Sick and Tired of my legs aching and depressed and over life

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ebrukilic
Regular Member


Date Joined Mar 2010
Total Posts : 21
   Posted 3/26/2010 10:19 PM (GMT -7)   
hiiiii all
 
well its another bad day with my leg pain. im in remission after 2 months of taking humira but with one thing getting fixed another problem starts.
my legs ache everyday and im sik of it. i take pain killers for the pain and my husband massages me with pure olive oil to relax me but its to much to handle.
i feel so down knowing another month has passed and im still not pregnant. :( i just started elevit to boost my body but its my weight that concerns me. as i got diagnosed with crohns at 16 but had it since 15 my body didnt develop much and im underweight. i weigh 4 kilos now and im not allowed to go on medication to put on weight.
another thing that crushes me is that i feel pregnant 2 years ago to my husband (was my boyfriend back then) after i had my resection. but had a abortion due to serious family problems . sometyms i think im getting punished for having the abortion and im never going to have the blessing of the baby i dream of almost every night.
i cry everyday wondering why?? why cant i have a painless day and be fit enough to have a baby.
 
i dont want to wait till i have a resection to try to fall pregnant as alot of women have to much scar tissue and cant or something could go wrong then there goes my chance.
 
life sux sometyms but today im really over it.
 
ebru 
21yrs old have had crohns disease since 2003
previous meds include pentasa imuran prednisone budesinide remicade and plenty more that havent worked :)
currently on humira 20mg every 2weeks
1 operation to date removed 30cm of bowel and 1 fistula
trying to get pregnant (fingers crossed) :)))


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 3/26/2010 10:30 PM (GMT -7)   
Maybe you should wait until you're pain-free before you get pregnant... otherwise, you'll be really suffering... I can't imagine the pain-killers would be good for the baby, so the doctor would probably take you off of them...

Anyway.... 21.... that's still pretty young to be having a baby... at least, in my opinion... I mean, you've barely started your life, you know?

*I'm going on 22 soon.... and I'm not yet out of college...* How do you plan to support your baby?

I mean... Ultimately, it's your decision what to do with your life and everything.... but... It sounds kind of worrisome... and like you might end up getting in over your head...

And... it really doesn't sound all that healthy to be obsessing over a baby every night...

Out of curiosity, do you go to a therapist? You said you're depressed... so... maybe talking things over with a professional would help... I've found it pretty helpful for me...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


ebrukilic
Regular Member


Date Joined Mar 2010
Total Posts : 21
   Posted 3/26/2010 10:44 PM (GMT -7)   
hi celey.
ive always wanted kids at a young age and ive been married for a year now so i think its not early at all.

i dont think im obsessing i dont control my dreams at night. its just deppresing having such a low weight and not being able to put any on to support a healthy baby.

i dont work and my husband supports me he has a great job with a great income and im on a benifit from welfare for my sikness. so money isent a issue.

my legs are hurting from the medicine but otherwise im ok and the painkillers are a alternative if pain gets to much and if i do fall pregnant i will get off them.
21yrs old have had crohns disease since 2003
previous meds include pentasa imuran prednisone budesinide remicade and plenty more that havent worked :)
currently on humira 20mg every 2weeks
1 operation to date removed 30cm of bowel and 1 fistula
trying to get pregnant (fingers crossed) :)))


ebrukilic
Regular Member


Date Joined Mar 2010
Total Posts : 21
   Posted 3/26/2010 10:51 PM (GMT -7)   
hmmmm thought this site is all about support and help just felt like i was put down more....
21yrs old have had crohns disease since 2003
previous meds include pentasa imuran prednisone budesinide remicade and plenty more that havent worked :)
currently on humira 20mg every 2weeks
1 operation to date removed 30cm of bowel and 1 fistula
trying to get pregnant (fingers crossed) :)))


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 3/26/2010 11:13 PM (GMT -7)   
I'm sorry... I wasn't trying to make you feel bad... I was just very concerned... I'm struggling with weight issues as well... so if you would like some weight-gain tips... maybe I can help you out... *Is hoping to put on 20 pounds myself*

I wasn't trying to question your marriage or anything of the sort... I was saying that you... yourself... are young.... 18 years old is just out of high school... 21 years old is 3 years after that...

