do the rest of the weaning slowly.
 
How long did it take you to wean off?  By how many mg did you go fown each time and how often?
 
Thanks!!
 
 
33 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, Humira, 55 30 mg Prednisone, Multivitamin, Calcium, Probiotics, Vitamin D, a few other herbal supplements my natureopath has me on.
 
Eating a Macrobiotic diet, no meat or dairy, trying to cut way back on sugar and white foods.  Trying to focus on a more holistic approach to healing. 
 
 
 


MoobyDoo
Regular Member


Date Joined Sep 2009
Total Posts : 212
   Posted 3/25/2010 9:32 PM (GMT -7)   
My daughter was on it for about three months. It took another 3 months for all the puffiness to go away.  She tapered very very slowly from 30 mg down to nothing.

  • wednesday77
    Regular Member


    Date Joined Oct 2007
    Total Posts : 363
       Posted 3/25/2010 9:38 PM (GMT -7)   
    Thanks Moobydoo!   But what did slowly mean for your daughter?  Like 5 mg a week, 1 mg a week, etc?

    randynoguts
    Veteran Member


    Date Joined Jan 2003
    Total Posts : 5962
       Posted 3/25/2010 10:27 PM (GMT -7)   
    depends on the person, the dose and the length of time on it. as a general rule figure at least the time it took to happen.
    randynoguts 



         http://www.geocities.com/randynogutsweb/


    Grandpato2
    Veteran Member


    Date Joined Dec 2009
    Total Posts : 681
       Posted 3/25/2010 10:32 PM (GMT -7)   
    It took about 5 months for me to loose the moon face.
    Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


    Susiebuddy
    Veteran Member


    Date Joined Feb 2005
    Total Posts : 1373
       Posted 3/25/2010 11:09 PM (GMT -7)   
    Hey Wednesday :)

    I like responses to my questions too~! It makes you feel like you really aren't alone doesn't it? :)

    Anyhow, I'll give you my taper schedule... The first time I tried to taper, I did it too quickly and flared right back up, so this is what I did the second time and it seemed to work on keeping my original symptoms at bay..

    I started out at 50mg.. then tapered down 5mg every week, as long as I stayed symptom free until I got to 20mg.

    Then from 20mg, I tapered at 2.5mg a week until the last week, then I did 2.5 every day for that last week, then every other day for a week, then quit altogether..

    It's a slow process, but you will have less serious side effects if you taper slowly and it's easier on your body to taper slowly.. I'd say the worst withdrawl symptom was fatigue and I got some pretty awful joint pain once I was completely off it, but that all went away within a few weeks.. To help with fatigue, I went on a med called Wellbutrin, which is an anti depressant and that REALLLLY helped me get through it.

    Hope this helps :D
     Diagnosed with Ulcerative Colitis January 31st, 2005, Testing for Crohn's 3/10
     Prior Meds:
    Canasa, Rowasa, Lialda, Apriso, Prednisone, 1 infusion of Remicade.. none of those worked for too long... Had neurological complications from the Remicade...
     Current Meds:
    Pentasa 2000mg 2x a day, Entocort 9mg daily, Nexium 40mg once a day, Wellbutrin 150mg once a day. Culturelle 2x a day, Xanax as needed and Ambien at night for sleep..  
           http://www.myspace.com/77016897  


    littlemissmuffet
    Regular Member


    Date Joined Feb 2009
    Total Posts : 268
       Posted 3/26/2010 4:25 AM (GMT -7)   
    My moon face lasted for about 2 and a half months.  I came off pred at 5mg per week.
    Diagnosed 2005.  41 year old female living in UK
     
    Current medication  -  infliximab infusions, ranitidine, Vitamin B12 injections, anti depressants


    themumma3
    New Member


    Date Joined May 2013
    Total Posts : 1
       Posted 5/11/2013 10:42 AM (GMT -7)   
    when my face swelled up from prednisone, I jumped on a rebounder trampoline for five minutes a couple times a day. I would lift my face up and also gently turn it to the side slowly back and forth. It went away, and never came back. I was on 60 mg a day and now have gone off of it. When I flare from UC, I go back on a 50 mg dose for 5 days, however, jumping on there, takes the swelling away.....

    Mandi33
    New Member


    Date Joined Mar 2014
    Total Posts : 1
       Posted 3/11/2014 6:27 PM (GMT -7)   
    How did you "lift lift your face up and also gently turn it to the side slowly back and forth". Did you massage your face back and forth, moving your cheeks from side to side with your hands?
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