Think humira is wreeking havic!!!

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Regular Member

Date Joined Oct 2007
Total Posts : 294
   Posted 3/25/2010 11:36 PM (GMT -6)   
I have been on humira for a year. Although it has helped the crohns i am not in symptom free remission. I flared once very bad. And i honestly feel that i have aged 15 years in one year. I am 30 and my joints are detirirating everyday. My bowel wont heal completely and i have nooo energy. Every morning is a battle as i have to morivate myself to get going and get up. I am seeing dr in 2 weeks and thinking about other drug options. Maybe i can go back to asacol or another 5asa. But this humira i feel is a slow death.
Im really concerned about my joints and the onset of arthritis. Is it commen in crohns patients?

Veteran Member

Date Joined Oct 2008
Total Posts : 1342
   Posted 3/26/2010 12:37 AM (GMT -6)   
I took Humira for over a year. I never experienced joint problems. My dad currently takes it, and thinks it helps his joints.

Have you been checked for lupus? I think that can cause joint pain, and humira can bring it on.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, Magnesium, Coconut Oil, Garlic Oil, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

New Member

Date Joined Apr 2010
Total Posts : 4
   Posted 4/1/2010 9:40 PM (GMT -6)   
I've been on humira since August and it has helped my joint pain also. I also would check for drug-induced lupus with your md.

Veteran Member

Date Joined May 2006
Total Posts : 1177
   Posted 4/1/2010 9:50 PM (GMT -6)   
Yes, I agree with the other posters. I think your doc should check your ANA and your anti-ds-dna (the test for drug induced lupus). Also, a test for anti-ccp may also be in order (for rheumatoid arthritis), just to rule it out. My husband last year got some severe inflammation of the joints while on remicade (huge swelling, multiple joints, etc). His GI performed the ANA and anti-ds-dna tests immediately. The rheumatologist, just to be on the safe side did the anti-ccp test to rule out RA.

Hope you get some answers soon. I think inflammation is pretty common in crohn's disease - gut, joint, skin, eyes - they are all possibilities, and can happen, and do happen. Also, have you had your vitamin-D, B-12 and iron levels checked? Being low on those can also cause extreme fatigue. Perhaps you need to add another med to the mix, like methotrexate. My husband's rheumatologist says that most of her RA patients take MTX in conjunction with Remicade/Humira/Cimzia, and that MTX greatly enhances the effectiveness of the anti-tnf agents. She says the combination that works best for most patients is MTX + anti-tnf agent. She says the risk of uncontrolled inflammation is far worse than the risk of side effects from adding mtx to the mix. As always with crohn's disease, it's russian roulette with your life, but there's nothing new about that :-)

Anyway, I hope you can get to the bottom of things soon, and start feeling spritely again.

Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission

Veteran Member

Date Joined Mar 2005
Total Posts : 1289
   Posted 4/1/2010 11:41 PM (GMT -6)   
i've had pretty bad joint pain on and off for a while...sometimes it's hard to stand up...not on humira but starting remicade mon.
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently tapering prednisone (15 mgs) and I've been on 6_MP for 2 months.
In the middle of a bad flare now for 6 months...lost almost 30 lbs.

Regular Member

Date Joined Mar 2010
Total Posts : 21
   Posted 4/1/2010 11:45 PM (GMT -6)   
if u read on the humira paper that comes in the box about the side affect and so on. it says it used for athritis and other joint pains aswell as crohns. i dnt think its from the humira. get a check up asap x0 get well
21yrs old have had crohns disease since 2003
previous meds include pentasa imuran prednisone budesinide remicade and plenty more that havent worked :)
currently on humira 20mg every 2weeks
1 operation to date removed 30cm of bowel and 1 fistula
trying to get pregnant (fingers crossed) :)))

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