It's really not enough time to get a feel for the world, you know? Like I said... I'm 21 right now... I'm going on 22... and it just seems... rushed to me... Granted, I realize that many people have gotten pregnant at ridiculous ages.... 15, 16... sometimes even younger...

The reason I offer a word of caution is because.... many of the female adults in my family have been... hasty... in their decisions to have a baby... and now, they live a very difficult and hard life... And they don't even have Crohn's... which is bound to make things even more difficult...

But like I said... This is your decision...

I still think going to the therapist would be a good idea.... I go to one myself... For people like us... That have Crohn's... it can be a very difficult disease to live with.... and sometimes, we need extra support...

That's all I was trying to say... and I'm sorry if I offended you... it wasn't my intention at all...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


ebrukilic
Regular Member


Date Joined Mar 2010
Total Posts : 21
   Posted 3/26/2010 11:35 PM (GMT -7)   
thanks heaps hun today just isent my day at all.

wat have u been doing to put on weight????
21yrs old have had crohns disease since 2003
previous meds include pentasa imuran prednisone budesinide remicade and plenty more that havent worked :)
currently on humira 20mg every 2weeks
1 operation to date removed 30cm of bowel and 1 fistula
trying to get pregnant (fingers crossed) :)))


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 3/26/2010 11:51 PM (GMT -7)   
Lots of different things... First, couple of things... and one is pretty new for me..

I usually buy nutrition drinks and drink one every day.... A nutrition drink, as it implies, is very nutritious... and clocks in about 350 calories, as much as calories as one whole meal... So, it can be very helpful... I drink Ensure or the off-brand of Ensure...

Another thing... is another drink... and if you can't find a nutrition drink that you like, maybe you'll find this more palatable.... There's this vegetable-fruit juice drink (it comes in different flavors, and it's a lot tastier than it sounds... especially the Peach Mango flavor)... V8 Fusion... One whole bottle gives you a full serving of fruit and a full serving of veggies... so, it's very healthy...

And... as an added bonus... Drinking one bottle a day clocks in about 600 calories (there's about 100 calories per serving... and I can't remember what the serving size is... but the whole bottle is round about 600 calories)...

That's one of the most important things about trying to gain weight... At least, from what I've gathered from a dietician I've talked to... You need to get in your full amount of calories... 2,000 a day... And you'd be surprised how easy it is to miss calories...

I've found out that... on a general basis.... I get in half the calories that I need.... 1,000... so, what I'm doing now is trying to keep better track of what I'm getting in, so that I get my full 2000...

Look for a website called My Calorie Counter.... it's a free website that offers a means to keep track of your calories... It's a little difficult to figure out at first... but it is very helpful...

Given that your legs have been bothering you right now, you might wanna hold off on this next piece of advice...

It's commonly known that muscle weighs more than fat... So, once you make sure you're getting in 2000 calories a day... the next thing to do is start on a diet that's higher in protein... Protein helps to build muscle... And then, you need to start exercising... weight lifting is especially conducive to building muscle...

The good thing about that is muscle is a lot harder to lose than fat... So, if you get into a bad situation with your Crohn's, you'll have that muscle to rely on to keep you stable...

So... Yeah... That's what I've been doing... Hope that helps... :)
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/27/2010 6:26 AM (GMT -7)   
Hey Ebru,

I am thinking that once you can get yourself healthy and free from any Crohns flares the baby will come. Most docs prefer us to be in remission first before trying. They figure a healthy mom will produce a healthy baby. Hopefully things quiet down soon and you can get to work on that baby. Good luck!

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/27/2010 7:02 AM (GMT -7)   
I am also wondering if you might want to think about an ANA test? Since I had the lupus like syndrome that you can get from the A-TNF I wonder about it in others?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


imissicecream
Regular Member


Date Joined Oct 2009
Total Posts : 157
   Posted 3/27/2010 12:52 PM (GMT -7)   
Ebru- not to hijack your thread, but just a question for Navy-

Does being ANA positive with high numbers mean anything to Crohn's disease? My old GI did an ANA test and my numbers were "very high" (I don't know what they were, I'm still waiting to get my record from his office)...he put me on Humira and sent me away and I got very sick.


Ebrukilic, I'm so sorry that your disease isn't quite under control. It really sucks to be young and sick and feel like we can't do the things that other young people can. Are you on an anti-depressant or in counseling? I found that those things have really helped me to cope with this DD.
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Currently taking: Entocort 6mg
Off nearly all meds so the doctor can re-evaluate my diagnosis. Ugh.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/27/2010 3:05 PM (GMT -7)   
Ice Cream,
If it is a concern you might want to think about seeing a ryhmie (it is a series of tests for the lupus like syndrome). Both Ides and I have had this issue. Basically it feels like trying to walk thru chest deep snow (I generally add in after your feet have been beaten). It is that kind of pain and effort just to be able to move.
Take Care,
Navy
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/27/2010 4:15 PM (GMT -7)   
Have you had your iron levels checked for the sore legs? My legs ache like crazy all day (and night) long when I am super anemic. Iron infusions stopped the ache twice. Just a small piece to your situation, but if you could stop that ache, there would be one less thing to worry about!

Hang in there... You are not being punished... And you are young, so hopefully once you start feeling better the pregnancy will happen. I'll keep good thoughts for you. But, having gone through infertility myself (not at all related to Crohn's - Pre-Crohn's - 13 years ago) I know how frustrating it is to really want a baby and not have it happen. Just hang in there and try to stay strong!
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


vls
Regular Member


Date Joined May 2005
Total Posts : 166
   Posted 3/28/2010 4:49 AM (GMT -7)   
I noticed you're on Humira, Ebrukilic. I'm on Cimzia and experienced the same awful pain in my leg muscles. I've read where others on Humira also experienced the same leg pain. I was able to adjust my dosage of Cimzia and alleviate the side effects while still controlling the Crohn's. Just a thought.

I understand that intense yearning for a child as far back as a teenager. I even married a guy when I was 23 just because I felt he would be a good father. Luckily I didn't get pregnant by him, altho we tried! I later remarried and immediately was able to have 2 wonderful children at the age of 30 and 32. That was 22 yrs ago and they are the joy of my life, but I didn't have Crohn's then. I was diagnosed 8 yrs ago with Crohn's and could not imagine being able to take care of babies and manage my Crohn's. For me, Crohn's has been a full time job.
diagnosed 13 days following an MMR vaccination at the age of 44
tried Colazal, Pentasa, Immuran, Remicade, Prednisone, Cipro, Flagyl, LDN, Osiris clinical study,  accupuncture, began Cimzia 5/2009


heatmiser
Veteran Member


Date Joined May 2003
Total Posts : 1671
   Posted 3/28/2010 7:47 PM (GMT -7)   
Do they know what is causing the leg pain? Is it muscle or joint pain? I've had muscle pain recently and my docs don't think it has anything to do with my cd. It gets better with prednisone even though they tried to tell me at one point that the pred was a possible cause. Problem was that I was not on pred when the pain hit. I didn't think leg pain was a common symptom for ibd.

Good luck with your pregnancy plans. I had my kids before cd so I didn't have to worry about all these issues. Did struggle with infertility and totally understand that ache for a child.
Dxd CD in 2003. Scope Aug/09 shows UC.
Meds: Colazal, prilosec, darvocet, prednisone, cipro, flagyl


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 3/29/2010 10:32 AM (GMT -7)   
It's very possible that the reason you aren't pregnant is just your body telling you that it's not ready to be pregnant. Why not just concentrate on getting healthy right now, and once you gain weight and feel more stable then move on to getting pregnant. Don't mean to judge, just my opinion...
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Tink42
Regular Member


Date Joined Apr 2010
Total Posts : 42
   Posted 4/3/2010 12:38 PM (GMT -7)   
Hi there ebrukilic, I am actually new to the CD, Just DX'd on 31st of March, However I figured I would share my daughters story with you, She doesn't have CD, least not that we know of, Thank God, But she has had several miscarriages, it turned out to be she had a tilted uterus, and low hormone lvl's, I'm not saying that your problem isn't the CD, but It may not be either. I don't know how CD affects getting pregnant, Just saying you might want to have your OB/GYN dig further and see if its something like what she went through. *Smile*
42 yr Female
Dx'd with Crohn's 03/31/10, Fibromyalgia 97, Allergies since birth, Anxiety 06, Depression 97, IBS 00,
Endometriosis 01,Anemia since teen years, Osteoarthritis 00, Diverticulosis 07.
Just started Prednisone 20mg, Imuran 50mg x2

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